Charity registration number 1157027 (England and Wales) Charity registration number SC046712 (Scotland) Company registration number 08924646 (England and Vvales) THE EHLERS-DANLOS SUPPORT UK ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024
THE EHLERS-DANLOS SUPPORT UK LEGAL AND ADMINISTRATIVE INFORMATION Trustees Sarita Aujla Ellie Cannell Anne Lavery Leah Mansfield Laure Nas de ToulS Jason Pear Alison Roux Stephen Stacey Adrian Steel Charlotte Williams Charity number (England and Wales) 1157027 Charity number (Scotland) SC046712 Company number 08924646 Registered office Intemational House 45-55 Commercial Street London E16BD Independent examiner Sobell Rhodes LLP The Kinetic Centre Theobald Street Elstree Borehamwood Hertfordshire Uniled Kingdom WD6 4PJ
THE EHLERS-DANLOS SUPPORT UK CONTENTS Page Trustees, report Independent examineffs report 9-10 Statement of financial activities 11 Balance sheet 12 Notes to the financial statements 13-19
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) FOR THE YEAR ENDED 31 MARCH 2024 The trustees present their report and accounts for the period ended 31 March 2024. The financial statements have been prepared in accordan with the accounting policies set out in note 1 to the financial statements and comply with the charity's goveming document, the Companies Act 2006, the Charities and Trustee Investment (Scotland) Act 2005. the Charities Accounts (Scotlandl Regulations 2006 (as amended} and 'AGGounting and Reporting by Charities.. Statement of Recommended Practice applicable to Gharities preparing their accounts in accordance wilh the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), (effective 1 January 2019). Objectives and activities Purpose The charity's purpose as set out in its objects is as follows.. The objects are primarily for the relief of persons suffering from Ehlers-Danlos syndrome through the provision of support, education and practical advice" and to advan medical research into the cause, cure, prevention or relief of the syndrome and that useful results of such research are placed in the public domain. The main activities of the charity pursuant to this purpose include- a. Providing infomiation and support to people with. affected by. or involved with the diagnosis and treatment of EDS. b. Linking members with each otherfor mutual support and exchange of ideas. c. Publishing booklets. leaflets, and online toolkits. d. Organising conferences. Producing a bi-annual magazine (Fragile Links) available on payment of a small subscription, digitally, and in hard copy. f. Maintaining a website and social media presence to promote public awareness and provide information and support. g. Running social events to bring our community together for both adults and children. h. Facilitating local support meetings through trained area coordinators. Running a free-phone infomiation and advice line for all members of our community. j. Supporting research projects that will benefit those living with EDS. The trustees have paid due regard to guidan issued by the Charity Commission in deciding what activities the charity should undertake. A new Theory of Change, vision, mission and three year strategy In October 2023 we undertook a strategic review and developed a new theory of change, vision, misgon and three year strategy. Our vision Across the UK, people with EDS or HSD will be connected. heard, supported and have equitable access to care. Mission We are the voice of the EDSIHSD community in the UK. We bring togelher people with EDS and HSD in the UK to equitably acSS diagnosis, treatment and care. We do this through= Awareness- We advocate for and empower our community to drive change. We raise their voices, and work with the NHS across the UK in pursuit of services accessible by all. Support- We provide a platfomi to support and connect our community. We deliver information and advice on living wilh EDSIHSD. Knowledge - We build knowledge through infomiation, training and enabling research. We confront misunderstanding and challenge inequality-
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Strategic pillars Based on our theory of change there are three main areas of focus.. Advocacy and access Community and connections Infomiation and knowledge. Underpinning all three pillars to achieve our vision are our fundraising and infrastructure strategies. A summary of our activities is provided under each of these headings. Advocacy and Access Our Enough is Enough campaign gamered over 33.000 signatures across all four nations of the UK and significantly increased awareness of EDS amongst key decision makers in our public policy audience. How did we achieve this? We created Iwo digital applications to be the forefront of our campaign. The first allowed members of our community easily to email their local MP and to share their experiences of using the NHS, asking their MP to support our campaign. The second allowed them to create a personalised graphic highlighting their challenges of living with EDS or HSD and promoting the