Trustees’ Annual Report for the period
From March 2021 Period start date To March 2022 Period end date
Charity registration number: 1190022
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | The relief of poverty for the public benefit in any part of the world through the provision of advice, support, grant, equipment, treatment, and care to those that suffers from osteogenesis Imperfecta. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Educating the public, medical professionals on the conditions through seminars, conferences and raise awareness on brittle bone condition. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | Yes, the trustees confirm this. |
Additional information (optional)
You may choose to include further statements where relevant about:
SORP reference Policy on grant making Para 1.38 Policy on social investment Para 1.38 including program related investment Contribution made by Para 1.38 volunteers Other
Achievements and Performance
SORP reference
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The charity has held several educative events on zoom, educating attendees about the brittle bone conditions, signs to watch for and where to get help if needed. Many women globally have benefited from these meetings. We have also carried out training on both brittle bone condition and disability in generally to individuals, church leadership in worship and public places. |
|
|---|---|---|---|
Additional information (optional) You may choose to include further statements where relevant about: Achievements against Para 1.41 objectives set Performance of fundraising Para 1.41 activities against objectives set Investment performance Para 1.41 against objectives Other
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | We have received funds from the public and at this moment time we have in our account £128 |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The policy is to hold 3 months’ worth of expenditure as reserves |
| Amount of reserves held | Para 1.22 | £128 |
| Reasons for holding zero reserves |
Para 1.22 | Covid pandemic |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | Covid pandemic |
| Additional information (optional) You may choose to include further statements |
Additional information (optional) You may choose to include further statements |
where relevant about: |
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | Facebook fundraising |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Constitution |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed by trustees |
Additional information (optional) You may choose to include further statements where relevant about: Policies and procedures adopted for the induction and training of trustees The charity’s organisational Para 1.51 structure and any wider network with which the charity works Relationship with any related Para 1.51 parties Other
Reference and Administrative details
| Charity name | Osteogenesis Imperfecta Foundation Network |
|---|---|
| Other name the charity uses | OIFN |
| Registered charity number | 1190022 |
| Charity’s principal address | 74, Ladies Grove, St Albans, Herts, AL3 5TW |
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Tarela Aghanti | Chair | For the wholeyear | ||
| Blandine Davis | Treasurer | For the wholeyear | ||
| Caroline Harrigan | Sec | For the wholeyear | ||
| Maureen Whitehead |
Trustee | For the whole year | ||
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year | |
|---|---|---|
| N/A | ||
Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
Type of Name Address adviser
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
N/A
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Tarela Aghanti Full name(s) Tarela Aghanti Position (eg Secretary, Chair Chair, etc) Date 19/04/2022
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK ACCOUNT FOR THE PERIOD OF JANUARY 2021- MARCH 2022 DA DESCRIPTION AMOUNT £ Income 01-Jan-21 Balance brought forward 19-Apr~21 Deposit- Harpenden branch 17-Mar-22 Deposit - George St. Luton (3) 80.62 21.25 141.99 243.86 Total Income Expenses 14-Jan-21 Deb Zoom US 15-Feb-21 Deb Zoom US 15-Mar-21 Deb Zoom US 14-Apr-21 Deb Zoom US 14-May-21 Deb Zoom US 14-Jun-21 Deb Zoom US 12-Oct-21 Deb Zoom US 17-Mar-22 Deb Zoom US 14.39 14.39 14.39 14.39 14.39 14.39 14.39 14.39 115.12 128.74 Total Expenses Balance as at 17 March 2022