OpenCharities

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2025-03-31-accounts

To

Trustees' Annual Report for the period

Period start date Period end date 1 April 2024 31 March 2025

From

Section A Reference and administration details

Charity name Other names charity is known by Registered charity number (if any) 1181988

The 1p36 Family Trust


2 Lambardes
New Ash Green
Longfield
Postcode DA3 8HX

Charity's principal address

Names of the charity trustees who manage the charity

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20		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Rebecca Rolleston Chair
Gareth Twynam Treasurer
MaryDaniels

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

March 2012

TAR

1

Names and addresses of advisers (Optional information)
Type of adviser
Name
Address		 Names and addresses of advisers (Optional information)
Type of adviser
Name
Address		 Names and addresses of advisers (Optional information)
Type of adviser
Name
Address
Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

Constitution.

Charitable Incorporated Organisation. How the charity is constituted

Appointed by resolution passed at a properly convened meeting of the Trustee selection methods charity trustees.

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

The provision of support to children and adults affected by 1p36 deletion syndrome and their families in the UK.

Summary of the objects of the charity set out in its governing document

March 2012

TAR

2

The arranging of a conference every other year, open to all such families, to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. This allows families to share together and learn together, as they gather in one place for a weekend.

The arranging of a Family Fun Day in the intervening year, for mutual support and networking.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

The trustees have had due regard to the Charity Commission’s guidance on public benefit when exercising any powers or duties to which the guidance is relevant.

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

March 2012

TAR

3

Section D Achievements and performance

Our second Family Fun Day was successfully held in August 2024 at Summary of the main Torquay. achievements of the charity during the year Planning continued for the 2025 conference. Fundraising continued, with the reserves policy being satisfied.

March 2012

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Section E

Financial review

Brief statement of the charity’s policy on reserves

The main expenditure of the charity is the arranging of a conference every other year. The trustees will aim to hold in reserve 50% of the projected costs in the intervening year.

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F

Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s)

Gareth Twynam Full name(s) Rebecca Rolleston Position (eg Secretary, Chair, Chair Treasurer etc) Date 12/01/2025

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Charity Name No (if any) The 1p36 Family Trust 1181988 Receipts and payments accounts CC16a For the period Period start date Period end date To from 01-Apr-24 31-Mar-25

Section A Receipts and payments

A1 Receipts Unrestricted
funds
to the nearest
£
1,330
18,332
94
521
-
500
-
-
20,777
-
-
-
20,777
866
17,335
2,063
4,353
130
-
465
-
-
25,212
-
-
-
25,212
- 4,435
-
32,867
28,432		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Endowment
funds
to the nearest £		 Total funds
to the nearest £
1,330
18,332
94
521
-
500
-
-
20,777
-
-
-
20,777
866
17,335
2,063
4,353
130
-
465
-
-
25,212
-
-
-
25,212

- 4,435		 Total funds
to the nearest £
1,330
18,332
94
521
-
500
-
-
20,777
-
-
-
20,777
866
17,335
2,063
4,353
130
-
465
-
-
25,212
-
-
-
25,212

- 4,435		 Last year
to the nearest £
Donations 1,330 -
-
-
-
-
-
-
-
-		 1,330 482
Fundraisingactivities 18,332 18,332 13,670
Online fundraising 94 94 515
Refunds 521 521 -
Gift Aid tax reclaimed - - 337
Grants 500 500 801
Conference fees - - 1,007
- - -
Sub total(Gross income for
AR)		 20,777 20,777 16,812
A2 Asset and investment sales,
(see table).
- -
-
-		 -
- - -
Sub total - - -
Total receipts
A3 Payments
- 20,777 16,812
Cost of fundraisingactivities 866 -
-
-
-
-
-
-
-
-
-		 866 -
Conference venue hire 17,335 17,335 6,553
Other conference costs 2,063 2,063 5,701
Familyfun daycosts 4,353 4,353 -
Website 130 130 94
Sundries - - 30
Insurance 465 465 61
- - -
- - -
**Sub total ** 25,212 25,212 12,439
A4 Asset and investment
purchases, (see table)
- -
-
-		 -
- -
**Sub total ** - - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
- 25,212 12,439
- 4,435 - -
- 4,435		 4,373
- - -
-		 - -
32,867 - 32,867 28,494
28,432 - - 28,432 32,867

CCXX R1 accounts (SS)

10/11/2025

1

Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B5 Liabilities
B3 Investment assets
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B1 Cash funds		 Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Nat West Bank
Details
Details
Details
Signature		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
28,432
-
-
-
-
-
28,432
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name
Rebecca Rolleston
Gareth Twynam		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
Rebecca Rolleston 12/01/2026
Gareth Twynam 12/01/2026

CCXX R2 accounts (SS)

10/11/2025

2