wider campaign. By using the petitions committees where available in the four nations. we were able to ask the committee members to discuss the issues raised with the relevant Ministers. We delivered a 28,700 signature petition lo Downing Street in November 2023 after holding a briefing for parliamentarians in Portcullis House. From the briefing our host Andrew Selous MP undertook to apply for a Westminster Hall debate on the subject of the provision of services for EDSIHSD. In Wales we secured a date for an exhibition event in the Senedd. Our petition was discussed several times. In March we received a response from the Minister for Health in Wales offering a meeting with the National Clinical Direclor for Musculoskeletal Care to discuss primary care pathways. In Scotland we were also fortunate to be given a date for an exhibition in Holyrood. The petition was discussed several limes and is still live into 2024-25. In Northern Ireland we worked on arranging a Dazzle Walk to hand in the petition to Stormont. Conversations have been held with the Rare Disease Partnership and APPG to make further progress. In February we attended an NHS MSK workshop in London to represent the EDS UK community. The workshop was hosted by the National Clinical Director for MSK and was called Designing the Future of MSK Care. In just a year we have made a significant impact by raising the voices of our community to the highest levels of power and decision making. In our strategic planning prOsS we identified the need for systems charue and our role within that. Almost all the respondents to our 2024 members. survey {99 % I said that campaigning and lobbying to raise issues with Ihe govemment and the NHS were important. very important or essential to them. Community and Connections We run support groups to facilitste peer-to-peer support in a safe space. These groups have attracted over 3,000 attendances in the year under review. We have over 85 volunteers (90 in 2022-231 either with EDS themselves or caring for someone with EDS. Our volunleers run over 100 support groups (over 100 in 2022-23}, which are often the only occasions for people to leam how to manage their symptoms themselves and share treatment options and ideas about how to live independent and fulfilling lives. We have seven special interest groups: for 1>25-year-olds, teens, parents, elders, LGBTQIA+ men, and family and friends. Over 52.000 people (49.000 in 2022-231 engage with each other on the main Facebook page and share suggestions for pain management, discuss symptoms, celebrate fundraising achievements, and support each other. In addition, over 10,000 people (8.000 in 2022-231 connect regularly with each other in 24 closed Fabook groups. 71 /0 of members responding to our 2024 members survey said that our support groups both virtual and face-to- face were important or extremely important to them. 81 % of our members said the information. advi and support provided by us positively affected the isolation they felt and their engagement in the community.
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Our Changemakers or young people's project started taking shape in the year with regular drop-ins for the young people on our online working group to get together and create content for their new website. The project continues and the quote below from one of the young people involved illustrates the impact it has had on them personally. Being a part of this pmject has really boosted my confidence and really consolidated an understanding of things I didn't know l understood and has also helped me to challenge some of my own mindsets. It has really helped me grow personally so muGh. That'll really help me in lrfe and I'll never forget this projeGt for that reason." We run a membership scheme for our community to provide safeguarding for our online spaces and SUFPOrt meetings. There is a free membership option to ensure inclusivity and a paid option for people to choose to receive our Fragile Links magazine. We had an average of around 12,000 registered members during the year. We engage wilh a community of over 90.000 across our social media platforms. We also have an e-news subscriber list of 17,000 where we communicate with them weekly. The number of website users continues to grow= over 641,000 unique users during the year (compared to over 500,000 in 2022-23). The website continues to be a very valuable resour for members and people looking for infomiation on EDSIHSD with 100 % of members responding to our 2024 survey saying they felt it was essential or important to them. Information and Knowledge OurAdviceline In the UK there are still no official care pathways within the NHS for EDSIHSD. This continues to create confusion amongst both patients and heallhcare professionals. Not surprisingly the positive impact of our telephone and email Adviceline is huge. There are no other UK-specific advi and infomiation hubs on EDSI HSD and so we are proud to provide a unique resource. Our 2024 members, survey showed just how important our helpline services are. 800/0 of members said that the advice and support they received from our helpline was imporlant, very important, or essential to them. In the period under review, we took 962 calls {in 2022-23. 