Charity Reglstration Number: 1128653 Company Registration Number: 06134522 THE DUCHENNE FAMILY SUPPORTGROUP IA COMPANY LIMITED BY GUARANTEE) REPORT OFTHE TRUSTEESAND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024
THE DUCHENNE FAMILY SUPPORT GROUP {A COMPANY UMITED BY GUARANTEEI CONTENTS Report of the Trustees Report of the independent examiner Statement of financila activities Balance Sheet Notes to the financlal statement 7-13
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARANTEEI REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2024 The trustees present their report together with the financial statements of the Charity for the year ended 31 March 2024. They are also prepared to meet the requirements for a directors, report and accovnt5 for Companies Act purposes. The accounts have been prepared in accordan with the accounting policie5 set out in the note5 tothe accounts and comply with the Charity's governing document. applicable law and the reouirements of the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021. Reference and Administrative Details Charity Number Company Number Registered Office 1128653 06134522 78 York Street, London, Wl IDP Directors and trustees The directors of the charitable company are its trustees forthe purpose of charSty law and throughout thls report are collectively referred to as trustees. Our current trustees are Stse Berry, Laura Elllott, Karen Llghtly, Stephen Meech, Amanda Revell, Kate Thomas, Jacky Wilde, and Sarah Wright. A third of the trustees (the longest serving) are required to retire by rotation each year at the Annual General Meeting but may seek re-election. This year. by rotation, Stephen Meech, Sarah Wright and Sue Berry were re. elected, together with Amanda Revell and Kate Thomas who were co-opted during the year. Chair.. Dr Stephen Meech CompanySecretary= MC Secretarie5 Limited Acting or Interim Treasurer- Mrs Christina Biggs Fvndrai5ing Officer: Mrs Sonia Richardson Independent examiner: Marcus Cridland BAIHonsl FCA, Scott Vevers Ltd 65 East Street, Bridport, Dorset, DT5 3LB. Bankers: Barclay5 Bank plc 90 Osborne Road, Southsea, Hants. P05 3LW Objectives, Activities, Achievements and Perfomian¢e The objertives of the charitable company are.. To provSde a posltbve national support neiwork of families affected by Duchenne Muscular Dystrophy. To enable families to come together to share idea5 and experien5 and to enjoy soci31 events. Raising funds is always high on our priority list and the year saw us undertake 5pon50red events iricludin8 the London Marathon. Additional financial support has again come from grantsfrom other charities. We a150 re1ve significant 5UPPOrt from our member families. Pa8e I
THE OUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARANTEEI REPORTOFTHETRUSTEES FOR THEYEAR ENDED 31 MARCH 20Z4 Services were maintained in the following areas- Helpline-. We operate a helpline to receive calls from families and profe55ion3ls. Our part time Development Officer dealt with the queries herself or passed them on to an appropriate person or organisation. News and information- The charity publishes a regular new51etter containing article5, Tnany from our family member5, sharing experiences and idea5. Feedback 15 also provided on research progress and other matters impacting on families of disabled children and adult5. We also have a website, a Facebook page and a Twitter account - all of which we use in addition to our newsletter to keep families up to date with news and events. Events.. Following the pandemic the charity has resumed providing social events ènd holidays where families can enjoy a relaxed atmosphere whilst sharing their experiences and ideas. Revlew of Public Benefit In settin8 out our objertives and planning our activities, the trustees have given careful consideration to the Charity Commission's general guldance on public benefSt. Future Plans We continualw strive to expand our services to meet the growing demand but we do so in a planned and financially prudent way, thus ensuring all projects stand on a sound financial footing individually and thus the charity move5 forward and grows but does so responsibly. Financial Review Each service we offer is carefully budgeted for and only run5 after being sanctioned by the trustees as viable. The surplus for the year was E21,24312023'. £8,064). Reserves at 31 March 2024 were £60,66912023: £39,426), which includes restricted reserves of £11,45512023: £4,205). Investment owers and oli Under the Memorandum and Article5 of A5SOC13tion, the charitable cornpany has the power to make any investment which the trustees see fit. ReseNes The state of the economy and resulting downturn in donations received also means sufficient reserves must be held to ensure services could continue in a financial downturn. Thetiustees carefully monitorthis area to ensure sufflcient reserves are in place. Our policy is to have a minimum of 3 months. running cost5 as a resetve figure. At present the free reserves, which amount to £49,214 are wtthin this target level. Structure, Governance and Management Governin Document The Duchenne Family Support Group is a registered charity Icharity number 112865313nd a company limited by guarantee Icompany number 061345221. The company was formed on 2 March 2007 and achieved registered charity status on 18 March 2009. The charitable company is governed by its Memorandum and Article5 of Association. ointment of trustee5 Trustees are appointed by the Members at the Annual General Meeting in accordance with the charitable company's Memorandum and Articles of Association. No external bodies have the right to appoint trustees. Page 2
