Charity registration number 1157027 (England and Wales)
Charity registration number SC046712 (Scotland)
Company registration number 08924646 (England and Vvales)
THE EHLERS-DANLOS SUPPORT UK
ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2024

THE EHLERS-DANLOS SUPPORT UK
LEGAL AND ADMINISTRATIVE INFORMATION
Trustees
Sarita Aujla
Ellie Cannell
Anne Lavery
Leah Mansfield
Laure Nas de Tou￿lS
Jason Pear
Alison Roux
Stephen Stacey
Adrian Steel
Charlotte Williams
Charity number (England and Wales) 1157027
Charity number (Scotland)
SC046712
Company number
08924646
Registered office
Intemational House
45-55 Commercial Street
London
E16BD
Independent examiner
Sobell Rhodes LLP
The Kinetic Centre
Theobald Street
Elstree
Borehamwood
Hertfordshire
Uniled Kingdom
WD6 4PJ

THE EHLERS-DANLOS SUPPORT UK
CONTENTS
Page
Trustees, report
Independent examineffs report
9-10
Statement of financial activities
11
Balance sheet
12
Notes to the financial statements
13-19

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT)
FOR THE YEAR ENDED 31 MARCH 2024
The trustees present their report and accounts for the period ended 31 March 2024.
The financial statements have been prepared in accordan￿ with the accounting policies set out in note 1 to the
financial statements and comply with the charity's goveming document, the Companies Act 2006, the Charities
and Trustee Investment (Scotland) Act 2005. the Charities Accounts (Scotlandl Regulations 2006 (as amended}
and 'AGGounting and Reporting by Charities.. Statement of Recommended Practice applicable to Gharities
preparing their accounts in accordance wilh the Financial Reporting Standard applicable in the UK and Republic
of Ireland (FRS 102), (effective 1 January 2019).
Objectives and activities
Purpose
The charity's purpose as set out in its objects is as follows..
The objects are primarily for the relief of persons suffering from Ehlers-Danlos syndrome through the provision of
support, education and practical advice" and to advan￿ medical research into the cause, cure, prevention or
relief of the syndrome and that useful results of such research are placed in the public domain.
The main activities of the charity pursuant to this purpose include-
a. Providing infomiation and support to people with. affected by. or involved with the diagnosis and
treatment of EDS.
b. Linking members with each otherfor mutual support and exchange of ideas.
c. Publishing booklets. leaflets, and online toolkits.
d. Organising conferences.
Producing a bi-annual magazine (Fragile Links) available on payment of a small subscription, digitally,
and in hard copy.
f. Maintaining a website and social media presence to promote public awareness and provide information
and support.
g. Running social events to bring our community together for both adults and children.
h. Facilitating local support meetings through trained area coordinators.
Running a free-phone infomiation and advice line for all members of our community.
j. Supporting research projects that will benefit those living with EDS.
The trustees have paid due regard to guidan￿ issued by the Charity Commission in deciding what activities the
charity should undertake.
A new Theory of Change, vision, mission and three year strategy
In October 2023 we undertook a strategic review and developed a new theory of change, vision, misgon and
three year strategy.
Our vision
Across the UK, people with EDS or HSD will be connected. heard, supported and have equitable access to care.
Mission
We are the voice of the EDSIHSD community in the UK.
We bring togelher people with EDS and HSD in the UK to equitably ac￿SS diagnosis, treatment and care.
We do this through=
Awareness- We advocate for and empower our community to drive change. We raise their voices,
and work with the NHS across the UK in pursuit of services accessible by all.
Support- We provide a platfomi to support and connect our community. We deliver information and
advice on living wilh EDSIHSD.
Knowledge - We build knowledge through infomiation, training and enabling research. We confront
misunderstanding and challenge inequality-