1.171 calls) with an average call time of 19 minutes (in 2022-23, 20 minutes) and responded to 1.550 emails {in 2022-23. 1.756 emails).. staff changes in the year may have adversely affected the number of calls logged). "Thank you for your email & getting back to me so quickly. I will definitely email the ICB in my area & see if I can get the geneticist test expedited. I'm trying to work out how to word it all but I will get there. I'm just so tired with it all at the moment. Thank goodness for Ehlers-Danlos Support UK." Following our strategic review and work on our Theory of Change. we began to deliver a more targeted approach to maximise the impact for our community. We rebranded the Helpline to an Adviceline in January 2024 and focused our communications around the targeted purpose of the service with reduced phone opening hours. We provided a new FAQ webpage and robust signposting for crisis support services. All of this, alongside better handling of conversations to avoid escalations to safeguarding incidents, meant that between January and March we saw a steep dedine in safeguarding calls to the servi. This enables us to take more focused advice calls. "Wow! Great support thank you. Once again I would like to point out how nice it is to have someone There. for us. Prompt, polite and understanding." We continued to provide a unique GP toolkit to enable diagnosis and management within primary care. h1t s 11 toolkit.ehlers-danlos.or l and a unique schools toolkit to support young people in education. htt sll theschooltoolkit.or
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Research We are focused on supporting research contributing to the development of clinical guidelines for the diagnosis. treatment, and management of any type of EDS or HSD in the UK and to expanding EDS research capacity in the UK. Details of current and recent research facilitated by EDS UK may be found at htt danlos.o Iresearchl A major research project ('Comprehensive Assessment of Nutrition and Dietary Intervention in Hypermobile Ehlers-Danlos Syndrome- the CANDI-hEDS study,) undertaken by a team led by Professor Qasim Aziz of the Wingate Institute of Gastroenterology at Queen Mary University, London has completed during the year. Output from the study has been published in two peer-reviewed joumals. Professor Aziz's work has been strongly supported by our members, many of whom have participated in the research. We expect the project lo present its results in the 2024-2025 financial year. We promote research studies to our members through our weekly e-news and dedicated webpages. We are proud to be able to contribute to the growth of the eviden base for this misunderstood condition through the mobilisation of our members. As resources permit, we will grow this area and look forward to having enough evidence to influence transfomiational systems change in due course. Fundraising and infrastructure Our income and expenditure position We ended the year with income of £380,301 and operating costs of £428,906. Income growth from trusts and Gift Aid went some way to offset a decrease in funds raised from community fundraising and events. We had decided before the pandemic that we should reduce our reliance on member-generated income by strengthening our appeal to grant makers and developing contacts with companies. The impact of the pandemic aGcelerated the process. We are grateful to the following for their support= Despite the very challenging financial climate for all charities, it has been a positive year of fundraising for The Ehlers-Danlos Support UK. There has been some fabulous (and imaginative!) fundraising taking place- everything from Ride London and coffeelcake sales to head shaves and a 25-hour musicathon. These are some of the highlights.. Dazzle Walk: Dazzle Walk was back for the fourth year running and saw 63 Dazzle Walks taking place, with fundraisers donning their razzliest. dazzliest zebra attire to raise money for EDS UK. Collectively our wonderful team raised an amazing £23,875. New fundraising pack In December we launched a new fundraising pack, which has reiVed hugely positive feedback from our fundraisers. We were delighted to complete this project as it's a great resource for helping us give our fundraisers the best possible support. Dedication wall During the year we launched an online dedication wall for people to remember those who have passed away and were affected by EDS or HSD during their lifetime. We are privileged that supporters have been sharing their precious memories and cherished photographs with us in this space. Legacies We are grateful to those who choose to leave a gifl to The Ehlers-Danlos Support UK in their Will. Gifts given in Wills are incredibly special and help us to confront misunderstanding and challenge inequalities around EDS and HSD.
