## **Trustees’ Annual Report for the period** **From January 2025 Period start date To December 2025 Period end date** ## **Charity registration number: 1190022** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**The relief of poverty for the public**
**benefit in any part of the world through**
**the provision of advice, support,**
**equipment, treatment, and care to those**
**that suffers from osteogenesis**
**Imperfecta.**| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**Educating the public and medical**
**professionals on the conditions through**
**seminars, conferences and raising**
**awareness on brittle bone condition.**| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**Yes, the trustees confirm this. **| ## **Additional information (optional)** You may choose to include further statements where relevant about: SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**The charity has held a major OI**
**conference in the UK and in Nigeria,**
**Wheelchair distribution in Nigeria**
**covering over 4 different states and 9**
**local governments benefiting from the**
**distribution, with over 300 mobility**
**equipment supporting beneficiaries.**
**Several educational events on Zoom,**
**educating attendees about the brittle**
**bone conditions, signs to watch for and**
**where to get help if needed. Most**
**women globally have benefited from**
**these meetings.**
**We have also carried out training on**
**both brittle bone conditions and**
**disability in general to individuals,**
**church leadership on OI and disability**
**inclusion in worship and public places.**| ## **Additional information (optional)** You may choose to include further statements where relevant about: |||| |---|---|---| |Achievements against
objectives set|Para 1.41|| |Performance of fundraising
activities against objectives
set|Para 1.41|| |Investment performance
against objectives|Para 1.41|| |Other||| ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|**We received donations from individuals**
**and the church**| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**The policy is to hold 3 months' worth of**
**expenditure as reserves**| |Amount of reserves held|Para 1.22|**2.29 (balance from accounts at year end)**| |Reasons for holding zero
reserves|Para 1.22|| |Details of fund materially in
deficit|Para 1.24|**N/A**| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**-**| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**Donation and fundraising**| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|**None**| |A description of the principal
risks facing the charity|Para 1.46|**_**| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|**Constitution**| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**CIO**| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Appointed by trustees**| ## **Additional information (optional)** You may choose to include further statements where relevant about: |||| |---|---|---| |Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|| |Relationship with any related
parties|Para 1.51|| |Other||| ## **Reference and Administrative details** |Charity name|Osteogenesis Imperfecta Foundation Network| |---|---| |Other name the charity uses|OIFN| |Registered charity number|1190022| |Charity’s principal address|74, Ladies Grove, St Albans, Herts, AL3 5TW.| ||| ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee(if any)**| |---|---|---|---|---| ||Tarela Aghanti|Chair|For the wholeyear|| ||Blandine Davis|Treasurer|For the wholeyear|| ||Caroline Harrigan|Sec|For the wholeyear|| ||Maureen
Whitehead|Trustee|For the whole year|| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity |**Trustee name**|**Dates acted if not for whole year**|| |---|---|---| |**N/A**||| |||| |||| |||| |||| |||| ## **Funds held as custodian trustees on behalf of others** Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Type of**|**Name**|**Address**| |---|---|---| |**adviser**||| **Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details **N/A** ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** Tarela Aghanti **Full name(s)** Tarela Aghanti **Position (eg Secretary,** Chair **Chair, etc) Date** 29/01/2025 ||
**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK**|
**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK**|
**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK**|
**OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK**|**CC16a**| |---|---|---|---|---|---| ||**For the period**
**from**|01/01/2025|**To**
||| ||||||| |**Section A Receipts and payments**|||||| |**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**
**1,012**
**2,597**
**290**
**2,903**
**475**
**249**
**-**
**-**

**7,526**
**-**
**-**
**-**
**7,526**
**275**
**122**
**279**
**4,430**
**35**
**1,290**
**1,094**
**-**
**-**
**7,525**
**-**
**-**
**-**
**7,525**
**1**
**-**
**1**
**2**|**Restricted**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowment**
**funds**
**to the nearest £**|**Total funds**
**to the nearest £**
**1,012**
**2,597**
**290**
**2,903**
**475**
**249**
**-**
**-**
**7,526**
**-**
**-**
**-**
**7,526**
**275**
**122**
**279**
**4,430**
**35**
**1,290**
**1,094**
**-**
**-**
**7,525**
**-**
**-**
**-**
**7,525**
**1**|**Last year**
**to the nearest £**| |GIFTS-INDIVIDUAL|**1,012**||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**||**-**| |Conference Fes|**2,597**||||**-**| |Advertisements|**290**||||**-**| |Donations|**2,903**||||**-**| |Logistics|**475**||||**-**| |Aid Received|**249**||||**-**| ||**-**||||**-**| ||**-**||||**-**| |**_Sub total_**_(Gross income for_
_AR)_|
**7,526**||||**-**| ||||||| |**A2 Asset and investment sales,**
**(see table).**|||||| ||**-**||**-**
**-**
**-**||| ||**-**||||**-**| |**_Sub total_**|**-**||||**-**| |**_Total receipts_**
**A3 Payments**|||||| ||||**-**||**-**| ||||||| |
Insurance|**275**||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**||**-**| |Telephone|**122**||||**-**| |Computer Supplies and Equipment|**279**||||**-**| |Trainingand Conferernce|**4,430**||||**-**| |Transport|**35**||||**-**| |Grants-Clients and others|**1,290**||||**-**| |Miscellaneous and bank fees|**1,094**||||**-**| ||**-**||||**-**| ||**-**||||**-**| |**_Sub total_ **|**7,525**||||**-**| ||||||| |**A4 Asset and investment**
**purchases (see table)**|||||| |**,**|**-**||**-**
**-**
**-**||| ||**-**||||| |**_Sub total_ **|**-**||||**-**| |**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**|||||| ||||**-**||**-**| ||||||| ||**1**||
**-**||**-**| ||**-**||**-**
**-**|**-**
**1**|**-**| ||**1**||||**-**| ||**2**||
**-**|**2**|**-**| CCXX R1 accounts (SS) 29/01/2026 1 ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B5 Liabilities**
**B3 Investment assets**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B1 Cash funds**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**
**Details**
**Details**
Signature|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
Agreement Error
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name|**Endowment**
**funds**
**to nearest £**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**Endowment**
**funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| ||||| ||||| CCXX R2 accounts (SS) 29/01/2026 2