# OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1190022
- **Other names:** OIFN
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 19, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1190022


## Contact

- **Address:** 74 Ladies Grove, ST. ALBANS, Hertfordshire
- **Postcode:** AL3 5TW
- **Phone:** 07868 547673
- **Email:** oifnett@gmail.com
- **Website:** www.oifn.org



## Activities

**Objects:** 1)THE RELIEF OF POVERTY FOR THE PUBLIC BENEFIT IN ANY PART OF THE WORLD THROUGH THE PROVISION OF ADVICE, SUPPORT, GRANTS, EQUIPMENT, TREATMENTS AND CARE TO THOSE THAT SUFFER FROM OSTEOGENESIS IMPERFECTA; AND2)TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROMOTING, MAINTAINING, IMPROVING AND ADVANCING RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF OSTEOGENESIS AND TO EDUCATE THE PUBLIC IN ANY PART OF THE WORLD CONCERNING THE NATURE, CAUSES AND EFFECT OF OSTEOGENESIS IMPERFECTA BY PROMOTING, RAISING AWARENESS AND PROVIDING INFORMATION ABOUT IT TO BOTH THE MEDICAL COMMUNITY AND GENERAL POPULATION.

**Activities:** The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, The Prevention Or Relief Of Poverty
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies



## Geography

- Botswana
- Ghana
- Kenya
- Nigeria
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Tarela Aghanti** | Chair | March 18, 2019 |
| Caroline Harrigan |  | March 18, 2019 |
| Louisiana Oluwabukunola Adeleke-Ewenla |  | Feb. 18, 2026 |
| Maureen Ebiere Whitehead |  | March 18, 2019 |




