# THE EHLERS-DANLOS SUPPORT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1157027
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** May 13, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1157027


## Contact

- **Address:** International House, 45-55 Commercial Street, London
- **Postcode:** E1 6BD
- **Phone:** 02087365604
- **Email:** info@ehlers-danlos.org
- **Website:** www.ehlers-danlos.org



## Activities

**Objects:** FOR THE RELIEF OF PERSONS SUFFERING FROM EHLERS-DANLOS SYNDROME AND TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OF THE SYNDROME.

**Activities:** Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £434770 | £392489 | — | — |
| March 31, 2024 | £380301 | £428558 | — | — |
| March 31, 2023 | £423719 | £537080 | — | — |
| March 31, 2022 | £483707 | £496377 | — | — |
| March 31, 2021 | £406887 | £405498 | — | — |



## Trustees

- **Charlotte Emily Williams** (Chair) — appointed March 7, 2020
- Alison Jane Roux — appointed Feb. 19, 2022
- Anne Dominique Myra Lavery — appointed Feb. 19, 2022
- Dr Jill Harrison — appointed Sept. 14, 2024
- Helen Ball — appointed Nov. 23, 2024
- Kathryn Jayne Caldwell — appointed Nov. 23, 2024
- Laure Francoise Marie Nas De Tourris — appointed June 15, 2022
- Natasha Larkin — appointed Nov. 22, 2025
- Sarah Bullock — appointed Nov. 22, 2025
- Timothy Peter de Winter — appointed July 25, 2024
- Yanina  Graciela Aubrey-Gimenez — appointed May 11, 2024