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Strategic pillars
Based on our theory of change there are three main areas of focus..
Advocacy and access
Community and connections
Infomiation and knowledge.
Underpinning all three pillars to achieve our vision are our fundraising and infrastructure strategies.
A summary of our activities is provided under each of these headings.
Advocacy and Access
Our Enough is Enough campaign gamered over 33.000 signatures across all four nations of the UK and
significantly increased awareness of EDS amongst key decision makers in our public policy audience.
How did we achieve this?
We created Iwo digital applications to be the forefront of our campaign. The first allowed members of our
community easily to email their local MP and to share their experiences of using the NHS, asking their MP to
support our campaign. The second allowed them to create a personalised graphic highlighting their challenges
of living with EDS or HSD and promoting the wider campaign. By using the petitions committees where
available in the four nations. we were able to ask the committee members to discuss the issues raised with the
relevant Ministers.
We delivered a 28,700 signature petition lo Downing Street in November 2023 after holding a briefing for
parliamentarians in Portcullis House. From the briefing our host Andrew Selous MP undertook to apply for a
Westminster Hall debate on the subject of the provision of services for EDSIHSD.
In Wales we secured a date for an exhibition event in the Senedd. Our petition was discussed several times. In
March we received a response from the Minister for Health in Wales offering a meeting with the National Clinical
Direclor for Musculoskeletal Care to discuss primary care pathways.
In Scotland we were also fortunate to be given a date for an exhibition in Holyrood. The petition was discussed
several limes and is still live into 2024-25.
In Northern Ireland we worked on arranging a Dazzle Walk to hand in the petition to Stormont. Conversations
have been held with the Rare Disease Partnership and APPG to make further progress.
In February we attended an NHS MSK workshop in London to represent the EDS UK community. The workshop
was hosted by the National Clinical Director for MSK and was called Designing the Future of MSK Care.
In just a year we have made a significant impact by raising the voices of our community to the highest levels of
power and decision making. In our strategic planning prO￿sS we identified the need for systems charue and our
role within that. Almost all the respondents to our 2024 members. survey {99 % I said that campaigning and
lobbying to raise issues with Ihe govemment and the NHS were important. very important or essential to them.
Community and Connections
We run support groups to facilitste peer-to-peer support in a safe space. These groups have attracted over
3,000 attendances in the year under review. We have over 85 volunteers (90 in 2022-231 either with EDS
themselves or caring for someone with EDS. Our volunleers run over 100 support groups (over 100 in
2022-23}, which are often the only occasions for people to leam how to manage their symptoms themselves
and share treatment options and ideas about how to live independent and fulfilling lives.
We have seven special interest groups: for 1>25-year-olds, teens, parents, elders, LGBTQIA+ men, and
family and friends. Over 52.000 people (49.000 in 2022-231 engage with each other on the main Facebook
page and share suggestions for pain management, discuss symptoms, celebrate fundraising achievements,
and support each other. In addition, over 10,000 people (8.000 in 2022-231 connect regularly with each other in
24 closed Fa￿book groups.
71 /0 of members responding to our 2024 members survey said that our support groups both virtual and face-to-
face were important or extremely important to them. 81 % of our members said the information. advi￿ and
support provided by us positively affected the isolation they felt and their engagement in the community.