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Trusts, foundalions and corporate support We are delighted to have received support from numerous trusts, foundations and companies this year. Special thanks to Green People. National Lottery Awards for All England, Awards for All Northern Ireland and The Sandhu Charitable Foundation for their continued support of our WOTk. We have received some lovely feedback from fundraisers about the support they've received from us, which is so welcome: "Thank you so much for your email. I genuinely feel a liiue excitement when I hear from you - thank you for your support." "Thank you so so much for all of your support and continuously checking in on me, it means a lot.. "l Gouldn't have dorpe it without YOUI Your support and encouragement, the fundraising paGks, the t-shirts, wristbands, flags, everything. Worth the world. Thank you so so so much.- A huge thank you to everyone who has raised money. made a donation and supported our work this year. We could not do what we do without you! How we fundraise We are reliant on voluntary donations to fund our work. We are registered with the Fundraising Regulator and are open about how we raise our funds. We adhere to the Code of Fundraising Practice and are Gommitted to Ihe Fundraising Promise. This part of our report complies with the good practice recommendations for smaller charities as set out in the Charities Act 2016. We seek to minimise the risk of breaches of fundraising compliance through recruiting experienced fundraising staff and by keeping our knowledge up-to-date through attending relevant webinars, background reading and training. We will proactively engage with the Fundraising Regulator and other bodies as needed to ensure that any cOnmS raised are addressed as a priority. We have partnerships with a number of organisations. including some commercial participator agreements. Our fundraising policy and ethical framework covers our approach to working with commercial partners. We are supported in our applications to Trusts and Foundations by carefully selected consultants with whom we have formal agreemenls. We have safeguards in place with our partners to ensure that we do nol compromise our independence in any way. We also ask people to give to us through our regular appeals, giving in menK)ry or by leaving a gift in their Will. We Irain and support our staff to identify and protect people in vulnerable circumstances in accordance with our policies on safeguarding and fundraising and ethical framework. All our direct marketing communications contain Glear instructions of how a supporler can easily opt oul of receiving any furlher communication should Ihey wish lo. Our framework also covers our approach to accepting and refusing donations. Our website outlines our complaints process clearly. During the year under review we debated at length the need for an office. Little used of late, we decided to dispense with one. We will bid farewell to Borehamwood early in the next financial year. We have also decided to outsource our shop. This will help us to focus on ils producl offer and improve the efficiency wilh which we meet orders.
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Financial review The Statement of Financial Activities on page 9 shows net movements in funds for the year of (£48,257) 2023: (£113,361 }, which results in a decrease in total funds at the balance sheet date to £233,60812023'. £281,865). Principal funding sources EDS UK raises its funds through fundraising activities. grants and donations, members. subscriptions and through the sale of branded goods through its online shop. Reserves policy It is the policy of the charity that unrestricted funds not designated for a specific use should be maintained at a level equivalent to a minimum of six months, operating expenditure. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity s current aclivilies while consideration is given lo ways in which additional funds may be raised or the operating costs reduced. The trustees have also agreed that the level of reserves may drop below six months, operating expenditure for a defined length of time. Recourse to this flexibility was made during the year under review. Structure, governance and management The Ehlers-Danlos Support UK {EDS UK) is a charity and a company limited by guarantee. The governing documents are the company's memorandum. and articles of association. There are quartedy meetings of the trustees to agree all matters relating to EDS UK. its broad strategy, and areas of activity- These include= Annual income and expenditure budgets The allocation of its resources The employmenl of professionals and support staff Risk management policies and performance. A Medical Advisory Panel covering the breadth of specialties in contact with EDS provides the trustees with an expert sounding board and ensures that advice and support is in line with current practice.