THE DUCHENNE FAMILY SUPPORTGROUP IACOMPANY UMITED BY GUARANTEEI REPORT OF THE TRUSTEES FOR THE YEAR ENOEO 31 MARCH 2024 Trustee induction and trainin New trustee directors are Introduced to the operations o* the organisatlon and are given Informatlon on the responsibiltties of being a trustee and director a5 well a5 copie5 of the charitable company's Memorandum and Articles of As50clatlon. Training 15 provided to trustee directors when required. anisation The board of trustees. or the Executive Committee, of between 3 and 15 members who meet regularly. administer the charitable company. Ma or Risks The trustees actlvely review the major risks which the charity f3ces on a regular basts and believe that malntaining the free reserves stated, combined with the annual review of the controls over keyfinancial system5 carried out on an annual basi5 will provide sufficient resources in the event of adverse condition5. The Trustees have also examined other operational and business risks which they face and confirm that they have established systems to mitigate the significant risks. Trustee< responsibilities in relation to the Fbnancial Statements The trustees are required under Charity law to prepare financial statements for each flnancial year whlch gNe a true and fair view of the state of affairs of the Charity and of the financial activities of the Charity for that perlod. In preparing those financial statements, the trustee5 are required to.. selert suitable accounling policies and then apply them consistently,. observe the methods and Principles in the Charities 50RP; make judgements and estimates that are reasonable and prudent,. state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the finantial statements,. and prepare the financial ststements on the going concern basis unless it is inappropriate to presume that the company wlll contlnue In business. The trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the Charity and to enable them to ensure that the financial statements comply with applicable laws and regulations. They are also responsible for ensuring thal the Charlty malntalns an adequate system of internal contro5 designed to provide reasonable assurance that assets are safeguarded against loss or unauthorised use and to prevent and detect fraud and other irregularities. In preparing this report, the trustees have taken advanta8e of the Small companies exemptions provided by section 415A of the Companies Act 2006. Signed on behalf of the board of trustees by.. Dr S Meech- Chair Date.. Page 3
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARANTEEI INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2024 I repK)rt to the charity trustees on my examination of the accounts of the company for the year ended 31 March 2024, which are set out on pages 5 to 13. Responsibilities and basis of report A5 the charity trustees of the company land also its directors for the purposes of company lawl you are responsible forthe preparation of the accounts in accordance with the requirements of the Companies Act 2006 I'the 2006 Act'l. Having satlsfied rnyself that the account5 of the company are not required to be audited under Part 16 of the 2006 Art and are eligible for independent examination. I report in respect of my examination of your company's accounts as carried out under section 145 of the Charities Act 2011 I'the 2011 Act'l. In carrying out my examlnatlon I have followed the Directions given bythe Charity Commission under section 145151 Ibl of the 2011 Art. Independent examinerfs statement I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect.. Accounting records were not kept in respect of the tompany as requlred by sectlon 386 of the 2006 Act,. or The 3ccounts do not accord with those records,. or The accounts do not Comply with the accountlng requirements of sectiot) 396 of the 2006 Act other than any requirement that the accounts give a'true and fair vie¥M which 15 not a matter considered as part of an independent examination.. or The account5 have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities lapplicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republbc of Ireland IFR5 10211. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a propel understanding of the accounts to be reached. Marcus Cridland B.A.IHon51 F.C.A. Scott Vevers Ltd. Chartered Accountants and Registered Auditors 65 East Street Bridport Dorset DT63LB Pa8e 4
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARAfrifEEI STATEMENT OF FINANCIAL ACTIVITIES (INCLUDING INCOME AND EXPENDITURE) FOR THE YEAR ENDED 31 MARCH 2024 Unrestricted Restricted funds funds Notes 2024 2023 Income Income and endowrnents from: Donations and legacies 10,264 16,000 26,264 13,533 Char¢table activities 21,255 5,182 26,437 41,432 Total Income 31,519 21,182 52,701 54,965 Expenditure on: Raising funds 2,313 2,313 777 Charitable activitie5 15,097 14,048 29,145 46,124 Total expendlture 17.410 14,048 31.458 46,901 Net income lexpenditure) for the year 14,109 7,134 21,243 8,064 Transfers between funds 12 11161 116 Net movement In funds 13,993 7,250 21,243 8,064 Reconclllation of funds: Total funds brought forward 12 35,221 4,205 39,426 31,362 Total fund5 carried forward 12 49,214 11,455 60,669 39,426 All amounts derive from continuing activities. All galns and losse5 recognised in the period are included in the statement of financial activities. The note5 on pages 7 to 13 form part of these financial statements Page S
