OpenCharities

Osteogenesis Imperfecta Foundation Network

Oifn

Country
England & Wales
Charity number
1190022
Status
Registered
Registered
June 19, 2020
Legal form
CIO

Address

Address
74 Ladies Grove
ST. ALBANS
Hertfordshire
AL3 5TW

Contact

Activities

The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.

Objects: 1)the Relief Of Poverty For The Public Benefit In Any Part Of The World Through The Provision Of Advice, Support, Grants, Equipment, Treatments And Care To Those That Suffer From Osteogenesis Imperfecta; And2)to Preserve And Protect Good Health For The Public Benefit By Promoting, Maintaining, Improving And Advancing Research Into The Nature, Causes, Diagnosis, Prevention, Treatment And Cure Of Osteogenesis And To Educate The Public In Any Part Of The World Concerning The Nature, Causes And Effect Of Osteogenesis Imperfecta By Promoting, Raising Awareness And Providing Information About IT To Both The Medical Community And General Population.

Classification

How
Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
What
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, The Prevention Or Relief Of Poverty
Who
Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies

Areas of operation

Country
Botswana, Ghana, Kenya, Nigeria
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2025 £8,000 £8,000
Dec. 31, 2024 £3,000 £3,000
Dec. 31, 2023 £12,000 £11,000
Dec. 31, 2022 £1,047 £688
Dec. 31, 2021 £243 £115

Trustees

Name Appointed
Tarela Aghanti (Chair) March 18, 2019
Caroline Harrigan March 18, 2019
Louisiana Oluwabukunola Adeleke-Ewenla Feb. 18, 2026
Maureen Ebiere Whitehead March 18, 2019