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Our trustees The trustees are able to appoint honorary officers and have done so in respect of a Chair (Stephen Stacey), Deputy Chairs {Adrian Steel and Charlotte Williams), and a Treasurer (Jason Pearce). The trustees, who are also the directors for the purpose of company law and who served during the period, were: Trustee Date of first appointment Most recent appointment l end of current tem ' 202212025 202212025 Resigned August 2023 202212025 202112024 Sarita Aujla Ellie Cannell Frances Gawthrop 13 June 2020 19 February 2022 1 June 2014 Anne Lavery Leah Mansfield 19 February 2022 1 June 2014 Laure Nas de Tourris 15 June 2022 202212025 Jason Pearce 28April 2018 19 February 2022 22 April 2017 28 July 2018 7 March 2020 202312024 202212025 202312024 202312024 202312026 Alison Roux Stephen Stacey Adrian Steel Charlotte Williams A trustee will serve not more than three years from the date of appointment and be eligible for approval by the AGM of a second consecutive term of three years, on the expiry of which they may be approved by the AGM exptIOnallY for a final tem of three years. Dr Kay Julier resigned as Managing Director on 31 June 2023. She had worked unremittingly for our community and her impact on it and on the charity was significant and enduring. She left with the best wishes of the board and team members. In her stead the trustees have appointed a Chief Executive, Susan Booth, who leads the work of the senior management team. The team is made up of Guy Hodgson (Head of Digital and IT). Nikki Casey (Senior Communities Manager). and Laura Kyriacou (Senior Fundraising Manager). None of the trustees has any beneficial interest in the company. Al of the trustees are members of the company and guarantee to contribute £1 in the event of a winding up. EDS UK maintains working relationships with other charities and umbrella organisations that share common purpose with the charity. These collaborations include Annabelle's Challenge. POTS UK, EDS Society and HMSA. None of these relationships is a related party in temis of the SORP. The trustees are satisfied that systems are in pla to mitigate exposure to the major risks to which the charity could be exposed. Recruitment, induction, and training of trustees New trustees are recruited by personal approach or recommendation by a current trustee, response lo the advertisements we place, and through the use of recruitment companies specialising in the not-for-profit sector. Candidate trustees are invited to attend a trustee meeting as an active observer before appointment. New Irustees are given copies of the tnjst deed and a guide to the policies and procedures adopted by the charity. They are invited to participate in an induction process designed by the Chief Executive and encouraged to access the Charity Commission's online guidance so that they can better understand their role as a trustee, in particular as to the scope of their responsibilities under the Charities Act. Patron and Ambassadors We are proud to have Ellie Taylor as our Patron and Cherylee Houston and Jacob Chandler as our Ambassadors.
THE EHLERS-DANLOS SUPPORT UK TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 The Trustees, report was approved by the Board of Trustees. Stephen Stacey Trustee Dated: .......2-541-l-la034
THE EHLERS-DANLOS SUPPORT UK INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF THE EHLERS-DANLOS SUPPORT UK I report to the charity Trustees on my examination of the financial statements of The Ehlers-Danlos Support UK for the year ended 31 March 2024. Responsibilities and basis of report As the Trustees of The Ehlers-Danlos Support UK (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities and Truslee Investment (Scotland) Acl 2005 {the 2005 Act), the Charities Accounts (Scotland) Regulations 2006 (as amended), the Charities Act 2011 and the Companies Act 2006 (the 2006 Act). You are satisfied that the financial statements of the are not required by charity or company law to be audited and have Ghosen instead to have an independent examination. Having satisfied myself that the financial statements of the are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination. I report in respect of my examination of the charity's financial statements carried out under section 44 (1 } ( c) of the 2005 Act and section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed the requirements of Regulation 11 of the Charities Accounts (Scotlandl Regulations 2006 {as amended) and all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. Independent examinerfs statement Since The Ehlers-Danlos Support UK'S gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. It is required by company law to prepare its accounts on an accruals basis and since it is registered as a charity in Scolland your examiner must be a member of a body listed in Regulation 11 {2) of the Charities Accounts (Scotland} Regulations 2006 las amended). I confim that I am qualified to undertake the examination because l am a member of Association of Chartered Certified Accountants, which is one of the listed bodies. I have completed my examination. I confimi that no matters have come to my attention in connecti{ with the examination giving me cause to believe that in any material respect: accounting records were not kept in respect of the as required by section 386 of the 2006 Act and Regulation 4 of the 2006 Accounts Regulations- or the financial statements do not accord with those records- or the financial statements do not comply with the accounting requirements of Regulation 8 of the Charities Accounts {Scotland) Regulations 2006 (as amended) and do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination- or the financial statements have not been prepared in accordance with the methods and principles of the Slatement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 1021.