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BYGUARANTEEI BALANCESHEET AT 31 MARCH 2024 Notes 2024 2023 Current assets Debtor5 Cash at bank and in hand io 7,740 57,539 40,494 65,279 40,494 Creditors: Amounts falllng due within one year li 14,6101 11,0681 Net current assets 60,669 39.426 Total assets less Current Ilabllltle5 60,669 39,426 The funds ol the charity: Restrirted income ftjnds 12 11,455 4,205 Unrestricted income funds.. 12 49,214 35,221 Total charity fund5 60,669 39,426 The company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 March 2024. The members have not required the company to obtain an audit of its financi31 statements for the year ended 31 March 2024 in accordance with Section 476 of the Companies Act 2006. The direttors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts.. These financial ststements have been prepared in accordance with the provisions applicable to companses subject to the small companies, regime. The financial statements were approved by the board of Trustees and signed on its behalf by.. Date: Drs stee The note5 on pages 7 to 13 form part of these financial statements Page 6
THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEEI NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 General information The Duchenne Family Support Group is a company, limited by 8uarantee, incorporated in England and Wale5 under the Companies Act 2006 and Charitie5 Act 2011. The addre55 of the registered office is provided in reference and administrative details on paBe l of the Trustee5 Report together with the detai15 of the charitvs operations. Accounting poliaes The principal accounting policies adopted. judgements and key sources of estimation uncertainty in the preparation of the financial Statements are a5 follow5- 2.1 Statement of compliance and basis of preparation The charity constitutes a public benefit entity as defined by FRS 102. The financial statements are prepared under the historical c05t convention and in accordance with Accounting and Reporting by Charities= Statement of Recommended Practice applicable to charities preparing their account5 in accordance wtth the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021- (Charities SORP IFRS 10211. the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021 and the Companies Act 2006. The accounts include the results of the charity's operations which are described in the Trustees, Report, all of which are continuing. 2.2 A¢¢ountlng convention The flnancial statements have been prepared on a going concern basis as the tru5tee5 believe that no material uncertainties exist. The trustees have considered the level of funds held and the expected level of income and expenditure for 12 months from authorising these financial statement5. The budgeted income and expenditure is sufficient with the level of reserves for the charity to be able to continue as a golng toncern. 2.3 Income Voluntary income including donations, gifts and legacies and grants that provide core funding or are of 3 general nature are recognised where there is entitlement. certainty of receipt and the amount can be quantified with reasonable accuracy. Such income is only deferred when.. The donor specifies that the grant or donation must only be used in future accounting periods,. or The donor has imposed condition5 which must be met before the charity has unconditional entitlement. Investment income is recognlsed on a receivable basis. 2.4 Volunteer5 and donated servlce5 and facilitFe5 The value of services provided by volunteers is not incorporated into these financial statements. Further detai15 of the contribution made by volunteers can be found in the trustees, annual report. 2.5 Expenditure Expenditure 15 recognised when a liability is incurred. Costs of raising funds are those costs incurred in attracting voluntary income, and those incurred in trading activities that raise funds. Charitable activities include expenditure associated with the production of the newsletter and other information, provision of a helpline and volunteer network services and provision of events and holiday5, together with support C05t5 relating to these activities. Governance costs include those incurred in the governance of the charity and it5 a55ets and are primarily associated with constitutional and statutory requirement5. Support costs include central functions and have been allocated to activity cost categories on a basis conslstent with the use of resources. Page 7
