OpenCharities

The 1p36 Family Trust

Country
England & Wales
Charity number
1181988
Status
Registered
Reporting
Up to date Last filed Jan. 12, 2026. Filing history
Registered
Feb. 12, 2019
Legal form
CIO

Address

Address
2 Lambardes
New Ash Green
Longfield
Kent
DA3 8HX

Activities

Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.

Objects: The Objects Of The CIO Are:the Advancement Of Health For The Public Benefit By The Provision Of Support To Children And Adults Affected By 1p36 Deletion Syndrome And Their Families In The UK, In Particular, But Not Exclusively By Arranging A Conference To Share Research And Practise Concerning Management Of Symptoms, Treatment And Sharing Educational Content About 1p36 Deletion Syndrome.

Classification

How
Provides Services, Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
March 31, 2025 Jan. 12, 2026On time £20,777 £25,212
March 31, 2024 Jan. 2, 2025On time £16,812 £12,439
March 31, 2023 Oct. 9, 2023On time £13,404 £4,602
March 31, 2022 Oct. 1, 2022On time £10,644 £15,145
March 31, 2021 Jan. 23, 2022On time £3,736 £576

Trustees

Name Appointed
Rebecca Louise Rolleston (Chair) Feb. 7, 2019
Gareth James Twynam Feb. 7, 2019
Mary Rose Daniels Feb. 7, 2019