2024-03-31-accounts - The 1p36 Family Trust

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Trustees' Annual Report for the period

Period start date Period end date 1 April 2023 31 March 2024

From

Section A Reference and administration details

Charity name

The 1p36 Family Trust

Other names charity is known by Registered charity number (if any) 1181988

Charity's principal address

2 Lambardes, New Ash Green, Longfield. Postcode DA3 8HX

Names of the charity trustees who manage the charity

Dates acted if not for whole Name of person (or body) entitled Trustee name Office (if any) year to appoint trustee (if any) 1 Rebecca Rolleston Chair 2 Gareth Twynam Treasurer 3 Mary Daniels 4 5 6 7 8 9 10 11 12 13 14 15 16 17

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

March 2012

TAR

Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

Constitution

(eg. trust deed, constitution)

Charitable Incorporated Organisation How the charity is constituted

(eg. trust, association, company)

Appointed by resolution passed at a properly convened meeting of the Trustee selection methods charity trustees.

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;
relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

The provision of support to children and adults affected by 1p36 deletion syndrome and their families in the UK.

Summary of the objects of the charity set out in its governing document

March 2012

TAR

The arranging of a conference every other year, open to all such families, to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. This allows families to share together and learn together as they gather in one place for a weekend. The arranging of a Family Fun Day in the intervening year for mutual support and networking. The trustees had due regard to the Charity Commission’s guidance on public benefit when exercising any powers or duties to which the guidance is relevant.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

policy on grantmaking;
policy programme related investment;
contribution made by volunteers.

March 2012

TAR

Section D Achievements and performance

Our second conference was successfully held in August 2023 at Summary of the main Stourport. achievements of the charity Planning commenced for the 2024 Family Fun Day and the 2025 during the year conference. Fundraising continued, with the reserves policy being satisfied.

March 2012

TAR

Section E Financial review

The main expenditure of the charity is the arranging of a conference Brief statement of the every other year. The trustees will aim to hold in reserve, 50% of the charity’s policy on reserves projected costs in the intervening year.

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;
investment policy and objectives including any ethical investment policy adopted.

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Gareth Twynam Full name(s) Rebecca Rolleston Position (eg Secretary, Chair, Chair etc) Date

March 2012

TAR

	The 1p36 Family Trust 1181988 Receipts andpayments accounts For the period from 1/4/23 To 31/3/24	The 1p36 Family Trust 1181988 Receipts andpayments accounts For the period from 1/4/23 To 31/3/24	The 1p36 Family Trust 1181988 Receipts andpayments accounts For the period from 1/4/23 To 31/3/24	The 1p36 Family Trust 1181988 Receipts andpayments accounts For the period from 1/4/23 To 31/3/24	The 1p36 Family Trust 1181988 Receipts andpayments accounts For the period from 1/4/23 To 31/3/24
	For the period from	1/4/23	To


Section A Receipts and payments
A1 Receipts	Unrestricted funds to the nearest £ 482 13,670 515 1,007 0 337 801 0 16,812 0 0 0 16,812 6,553 5,701 0 0 94 30 61 0 12,439 0 0 0 12,439 4,373 0 28,494 32,867	Restricted funds to the nearest £	Endowment funds to the nearest £	Total funds to the nearest £
Donations	482	0 0 0 0 0 0 0 0	0 0 0 0 0 0 0 0	482 13,670 515 1,007 0 337 801 0	586
Fundraisingactivities	13,670				10,862
Online fundraising	515				1,842
Conference fees	1,007				0
Refunds	0				114
Gift Aid tax reclaimed	337				0
Grants	801				0
	0				0
*Sub total(Gross income for AR)*	16,812	0	0	16,812	13,404

A2 Asset and investment sales, (see table).
	0	0 0	0 0	0 0
	0				0
*Sub total*	0	0	0	0	0
*Total receipts* A3 Payments
		0	0	16,812	13,404

Cost of fundraisingactivities		0 0 0 0 0 0 0 0 0	0 0 0 0 0 0 0 0 0	0 6,553 5,701 0 0 94 30 61 0	0
Conference venue hire	6,553				250
Other conference costs	5,701				295
Familyfun daycosts	0				3,947
Postage	0				8
Website	94				94
Sundries	30				8
Insurance	61				0
	0				0
*Sub total*	12,439	0	0	12,439	4,602

A4 Asset and investment purchases, (see table)
	0	0 0	0 0	0 0
	0
*Sub total*	0	0	0	0	0
*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
		0	0	12,439	4,602

		0	0	4,373	8,802
		0	0	0	0
		0	0	28,494	19,692
		0	0	32,867	28,494

Section B Statement of assets and liabilities at the end of the period
Categories B1 Cash funds	Details Nat West Bank		Unrestricted funds to nearest £ 32,867 0	Restricted funds to nearest £
				0 0	0
					0


		0		0	0
	*Total cash funds*	32,867		0	0
	(agree balances with receipts and payments
	account(s))	OK		OK	OK
		Unrestricted		Restricted funds	Endowment
		funds			funds
	Details	to nearest £		to nearest £	to nearest £
B2 Other monetary assets		0		0	0
		0		0	0
		0		0	0
		0		0	0
		0		0	0
		0		0	0
	Details	Fund to which asset belongs		Cost (optional)	Current value (optional)
B3 Investment assets				0	0
				0	0
				0	0
				0	0
				0	0
	Details	Fund to which asset belongs		Cost (optional)	Current value (optional)
B4 Assets retained for the				0	0
charity’s own use				0	0
				0	0
				0	0
				0	0
				0	0
				0	0
				0	0
				0	0
		Fund to which		Amount due	When due (optional)
	Details	liability relates		(optional)
B5 Liabilities				0
				0
				0
				0
				0
Signed by one or two trustees on behalf of all the trustees	Signature	Print	Name		Date of approval
	GE	ETEI.im			26 6 24