The Duchenne Family Support Group

Country: England & Wales
Charity number: 1128653
Status: Registered
Registered: March 18, 2009
Legal form: Charitable company
Area of benefit: Undefined. In Practice, National.

Address

Address: 78 YORK STREET
LONDON
W1H 1DP

Contact

Phone: 0800 121 4518
Email: [email protected]
Website: dfsg.org.uk

Activities

To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.

Objects: 1 To Preserve And Protect The Health Of And Relieve Persons Suffering From Duchenne Muscular Dystrophy And Their Families2 To Advance The Education Of The Medical Profession And The General Public In The Subject Of Duchenne Muscular Dystrophy And Its Implications For The Families Of Those Suffering From The Aforementioned Condition3 To Promote Research Into The Management Of Duchenne Muscular Dystrophy And To Publicise The Useful Results Thereof And To Support Organisations Promoting Charitable Research Into Duchenne Muscular Dystrophy

Classification

How: Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What: Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
Who: People With Disabilities, Other Defined Groups

Areas of operation

Country: Northern Ireland, Scotland
Region: Throughout England And Wales

Finances

Period end	Income	Expenditure
March 31, 2025	£51,124	£44,336
March 31, 2024	£52,701	£31,458
March 31, 2023	£54,965	£46,901
March 31, 2022	£54,653	£55,007
March 31, 2021	£36,296	£26,003

Trustees

Name	Appointed
Dr Stephen Henry Meech (Chair)
Amanda Elizabeth Revell	May 18, 2023
Catherine Virginia Parker	Dec. 30, 2022
Jacky Wilde	Feb. 9, 2023
Karen Ann Lightly	Aug. 8, 2022
Laura Elliott	Nov. 9, 2020
Sarah Wright	Jan. 4, 2022
Susan Berry	March 8, 2017

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