# THE 1P36 FAMILY TRUST

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1181988
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Feb. 12, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1181988


## Contact

- **Address:** 2 Lambardes, New Ash Green, LONGFIELD, Kent
- **Postcode:** DA3 8HX
- **Phone:** 07917 153834
- **Email:** 1p36familytrust@gmail.com
- **Website:** www.1p36.co.uk



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE:THE ADVANCEMENT OF HEALTH FOR THE PUBLIC BENEFIT BY THE PROVISION OF SUPPORT TO CHILDREN AND ADULTS AFFECTED BY 1P36 DELETION SYNDROME AND THEIR FAMILIES IN THE UK, IN PARTICULAR, BUT NOT EXCLUSIVELY BY ARRANGING A CONFERENCE TO SHARE RESEARCH AND PRACTISE CONCERNING MANAGEMENT OF SYMPTOMS, TREATMENT AND SHARING EDUCATIONAL CONTENT ABOUT 1P36 DELETION SYNDROME.

**Activities:** Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **REBECCA LOUISE ROLLESTON** | Chair | Feb. 7, 2019 |
| GARETH JAMES TWYNAM |  | Feb. 7, 2019 |
| MARY ROSE DANIELS |  | Feb. 7, 2019 |