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Our Changemakers or young people's project started taking shape in the year with regular drop-ins for the
young people on our online working group to get together and create content for their new website. The project
continues and the quote below from one of the young people involved illustrates the impact it has had on them
personally.
Being a part of this pmject has really boosted my confidence and really consolidated an understanding of
things I didn't know l understood and has also helped me to challenge some of my own mindsets. It has really
helped me grow personally so muGh. That'll really help me in lrfe and I'll never forget this projeGt for that
reason."
We run a membership scheme for our community to provide safeguarding for our online spaces and SUFPOrt
meetings. There is a free membership option to ensure inclusivity and a paid option for people to choose to
receive our Fragile Links magazine. We had an average of around 12,000 registered members during the year.
We engage wilh a community of over 90.000 across our social media platforms. We also have an e-news
subscriber list of 17,000 where we communicate with them weekly. The number of website users continues to
grow= over 641,000 unique users during the year (compared to over 500,000 in 2022-23). The website
continues to be a very valuable resour￿ for members and people looking for infomiation on EDSIHSD with
100 % of members responding to our 2024 survey saying they felt it was essential or important to them.
Information and Knowledge
OurAdviceline
In the UK there are still no official care pathways within the NHS for EDSIHSD. This continues to create
confusion amongst both patients and heallhcare professionals. Not surprisingly the positive impact of our
telephone and email Adviceline is huge. There are no other UK-specific advi￿ and infomiation hubs on EDSI
HSD and so we are proud to provide a unique resource.
Our 2024 members, survey showed just how important our helpline services are. 800/0 of members said that the
advice and support they received from our helpline was imporlant, very important, or essential to them. In the
period under review, we took 962 calls {in 2022-23. 1.171 calls) with an average call time of 19 minutes (in
2022-23, 20 minutes) and responded to 1.550 emails {in 2022-23. 1.756 emails).. staff changes in the year may
have adversely affected the number of calls logged).
"Thank you for your email & getting back to me so quickly. I will definitely email the ICB in my area & see if I can
get the geneticist test expedited. I'm trying to work out how to word it all but I will get there. I'm just so tired with it
all at the moment. Thank goodness for Ehlers-Danlos Support UK."
Following our strategic review and work on our Theory of Change. we began to deliver a more targeted
approach to maximise the impact for our community. We rebranded the Helpline to an Adviceline in January
2024 and focused our communications around the targeted purpose of the service with reduced phone opening
hours. We provided a new FAQ webpage and robust signposting for crisis support services. All of this,
alongside better handling of conversations to avoid escalations to safeguarding incidents, meant that between
January and March we saw a steep dedine in safeguarding calls to the servi￿. This enables us to take more
focused advice calls.
"Wow! Great support thank you. Once again I would like to point out how nice it is to have someone There. for
us. Prompt, polite and understanding."
We continued to provide a unique GP toolkit to enable diagnosis and management within primary care. ￿h1t s 11
toolkit.ehlers-danlos.or
l and a unique schools toolkit to support young people in education. ￿htt sll
theschooltoolkit.or

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Research
We are focused on supporting research contributing to the development of clinical guidelines for the diagnosis.
treatment, and management of any type of EDS or HSD in the UK and to expanding EDS research capacity in
the UK. Details of current and recent research facilitated by EDS UK may be found at htt
danlos.o
Iresearchl
A major research project ('Comprehensive Assessment of Nutrition and Dietary Intervention in Hypermobile
Ehlers-Danlos Syndrome- the CANDI-hEDS study,) undertaken by a team led by Professor Qasim Aziz of the
Wingate Institute of Gastroenterology at Queen Mary University, London has completed during the year. Output
from the study has been published in two peer-reviewed joumals. Professor Aziz's work has been strongly
supported by our members, many of whom have participated in the research. We expect the project lo present
its results in the 2024-2025 financial year.
We promote research studies to our members through our weekly e-news and dedicated webpages. We are
proud to be able to contribute to the growth of the eviden￿ base for this misunderstood condition through the
mobilisation of our members. As resources permit, we will grow this area and look forward to having enough
evidence to influence transfomiational systems change in due course.
Fundraising and infrastructure
Our income and expenditure position
We ended the year with income of £380,301 and operating costs of £428,906. Income growth from trusts and Gift
Aid went some way to offset a decrease in funds raised from community fundraising and events.
We had decided before the pandemic that we should reduce our reliance on member-generated income by
strengthening our appeal to grant makers and developing contacts with companies. The impact of the pandemic
aGcelerated the process. We are grateful to the following for their support=
Despite the very challenging financial climate for all charities, it has been a positive year of fundraising for The
Ehlers-Danlos Support UK. There has been some fabulous (and imaginative!) fundraising taking place-
everything from Ride London and coffeelcake sales to head shaves and a 25-hour musicathon. These are some
of the highlights..
Dazzle Walk:
Dazzle Walk was back for the fourth year running and saw 63 Dazzle Walks taking place, with fundraisers
donning their razzliest. dazzliest zebra attire to raise money for EDS UK. Collectively our wonderful team raised
an amazing £23,875.
New fundraising pack
In December we launched a new fundraising pack, which has re￿iVed hugely positive feedback from our
fundraisers. We were delighted to complete this project as it's a great resource for helping us give our
fundraisers the best possible support.
Dedication wall
During the year we launched an online dedication wall for people to remember those who have passed away and
were affected by EDS or HSD during their lifetime. We are privileged that supporters have been sharing their
precious memories and cherished photographs with us in this space.
Legacies
We are grateful to those who choose to leave a gifl to The Ehlers-Danlos Support UK in their Will. Gifts given in
Wills are incredibly special and help us to confront misunderstanding and challenge inequalities around EDS and
HSD.