THE EHLERS-DANLOS SUPPORT UK INDEPENDENT EXAMINER'S REPORT (CONTINUED) TO THE TRUSTEES OF THE EHLERS-DANLOS SUPPORT UK I have no concems and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached. Adam Shelley (FCCA) Sobell Rhodes LLP The Kinetic Centre Theobald Street Elstree Borehamwood Hertrordshire WD6 4PJ United Kingdom Dated: ......25.1.l.lJ.2Q.a4. 10-
THE EHLERS-DANLOS SUPPORT UK STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2024 Unreslricted Restricted funds funds 2024 2024 Total Unrestricted Restricled funds funds 2023 2023 Total 2024 2023 Notes Income from: Donations and legacies Charitable activities Other trading activities Investments 141.109 124.904 35.303 4.265 74.720 215.829 124.904 35.303 4.265 215,895 77.960 47.075 1.161 81,628 297,523 77,960 47,075 1.161 Total income 305.581 74.720 380.301 342.091 81,628 423.719 Expenditure on: Charitable activities 359,521 69,037 428,558 413,080 124,000 537,080 Total expenditure 359.521 69,037 428,558 413.080 124,000 537.080 Net incomel(expenditure) and movement in funds (53.940) 5.683 (48.257) (70.989) (42,372) (113.361) Reconciliation of funds: Fund balances at 1 April 2023 141,695 140,170 281,865 212,684 182,542 395,226 Fund balances at 31 March 2024 87.755 145.853 233.608 141,695 140,170 281,865 The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities. The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006. 11
THE EHLERS-DANLOS SUPPORT UK BALANCE SHEET AS AT31 MARCH 2024 2024 2023 Notes Fixed assets Tangible assets 1,275 3,856 Current assets Debtors Cash at bank and in hand 10 239 244.004 796 287,886 244.243 288,682 Creditors: amounts falling due within one year 11 (11.910) (10,673) Net current assets 232.333 278,009 Total assets less current liabilities 233.608 281.865 The funds of the Restricted income funds Unrestricted funds 12 145.853 87.755 140.170 141.695 233.608 281.865 The company is entiued to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 31 March 2024. The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements. The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476. These financial statements have been prepared in accordan with the provisions applicable to companies subject lo the small companies regime. 2511112024 The financial statements were approved by the Trustees on ..........:.............. Jason Pearce Trustee Company registration number 08924646 (England and Wales) 12-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 Accounting policies Charity information The Ehlers-Danlos Support UK is a charity and private company limited by guarantee incorporated in England and Wales. The registered office is Inlemational House. 45-55 Commercial Street, London. E1 6BD. 1.1 Accounting convention The financial stalements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practi applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 1021 (effective 1 January 2015) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). They also comply with the Companies Act 2006 and Charities Act 2011. Basis of preparation The Ehlers-Danlos Support UK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes. Exemption from preparing a cash flow statement The charity opted to early adopt Bulletin 1 published on 2 February 2016 and have therefore not included a cash flow statement in these financial ststements. 1.2 Going concern At the time of approving the financial statements. the Trustees have a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing the financial statements. 1.3 Charitable funds Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable objeGlives. Restricted funds are subject to specific conditions by donors or grantors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements. 1.4 Income All income is recognised once the charity has entitlement to the income. it is probable that the income will be received and the amount of the income receivable can be measured reliably. Donations and legacies Donations are recognised when the charity has been notified in writing of both the amount and setuement date. In the event that a donation is subject to conditions that require a level of performan by the charily before the charity is entitled to the funds, the income is deferred and not recognised until either those conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charity and it is probable that these conditions will be fulfilled in the reporting period. Grants receivable Grants are recognised when the charity has an entitlement to the fvnds and any conditions linked to the grants have been met. Where performan conditions are attached to the grant and are yet to be met, the income is recognised as a liability and included on the balan sheet as deferred income to be released. 13-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Accounting policies {Continued) 1.5 Expenditure All expendilure is recognised On there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with ntral staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset's use. Other support costs are allocated based on the spread of staff costs. Charitable activities Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activiiies and those costs of an indirect nature necessary to support them. Support costs Support costs include central functions and have been allocated to activity Cost categories on a LÉsis consistent with the use of resources, for example, allocating propety costs by floor areas, or per capits, staff costs by the time spent and other costs by their usage. 