## **Trustees’ Annual Report for the period**
**From March 2021 Period start date To March 2022 Period end date**
**Charity registration number: 1190022**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**The relief of poverty for the public benefit**
**in any part of the world through the**
**provision of advice, support, grant,**
**equipment, treatment, and care to those**
**that suffers from osteogenesis**
**Imperfecta.**|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.|Para 1.17 and
1.19|**Educating the public, medical**
**professionals on the conditions through**
**seminars, conferences and raise**
**awareness on brittle bone condition.**|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**Yes, the trustees confirm this.**|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
SORP reference Policy on grant making Para 1.38 Policy on social investment Para 1.38 including program related investment Contribution made by Para 1.38 volunteers Other
## **Achievements and Performance**
SORP reference
||Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|The charity has held several educative
events on zoom, educating attendees about
the brittle bone conditions, signs to watch for
and where to get help if needed. Many
women globally have benefited from these
meetings.
We have also carried out training on both
brittle bone condition and disability in
generally to individuals, church leadership in
worship and public places.|
|---|---|---|---|
**Additional information (optional)** You may choose to include further statements where relevant about: Achievements against Para 1.41 objectives set Performance of fundraising Para 1.41 activities against objectives set Investment performance Para 1.41 against objectives Other
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|We have received funds from the public and
at this moment time we have in our account
£128|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|The policy is to hold 3 months’ worth of
expenditure as reserves|
|Amount of reserves held|Para 1.22|£128|
|Reasons for holding zero
reserves|Para 1.22|Covid pandemic|
|Details of fund materially in
deficit|Para 1.24|N/A|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|Covid pandemic|
|**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:|
|---|---|---|
|The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|Facebook fundraising|
|Investment policy and
objectives including any
social investment policy
adopted|Para 1.46||
|A description of the principal
risks facing the charity|Para 1.46||
|Other|||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|Constitution|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|CIO|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Appointed by trustees|
**Additional information (optional)** You may choose to include further statements where relevant about: Policies and procedures adopted for the induction and training of trustees The charity’s organisational Para 1.51 structure and any wider network with which the charity works Relationship with any related Para 1.51 parties Other
## **Reference and Administrative details**
|Charity name|Osteogenesis Imperfecta Foundation Network|
|---|---|
|Other name the charity uses|OIFN|
|Registered charity number|1190022|
|Charity’s principal address|74, Ladies Grove, St Albans, Herts, AL3 5TW|
|||
**Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Tarela Aghanti|Chair|For the wholeyear||
||Blandine Davis|Treasurer|For the wholeyear||
||Caroline Harrigan|Sec|For the wholeyear||
||Maureen
Whitehead|Trustee|For the whole year||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
– Corporate trustees names of the directors at the date the report was approved
**Director name**
Name of trustees holding title to property belonging to the charity
|**Trustee name**|**Dates acted if not for whole year**||
|---|---|---|
|**N/A**|||
||||
||||
||||
||||
||||
## **Funds held as custodian trustees on behalf of others**
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
**Type of Name Address adviser**
## **Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**N/A**
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** Tarela Aghanti **Full name(s)** Tarela Aghanti **Position (eg Secretary,** Chair **Chair, etc) Date** 19/04/2022
OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK ACCOUNT
FOR THE PERIOD OF JANUARY 2021- MARCH 2022
DA DESCRIPTION
AMOUNT £
Income
01-Jan-21 Balance brought forward
19-Apr~21 Deposit- Harpenden branch
17-Mar-22 Deposit - George St. Luton (3)
80.62
21.25
141.99
243.86
Total Income
Expenses
14-Jan-21 Deb Zoom US
15-Feb-21 Deb Zoom US
15-Mar-21 Deb Zoom US
14-Apr-21 Deb Zoom US
14-May-21 Deb Zoom US
14-Jun-21 Deb Zoom US
12-Oct-21 Deb Zoom US
17-Mar-22 Deb Zoom US
14.39
14.39
14.39
14.39
14.39
14.39
14.39
14.39
115.12
128.74
Total Expenses
Balance as at 17 March 2022