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Trusts, foundalions and corporate support
We are delighted to have received support from numerous trusts, foundations and companies this year. Special
thanks to Green People. National Lottery Awards for All England, Awards for All Northern Ireland and The
Sandhu Charitable Foundation for their continued support of our WOTk.
We have received some lovely feedback from fundraisers about the support they've received from us, which is so
welcome:
"Thank you so much for your email. I genuinely feel a liiue excitement when I hear from you - thank you for your
support."
"Thank you so so much for all of your support and continuously checking in on me, it means a lot..
"l Gouldn't have dorpe it without YOUI Your support and encouragement, the fundraising paGks, the t-shirts,
wristbands, flags, everything. Worth the world. Thank you so so so much.-
A huge thank you to everyone who has raised money. made a donation and supported our work this year. We
could not do what we do without you!
How we fundraise
We are reliant on voluntary donations to fund our work. We are registered with the Fundraising Regulator and
are open about how we raise our funds. We adhere to the Code of Fundraising Practice and are Gommitted to
Ihe Fundraising Promise.
This part of our report complies with the good practice recommendations for smaller charities as set out in the
Charities Act 2016. We seek to minimise the risk of breaches of fundraising compliance through recruiting
experienced fundraising staff and by keeping our knowledge up-to-date through attending relevant webinars,
background reading and training. We will proactively engage with the Fundraising Regulator and other bodies
as needed to ensure that any cOn￿mS raised are addressed as a priority.
We have partnerships with a number of organisations. including some commercial participator agreements. Our
fundraising policy and ethical framework covers our approach to working with commercial partners. We are
supported in our applications to Trusts and Foundations by carefully selected consultants with whom we have
formal agreemenls. We have safeguards in place with our partners to ensure that we do nol compromise our
independence in any way. We also ask people to give to us through our regular appeals, giving in menK)ry or by
leaving a gift in their Will.
We Irain and support our staff to identify and protect people in vulnerable circumstances in accordance with our
policies on safeguarding and fundraising and ethical framework. All our direct marketing communications contain
Glear instructions of how a supporler can easily opt oul of receiving any furlher communication should Ihey wish
lo. Our framework also covers our approach to accepting and refusing donations. Our website outlines our
complaints process clearly.
During the year under review we debated at length the need for an office. Little used of late, we decided to
dispense with one. We will bid farewell to Borehamwood early in the next financial year. We have also decided to
outsource our shop. This will help us to focus on ils producl offer and improve the efficiency wilh which we meet
orders.

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Financial review
The Statement of Financial Activities on page 9 shows net movements in funds for the year of (£48,257) 2023:
(£113,361 }, which results in a decrease in total funds at the balance sheet date to £233,60812023'. £281,865).
Principal funding sources
EDS UK raises its funds through fundraising activities. grants and donations, members.
subscriptions and through the sale of branded goods through its online shop.
Reserves policy
It is the policy of the charity that unrestricted funds not designated for a specific use should be maintained at a
level equivalent to a minimum of six months, operating expenditure. The trustees consider that reserves at this
level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity s
current aclivilies while consideration is given lo ways in which additional funds may be raised or the operating
costs reduced. The trustees have also agreed that the level of reserves may drop below six months, operating
expenditure for a defined length of time. Recourse to this flexibility was made during the year under review.
Structure, governance and management
The Ehlers-Danlos Support UK {EDS UK) is a charity and a company limited by guarantee. The governing
documents are the company's memorandum. and articles of association. There are quartedy meetings of the
trustees to agree all matters relating to EDS UK. its broad strategy, and areas of activity- These include=
Annual income and expenditure budgets
The allocation of its resources
The employmenl of professionals and support staff
Risk management policies and performance.
A Medical Advisory Panel covering the breadth of specialties in contact with EDS provides the trustees with an
expert sounding board and ensures that advice and support is in line with current practice.

