# THE EHLERS-DANLOS SUPPORT UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1157027
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [08924646](https://find-and-update.company-information.service.gov.uk/company/08924646)
- **Registered:** May 13, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1157027


## Contact

- **Address:** International House, 66 Lavender Hill, LONDON
- **Postcode:** SW11 5RQ
- **Phone:** 020 8736 5604
- **Email:** info@ehlers-danlos.org
- **Website:** www.ehlers-danlos.uk



## Activities

**Objects:** FOR THE RELIEF OF PERSONS SUFFERING FROM EHLERS-DANLOS SYNDROME AND TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF THE SYNDROME.

**Activities:** Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. &#x27;MAKING OUR INVISIBLE VISIBLE&#x27;




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Charlotte Emily Williams** | Chair | March 7, 2020 |
| Alison Jane Roux |  | Feb. 19, 2022 |
| Anne Dominique Myra Lavery |  | Feb. 19, 2022 |
| Dr Jill Harrison |  | Sept. 14, 2024 |
| Helen Ball |  | Nov. 23, 2024 |
| Kathryn Jayne Caldwell |  | Nov. 23, 2024 |
| Laure Francoise Marie Nas De Tourris |  | June 15, 2022 |
| Natasha Larkin |  | Nov. 22, 2025 |
| Sarah Bullock |  | Nov. 22, 2025 |
| Timothy Peter de Winter |  | July 25, 2024 |
| Yanina  Graciela Aubrey-Gimenez |  | May 11, 2024 |




