The Ehlers-Danlos Support UK
Address
- Address
- International House
66 Lavender Hill
London
SW11 5RQ
Contact
- Phone
- 020 8736 5604
- info@ehlers-danlos.org
- Website
ehlers-danlos.uk
Activities
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Objects: For The Relief Of Persons Suffering From Ehlers-Danlos Syndrome And To Advance Medical Research Into The Cause, Cure, Prevention Of The Syndrome.
Classification
- How
- Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- People With Disabilities
Geography
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £434,770 | £392,489 |
| March 31, 2024 | £380,301 | £428,558 |
| March 31, 2023 | £423,719 | £537,080 |
| March 31, 2022 | £483,707 | £496,377 |
| March 31, 2021 | £406,887 | £405,498 |
Trustees
| Name | Appointed |
|---|---|
| Charlotte Emily Williams (Chair) | March 7, 2020 |
| Alison Jane Roux | Feb. 19, 2022 |
| Anne Dominique Myra Lavery | Feb. 19, 2022 |
| Dr Jill Harrison | Sept. 14, 2024 |
| Helen Ball | Nov. 23, 2024 |
| Kathryn Jayne Caldwell | Nov. 23, 2024 |
| Laure Francoise Marie Nas De Tourris | June 15, 2022 |
| Natasha Larkin | Nov. 22, 2025 |
| Sarah Bullock | Nov. 22, 2025 |
| Timothy Peter de Winter | July 25, 2024 |
| Yanina Graciela Aubrey-Gimenez | May 11, 2024 |
Nearby
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