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Our trustees
The trustees are able to appoint honorary officers and have done so in respect of a Chair (Stephen Stacey),
Deputy Chairs {Adrian Steel and Charlotte Williams), and a Treasurer (Jason Pearce). The trustees, who are
also the directors for the purpose of company law and who served during the period, were:
Trustee
Date of first appointment
Most recent appointment l end of
current tem '
202212025
202212025
Resigned
August 2023
202212025
202112024
Sarita Aujla
Ellie Cannell
Frances Gawthrop
13 June 2020
19 February 2022
1 June 2014
Anne Lavery
Leah Mansfield
19 February 2022
1 June 2014
Laure Nas de Tourris
15 June 2022
202212025
Jason Pearce
28April 2018
19 February 2022
22 April 2017
28 July 2018
7 March 2020
202312024
202212025
202312024
202312024
202312026
Alison Roux
Stephen Stacey
Adrian Steel
Charlotte Williams
A trustee will serve not more than three years from the date of appointment and be eligible for approval by the
AGM of a second consecutive term of three years, on the expiry of which they may be approved by the AGM
ex￿ptIOnallY for a final tem of three years.
Dr Kay Julier resigned as Managing Director on 31 June 2023. She had worked unremittingly for our
community and her impact on it and on the charity was significant and enduring. She left with the best wishes
of the board and team members. In her stead the trustees have appointed a Chief Executive, Susan Booth,
who leads the work of the senior management team. The team is made up of Guy Hodgson (Head of Digital
and IT). Nikki Casey (Senior Communities Manager). and Laura Kyriacou (Senior Fundraising Manager).
None of the trustees has any beneficial interest in the company. Al of the trustees are members of the company
and guarantee to contribute £1 in the event of a winding up.
EDS UK maintains working relationships with other charities and umbrella organisations that share common
purpose with the charity. These collaborations include Annabelle's Challenge. POTS UK, EDS Society and
HMSA. None of these relationships is a related party in temis of the SORP.
The trustees are satisfied that systems are in pla￿ to mitigate exposure to the major risks to which the charity
could be exposed.
Recruitment, induction, and training of trustees
New trustees are recruited by personal approach or recommendation by a current trustee, response lo the
advertisements we place, and through the use of recruitment companies specialising in the not-for-profit sector.
Candidate trustees are invited to attend a trustee meeting as an active observer before appointment. New
Irustees are given copies of the tnjst deed and a guide to the policies and procedures adopted by the charity.
They are invited to participate in an induction process designed by the Chief Executive and encouraged to
access the Charity Commission's online guidance so that they can better understand their role as a trustee, in
particular as to the scope of their responsibilities under the Charities Act.
Patron and Ambassadors
We are proud to have Ellie Taylor as our Patron and Cherylee Houston and Jacob Chandler as our
Ambassadors.

THE EHLERS-DANLOS SUPPORT UK
TRUSTEES. REPORT (INCLUDING DIRECTORS. REPORT) (CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
The Trustees, report was approved by the Board of Trustees.
Stephen Stacey
Trustee
Dated: .......2-541-l-la034

THE EHLERS-DANLOS SUPPORT UK
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF THE EHLERS-DANLOS SUPPORT UK
I report to the charity Trustees on my examination of the financial statements of The Ehlers-Danlos Support UK
for the year ended 31 March 2024.
Responsibilities and basis of report
As the Trustees of The Ehlers-Danlos Support UK (and also its directors for the purposes of company law) you
are responsible for the preparation of the financial statements in accordance with the requirements of the
Charities and Truslee Investment (Scotland) Acl 2005 {the 2005 Act), the Charities Accounts (Scotland)
Regulations 2006 (as amended), the Charities Act 2011 and the Companies Act 2006 (the 2006 Act). You are
satisfied that the financial statements of the are not required by charity or company law to be audited and have
Ghosen instead to have an independent examination.
Having satisfied myself that the financial statements of the are not required to be audited under Part 16 of the
2006 Act and are eligible for independent examination. I report in respect of my examination of the charity's
financial statements carried out under section 44 (1 } ( c) of the 2005 Act and section 145 of the Charities Act
2011 (the 2011 Act). In carrying out my examination I have followed the requirements of Regulation 11 of the
Charities Accounts (Scotlandl Regulations 2006 {as amended) and all the applicable Directions given by the
Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examinerfs statement
Since The Ehlers-Danlos Support UK'S gross income exceeded £250,000 your examiner must be a member of
a body listed in section 145 of the 2011 Act. It is required by company law to prepare its accounts on an
accruals basis and since it is registered as a charity in Scolland your examiner must be a member of a body
listed in Regulation 11 {2) of the Charities Accounts (Scotland} Regulations 2006 las amended). I confim that I
am qualified to undertake the examination because l am a member of Association of Chartered Certified
Accountants, which is one of the listed bodies.
I have completed my examination. I confimi that no matters have come to my attention in connecti{￿ with the
examination giving me cause to believe that in any material respect:
accounting records were not kept in respect of the as required by section 386 of the 2006 Act and
Regulation 4 of the 2006 Accounts Regulations- or
the financial statements do not accord with those records- or
the financial statements do not comply with the accounting requirements of Regulation 8 of the Charities
Accounts {Scotland) Regulations 2006 (as amended) and do not comply with the accounting requirements
of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view
which is not a matter considered as part of an independent examination- or
the financial statements have not been prepared in accordance with the methods and principles of the
Slatement of Recommended Practice for accounting and reporting by charities applicable to charities
preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and
Republic of Ireland (FRS 1021.

