Trustees’ Annual Report for the period
From January 2025 Period start date To December 2025 Period end date
Charity registration number: 1190022
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The relief of poverty for the public benefit in any part of the world through the provision of advice, support, equipment, treatment, and care to those that suffers from osteogenesis Imperfecta. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Educating the public and medical professionals on the conditions through seminars, conferences and raising awareness on brittle bone condition. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | **Yes, the trustees confirm this. ** |
Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers
Other
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The charity has held a major OI conference in the UK and in Nigeria, Wheelchair distribution in Nigeria covering over 4 different states and 9 local governments benefiting from the distribution, with over 300 mobility equipment supporting beneficiaries. Several educational events on Zoom, educating attendees about the brittle bone conditions, signs to watch for and where to get help if needed. Most women globally have benefited from these meetings. We have also carried out training on both brittle bone conditions and disability in general to individuals, church leadership on OI and disability inclusion in worship and public places. |
Additional information (optional) You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | |
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other |
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | We received donations from individuals and the church |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The policy is to hold 3 months' worth of expenditure as reserves |
| Amount of reserves held | Para 1.22 | 2.29 (balance from accounts at year end) |
| Reasons for holding zero reserves |
Para 1.22 | |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | - |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | Donation and fundraising |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | None |
| A description of the principal risks facing the charity |
Para 1.46 | _ |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Constitution |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed by trustees |
Additional information (optional)
You may choose to include further statements where relevant about:
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | |
| Relationship with any related parties |
Para 1.51 | |
| Other |
Reference and Administrative details
| Charity name | Osteogenesis Imperfecta Foundation Network |
|---|---|
| Other name the charity uses | OIFN |
| Registered charity number | 1190022 |
| Charity’s principal address | 74, Ladies Grove, St Albans, Herts, AL3 5TW. |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee(if any) |
|---|---|---|---|---|
| Tarela Aghanti | Chair | For the wholeyear | ||
| Blandine Davis | Treasurer | For the wholeyear | ||
| Caroline Harrigan | Sec | For the wholeyear | ||
| Maureen Whitehead |
Trustee | For the whole year | ||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year | |
|---|---|---|
| N/A | ||
Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
| Type of | Name | Address |
|---|---|---|
| adviser |
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
N/A
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Tarela Aghanti Full name(s) Tarela Aghanti Position (eg Secretary, Chair Chair, etc) Date 29/01/2025
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK |
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK |
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK |
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK |
CC16a | |
|---|---|---|---|---|---|
| For the period from |
01/01/2025 | To |
|||
| Section A Receipts and payments | |||||
| A1 Receipts | Unrestricted funds to the nearest £ 1,012 2,597 290 2,903 475 249 - - 7,526 - - - 7,526 275 122 279 4,430 35 1,290 1,094 - - 7,525 - - - 7,525 1 - 1 2 |
Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - |
Endowment funds to the nearest £ |
Total funds to the nearest £ 1,012 2,597 290 2,903 475 249 - - 7,526 - - - 7,526 275 122 279 4,430 35 1,290 1,094 - - 7,525 - - - 7,525 1 |
Last year to the nearest £ |
| GIFTS-INDIVIDUAL | 1,012 | - - - - - - - - - |
- | ||
| Conference Fes | 2,597 | - | |||
| Advertisements | 290 | - | |||
| Donations | 2,903 | - | |||
| Logistics | 475 | - | |||
| Aid Received | 249 | - | |||
| - | - | ||||
| - | - | ||||
| Sub total(Gross income for AR) |
7,526 |
- | |||
| A2 Asset and investment sales, (see table). |
|||||
| - | - - - |
||||
| - | - | ||||
| Sub total | - | - | |||
| Total receipts A3 Payments |
|||||
| - | - | ||||
Insurance |
275 | - - - - - - - - - - |
- | ||
| Telephone | 122 | - | |||
| Computer Supplies and Equipment | 279 | - | |||
| Trainingand Conferernce | 4,430 | - | |||
| Transport | 35 | - | |||
| Grants-Clients and others | 1,290 | - | |||
| Miscellaneous and bank fees | 1,094 | - | |||
| - | - | ||||
| - | - | ||||
| **Sub total ** | 7,525 | - | |||
| A4 Asset and investment purchases (see table) |
|||||
| , | - | - - - |
|||
| - | |||||
| **Sub total ** | - | - | |||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
|||||
| - | - | ||||
| 1 | - |
- | |||
| - | - - |
- 1 |
- | ||
| 1 | - | ||||
| 2 | - |
2 | - |
CCXX R1 accounts (SS)
29/01/2026
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Total cash funds (agree balances with receipts and payments account(s)) Details Details Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - Agreement Error OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name |
Endowment funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
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| Date of approval |
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CCXX R2 accounts (SS)
29/01/2026
2