1.6 Tangible fixed assets Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impaimient losses. 1.7 Impairment of fixed assets At each reporting end date, the reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the exient of the impaiment loss (if any). 1.8 Cash and cash equivalents Cash and cash equivalents include cash in hand. deposits held at call with banks, other short-term liquid investments with original maturities of three months or less. and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities. 1.9 Financial instruments Basic financial assets Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaclion costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amoriised. Basic financial liabilities Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised. 1.10 Taxation The charity is Gonsidered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gains reiVed within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes. 14-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Accounting policies {Continued) 1.11 Foreign exchange Transactions in foreign currencies are recorded at the rale of exchange at the date of the transaction. Monetary assets and liabilities denominated in foreign currencies at the balance sheet date are reported at the rates of exchange prevailing at that date. Donations and legacies Unrestricted Restricted funds funds 2024 2024 Total Unrestricted funds 2023 Restricted funds 2023 Total 2024 2023 Donations Grants 125,709 15.400 31,320 43,400 157,029 58,800 178.595 25.300 43,982 37,646 222,577 62.946 141,109 74,720 215,829 215,895 81,628 297,523 Fundraising Fundraising Fundraising Income Income 2024 2023 Charitable activities 124,904 77.960 Income from investments Unrestricted Unrestricted funds funds 2024 2023 Inlerest receivable 4,265 1.161 15-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Charitable activities 2024 2023 Restricted funds- charitable activities Unrestricted funds- charitable activities 69,036 296,446 124,000 358,120 365,482 482,120 Share of support costs (see note 6) Share of governance costs (see note 61 39,253 23,823 38,685 16,275 428,558 537.080 Analysis by fund Unrestricted funds Restricted funds 359,521 69,037 413,080 124,000 428,558 537,080 Support costs Support costs Govemance costs 2024 Support Governance costs costs 2023 Staff costs Depreciation IT costs Rent Telephone Subscriptions 1.304 2.581 9.276 19.296 4,670 2,126 1,304 2,581 9.276 19,296 4,670 2,126 1,753 4,321 7.980 19.327 3,590 1,713 1,753 4,321 7,980 19,327 3,590 1,713 Examiners fees Bookkeeping Legal and professional 8,985 13,752 8,985 13,752 4.200 10,506 4,200 10,506 1.086 1.086 1.569 1,569 39.253 23.823 63,076 38.685 16.275 54,960 Trustees None of the Trustees (or any persons connected with them) reiVed any remuneration or benefits from the charity during the year. Taxation The charity is exempt from taxation on its activities because all its income is applied for charitable purposes. 16-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 Tangible fixed assets Plant and Fixtures and equipment fittings Computers Total Cost At 1 April 2023 3.624 1,988 17,212 22,824 At 31 March 2024 3,624 1.988 17,212 22.824 Depreciation and impairnient At 1 April 2023 Depreciation charged in the year 3,624 1,988 13,356 2,581 18,968 2,581 At 31 March 2024 3,624 1.988 15,937 21,549 Carrying amount At 31 March 2024 1,275 1.275 At 31 March 2023 3,856 3,856 10 Debtors 2024 2023 Amounts falling due within one year: Trade debtors Other debtors 68 171 625 171 239 796 11 Creditors: amounts falling due within one year 2024 2023 Notes Bank overdrafts Trade creditors Accruals and deferred income 420 9.338 915 7,110 4.800 11,910 10,673 17-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 12 Restricted funds Movement in funds In¢omlng Re$our¢¢$ re$our¢es expended Movement in funds In¢omlng R¢$our¢es Balance at resour¢¢$ expended 31 March 2024 Balan¢e at 1 April 2022 Balan¢e at 1 April 2023 The National Lottery Community Fund - Northem Ireland The National Lottery Community Fund {Expanding Communities} Other restricted Peter Harrison Foundation Disa's Fund, The Talent Fund 9,950 (1,734} 8,216 29.172 135.770 (26,684) (79.716) 2.488 137.682 12,488} (64.815} 137.637 81.628 64.770 12,600 {12,600) 5,000 (5,000) 182.542 81.628 (124,000) 140.170 74.720 (69,037) 145.853 The charity has disclosed separately restricted funds as required by the funders. 18-
THE EHLERS-DANLOS SUPPORT UK NOTES TO THE FINANCIAL STATEMENTS {CONTINUED) FOR THE YEAR ENDED 31 MARCH 2024 13 Unrestricled funds These are unrestricted funds which are material to the charity's activities made up as follows: Movement in funds Incoming Resources resources oxpgnded Movement in funds Incoming Resources Balance at resources èxpandod 31 March 2024 Balance at 1 April 2022 Balance at 1 April 2023 Unrestricted fund 212,684 342,091 (413.080) 141,695 305,581 (359,521) 87,755 212,684 342,091 (413,080) 141,695 305,581 (359,521) 87,755 14 Related party transactions There were no disclosable related party transactions during the year (2023 - none}. 19-