OpenCharities

The Ehlers-Danlos Support UK

Country
England & Wales
Charity number
1157027
Status
Registered
Registered
May 13, 2014
Legal form
Charitable company

Address

Address
International House
45-55 Commercial Street
London
E1 6BD

Activities

Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'

Objects: For The Relief Of Persons Suffering From Ehlers-Danlos Syndrome And To Advance Medical Research Into The Cause, Cure, Prevention Of The Syndrome.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £434,770 £392,489
March 31, 2024 £380,301 £428,558
March 31, 2023 £423,719 £537,080
March 31, 2022 £483,707 £496,377
March 31, 2021 £406,887 £405,498

Trustees

Name Appointed
Charlotte Emily Williams (Chair) March 7, 2020
Alison Jane Roux Feb. 19, 2022
Anne Dominique Myra Lavery Feb. 19, 2022
Dr Jill Harrison Sept. 14, 2024
Helen Ball Nov. 23, 2024
Kathryn Jayne Caldwell Nov. 23, 2024
Laure Francoise Marie Nas De Tourris June 15, 2022
Natasha Larkin Nov. 22, 2025
Sarah Bullock Nov. 22, 2025
Timothy Peter de Winter July 25, 2024
Yanina Graciela Aubrey-Gimenez May 11, 2024