THE EHLERS-DANLOS SUPPORT UK
INDEPENDENT EXAMINER'S REPORT (CONTINUED)
TO THE TRUSTEES OF THE EHLERS-DANLOS SUPPORT UK
I have no concems and have come across no other matters in connection with the examination to which
attention should be drawn in this report in order to enable a proper understanding of the financial statements to
be reached.
Adam Shelley (FCCA)
Sobell Rhodes LLP
The Kinetic Centre
Theobald Street
Elstree
Borehamwood
Hertrordshire
WD6 4PJ
United Kingdom
Dated: ......25.1.l.lJ.2Q.a4.
10-

THE EHLERS-DANLOS SUPPORT UK
STATEMENT OF FINANCIAL ACTIVITIES
INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 31 MARCH 2024
Unreslricted Restricted
funds
funds
2024
2024
Total Unrestricted Restricled
funds
funds
2023
2023
Total
2024
2023
Notes
Income from:
Donations and legacies
Charitable activities
Other trading activities
Investments
141.109
124.904
35.303
4.265
74.720
215.829
124.904
35.303
4.265
215,895
77.960
47.075
1.161
81,628
297,523
77,960
47,075
1.161
Total income
305.581
74.720
380.301
342.091
81,628
423.719
Expenditure on:
Charitable activities
359,521
69,037
428,558
413,080
124,000
537,080
Total expenditure
359.521
69,037
428,558
413.080
124,000
537.080
Net incomel(expenditure) and
movement in funds
(53.940)
5.683
(48.257)
(70.989)
(42,372) (113.361)
Reconciliation of funds:
Fund balances at 1 April 2023
141,695
140,170
281,865
212,684
182,542
395,226
Fund balances at 31 March
2024
87.755
145.853
233.608
141,695
140,170
281,865
The statement of financial activities includes all gains and losses recognised in the year.
All income and expenditure derive from continuing activities.
The statement of financial activities also complies with the requirements for an income and expenditure account
under the Companies Act 2006.
11

THE EHLERS-DANLOS SUPPORT UK
BALANCE SHEET
AS AT31 MARCH 2024
2024
2023
Notes
Fixed assets
Tangible assets
1,275
3,856
Current assets
Debtors
Cash at bank and in hand
10
239
244.004
796
287,886
244.243
288,682
Creditors: amounts falling due within
one year
11
(11.910)
(10,673)
Net current assets
232.333
278,009
Total assets less current liabilities
233.608
281.865
The funds of the
Restricted income funds
Unrestricted funds
12
145.853
87.755
140.170
141.695
233.608
281.865
The company is entiued to the exemption from the audit requirement contained in section 477 of the Companies Act
2006, for the year ended 31 March 2024.
The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006
with respect to accounting records and the preparation of financial statements.
The members have not required the company to obtain an audit of its financial statements for the year in question in
accordance with section 476.
These financial statements have been prepared in accordan￿ with the provisions applicable to companies subject
lo the small companies regime.
2511112024
The financial statements were approved by the Trustees on ..........:..............
Jason Pearce
Trustee
Company registration number 08924646 (England and Wales)
12-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2024
Accounting policies
Charity information
The Ehlers-Danlos Support UK is a charity and private company limited by guarantee incorporated in England
and Wales. The registered office is Inlemational House. 45-55 Commercial Street, London. E1 6BD.
1.1 Accounting convention
The financial stalements have been prepared in accordance with Accounting and Reporting by Charities:
Statement of Recommended Practi￿ applicable to charities preparing their accounts in accordance with the
Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 1021 (effective 1 January
2015) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of
Ireland (FRS 102). They also comply with the Companies Act 2006 and Charities Act 2011.
Basis of preparation
The Ehlers-Danlos Support UK meets the definition of a public benefit entity under FRS 102. Assets and
liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant
accounting policy notes.
Exemption from preparing a cash flow statement
The charity opted to early adopt Bulletin 1 published on 2 February 2016 and have therefore not included a
cash flow statement in these financial ststements.
1.2 Going concern
At the time of approving the financial statements. the Trustees have a reasonable expectation that the Charity
has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees
continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the Trustees in furtherance of their charitable
objeGlives.
Restricted funds are subject to specific conditions by donors or grantors as to how they may be used. The
purposes and uses of the restricted funds are set out in the notes to the financial statements.
1.4 Income
All income is recognised once the charity has entitlement to the income. it is probable that the income will be
received and the amount of the income receivable can be measured reliably.
Donations and legacies
Donations are recognised when the charity has been notified in writing of both the amount and setuement
date. In the event that a donation is subject to conditions that require a level of performan￿ by the charily
before the charity is entitled to the funds, the income is deferred and not recognised until either those
conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charity and it is
probable that these conditions will be fulfilled in the reporting period.
Grants receivable
Grants are recognised when the charity has an entitlement to the fvnds and any conditions linked to the
grants have been met. Where performan￿ conditions are attached to the grant and are yet to be met, the
income is recognised as a liability and included on the balan￿ sheet as deferred income to be released.
13-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Accounting policies
{Continued)
1.5 Expenditure
All expendilure is recognised On￿ there is a legal or constructive obligation to that expenditure, it is probable
settlement is required and the amount can be measured reliably. All costs are allocated to the applicable
expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to
particular headings they have been allocated on a basis consistent with the use of resources, with ￿ntral staff
costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset's
use. Other support costs are allocated based on the spread of staff costs.
Charitable activities
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and
services for its beneficiaries. It includes both costs that can be allocated directly to such activiiies and those
costs of an indirect nature necessary to support them.
Support costs
Support costs include central functions and have been allocated to activity Cost categories on a LÉsis
consistent with the use of resources, for example, allocating propety costs by floor areas, or per capits, staff
costs by the time spent and other costs by their usage.
1.6 Tangible fixed assets
Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of
depreciation and any impaimient losses.
1.7 Impairment of fixed assets
At each reporting end date, the reviews the carrying amounts of its tangible assets to determine whether there
is any indication that those assets have suffered an impairment loss. If any such indication exists, the
recoverable amount of the asset is estimated in order to determine the exient of the impaiment loss (if any).
1.8 Cash and cash equivalents
Cash and cash equivalents include cash in hand. deposits held at call with banks, other short-term liquid
investments with original maturities of three months or less. and bank overdrafts. Bank overdrafts are shown
within borrowings in current liabilities.
1.9 Financial instruments
Basic financial assets
Basic financial assets, which include debtors and cash and bank balances, are initially measured at
transaction price including transaclion costs and are subsequently carried at amortised cost using the effective
interest method unless the arrangement constitutes a financing transaction, where the transaction is
measured at the present value of the future receipts discounted at a market rate of interest. Financial assets
classified as receivable within one year are not amoriised.
Basic financial liabilities
Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless
the arrangement constitutes a financing transaction, where the debt instrument is measured at the present
value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable
within one year are not amortised.
1.10 Taxation
The charity is Gonsidered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and
therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the
charity is potentially exempt from taxation in respect of income or capital gains re￿iVed within categories
covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable
Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.
14-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Accounting policies
{Continued)
1.11 Foreign exchange
Transactions in foreign currencies are recorded at the rale of exchange at the date of the transaction.
Monetary assets and liabilities denominated in foreign currencies at the balance sheet date are reported at the
rates of exchange prevailing at that date.
Donations and legacies
Unrestricted Restricted
funds
funds
2024
2024
Total Unrestricted
funds
2023
Restricted
funds
2023
Total
2024
2023
Donations
Grants
125,709
15.400
31,320
43,400
157,029
58,800
178.595
25.300
43,982
37,646
222,577
62.946
141,109
74,720
215,829
215,895
81,628
297,523
Fundraising
Fundraising Fundraising
Income
Income
2024
2023
Charitable activities
124,904
77.960
Income from investments
Unrestricted Unrestricted
funds
funds
2024
2023
Inlerest receivable
4,265
1.161
15-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Charitable activities
2024
2023
Restricted funds- charitable activities
Unrestricted funds- charitable activities
69,036
296,446
124,000
358,120
365,482
482,120
Share of support costs (see note 6)
Share of governance costs (see note 61
39,253
23,823
38,685
16,275
428,558
537.080
Analysis by fund
Unrestricted funds
Restricted funds
359,521
69,037
413,080
124,000
428,558
537,080
Support costs
Support costs
Govemance costs
2024
Support Governance
costs
costs
2023
Staff costs
Depreciation
IT costs
Rent
Telephone
Subscriptions
1.304
2.581
9.276
19.296
4,670
2,126
1,304
2,581
9.276
19,296
4,670
2,126
1,753
4,321
7.980
19.327
3,590
1,713
1,753
4,321
7,980
19,327
3,590
1,713
Examiners fees
Bookkeeping
Legal and
professional
8,985
13,752
8,985
13,752
4.200
10,506
4,200
10,506
1.086
1.086
1.569
1,569
39.253
23.823
63,076
38.685
16.275
54,960
Trustees
None of the Trustees (or any persons connected with them) re￿iVed any remuneration or benefits from the
charity during the year.
Taxation
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
16-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
Tangible fixed assets
Plant and Fixtures and
equipment
fittings
Computers
Total
Cost
At 1 April 2023
3.624
1,988
17,212
22,824
At 31 March 2024
3,624
1.988
17,212
22.824
Depreciation and impairnient
At 1 April 2023
Depreciation charged in the year
3,624
1,988
13,356
2,581
18,968
2,581
At 31 March 2024
3,624
1.988
15,937
21,549
Carrying amount
At 31 March 2024
1,275
1.275
At 31 March 2023
3,856
3,856
10 Debtors
2024
2023
Amounts falling due within one year:
Trade debtors
Other debtors
68
171
625
171
239
796
11
Creditors: amounts falling due within one year
2024
2023
Notes
Bank overdrafts
Trade creditors
Accruals and deferred income
420
9.338
915
7,110
4.800
11,910
10,673
17-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
12 Restricted funds
Movement in funds
In¢omlng
Re$our¢¢$
re$our¢es
expended
Movement in funds
In¢omlng
R¢$our¢es Balance at
resour¢¢$
expended 31 March
2024
Balan¢e at
1 April 2022
Balan¢e at
1 April 2023
The National
Lottery
Community
Fund - Northem
Ireland
The National
Lottery
Community
Fund
{Expanding
Communities}
Other restricted
Peter Harrison
Foundation
Disa's Fund, The
Talent Fund
9,950
(1,734}
8,216
29.172
135.770
(26,684)
(79.716)
2.488
137.682
12,488}
(64.815} 137.637
81.628
64.770
12,600
{12,600)
5,000
(5,000)
182.542
81.628
(124,000)
140.170
74.720
(69,037) 145.853
The charity has disclosed separately restricted funds as required by the funders.
18-

THE EHLERS-DANLOS SUPPORT UK
NOTES TO THE FINANCIAL STATEMENTS {CONTINUED)
FOR THE YEAR ENDED 31 MARCH 2024
13 Unrestricled funds
These are unrestricted funds which are material to the charity's activities made up as follows:
Movement in funds
Incoming
Resources
resources
oxpgnded
Movement in funds
Incoming
Resources
Balance at
resources
èxpandod 31 March 2024
Balance at
1 April 2022
Balance at
1 April 2023
Unrestricted
fund
212,684
342,091
(413.080)
141,695
305,581
(359,521)
87,755
212,684
342,091
(413,080)
141,695
305,581
(359,521)
87,755
14 Related party transactions
There were no disclosable related party transactions during the year (2023 - none}.
19-