THE DUCHENNE FAMILY SUPPORT GROUP {A COMPANY LIMITED BY GUARANTEEI NOTES TO THE FINANaAL STATEMENTS FOR THE YEAR ENDED 31 MARCH Z024 2.6 Funds structure The charity ha5 a number of restricted income funds to account for situations where a donor requires that a donation must be spent on a particular purpose or where funds have been raised for a specific purpose. All other fund5 are unrestricted income fund5. 2.7 Pensions The charity operates a defined contribtjtion pension scheme. Contributions are charged to the Statement of Financial Activities as they become payable in accordance with the iules of the scheme. 2.8 Financial instruments Clas5ificotion Financial assets and financial liabilities are recogni5ed when the charity becomes a party to the contractual provisions of the instrument. Financial liabilities and equity instruments are classified according to the substance of the contractual arrangement entered into. An equity instrument is any contract that evidences a residual interest in the assets of the charity after deducting all of it5 liabilitie5. Recognition ond measurement All financial assets and liabilities are initially measured at tran53£tion price (including transaction costs), except for those financial assets cla55ified as at fair value through profit or loss. which are initiallv measured at fair value Iwhich is normally the transaction price excluding transaction c05tsl. unless the arrangement con5titute5 a financing transactlons. If an arrangement constitutes a financing transaction, the financial asset or financial liability is measured at the present value of the future payments discounted at a market rate of interest for similar debt instruments. Financial a55et5 and liabilities are only offset in the statement of financial position when, and only when there exists a legally enforceable right to set off the recognised amounts and the charity intend5 either to settle on a net basis. or to realise the asset and settle the liability simultaneously. Financial assets are derecogni5ed when and only when al the contractual rights to the cash flows from the financial asset expire or are settled, bl the charity transfers to another party substantially all of the risks and rewards of ownership of the financial asset, or cl the charity, despite having retained Some, but not all, significant risks and rewards of ownership, has transferred control of the asset to another party. Financial lizbilitie$ are dereco8nised only when the obli8ation specified in the contract is discharged, cancelled or expire5. Donations and legacles Unrestricted 2024 2023 Restrl¢ted 2024 2023 Total 2024 2023 Donations Grants 10,264 3,133 10,264 16,000 3.133 10,41JO 16,000 10,400 10,264 3,133 16,000 10.400 26,264 13.533 Page 8
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARANTEE) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 Charitable activitie5 Unrestrlrted 2024 2023 Restrirted 2024 2023 Total 2024 2023 Event contributions Fundraising 5.182 9,567 5,182 21,255 9,567 31,865 21,255 31,865 21,255 31,865 5,182 9,567 26,437 41,432 Cort of raising lunds Unrestricted 2024 2023 Restricted 2024 2023 Total 2024 20Z3 Fundraising costs Committee meetin8 costs 2,196 602 2,196 602 64 Insurance 117 iii 117 iii 2,313 777 2,313 777 Expenditure on charitable activities Unrestricted 2024 2023 Restricted 2024 2023 Total 2024 2023 Staff costs Direct C05tS Support costs Governance costs 2,173 9,632 2,013 1,279 11,173 9,652 3,143 1,388 2,173 23,680 2,013 1,279 11,173 30,420 3,143 1,388 14,048 20,768 15,097 25,356 14.048 20,768 29.145 46,124 Unrestricted 2024 2023 Restricted 2024 2023 Total 2024 2023 Direct Costs: Family event costs Remembrance event and bereavement support Costs Travel Printing including newsletter produrtion Website 13,932 20,627 13,932 20,627 116 141 116 141 223 223 9,483 9,280 9,483 9,280 149 149 149 149 9,632 9.652 14,048 20,768 23,680 30,420 Page 9
THE DUCHENNE FAMILY SUPPORTGROUP (A COMPANY LIMITED BY GUARANTEEI NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 Expendrture on charitable activitie5 Icontinued) Unrestricted 2024 2023 Restrlcted 2024 2023 Tot81 2024 2023 su ort costs.. Committee meeting costs Subscriptions Telephone and internet Postage, stationery and office costs Insurance Legal and professional fees Sundry expenses 167 167 613 571 108 613 571 108 638 1,144 638 1,144 305 289 305 289 448 724 448 724 140 140 2,013 3,143 2,013 3,143 Unrestrlcted 2024 2023 Restricted 2024 2023 Total 2024 2023 Governance costs.. Committee meeting cost5 Telephone and internet Postage, stationery and office costs Insurance Legal and professional fees Independent examlnerfs fees Sundry expenses 26 26 12 12 71 127 71 127 47 47 44 50 81 50 81 I,iio 1,068 i.iio 1.068 30 30 1,279 1,388 1,279 1.388 Trustees, remuneration and expenses Trustees received no emolument5 during the year. There were expenses of £1,79912023: £2.0141 reimbursed to four trustees during the year. Page 10
THE OUCHENNE FAMILY SUPPORTGROUP IA COMPANY LIMITED BY GUARANTEEI NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 Analysis of staff costs Total 2024 Total 2023 Salaries and wages Pension contributions 2.173 11,097 76 2.173 11,173 The average number of full-time employees (including casual and part-time staff) during the year wa5 as follows.. Total 2024 Total 2023 Charltable activities Governance o.io 0.72 0.02 0.02 0.12 0.74 Average number of staff Iheadcountl No employee received remuneration of more than £60,000. Taxation The company is 3 registered charity and no provision is considered necessary for taxation. 10 Debtors 2024 2023 Prepaid event costs Other debtors 7,189 551 7,740 11 Creditors: amounts falling due wlthÈn one year 2024 2023 Event contributions received in advance Other creditors and accruals 3,500 I,iio 1,068 4,610 1,068 Page 11
THE DUCHENNE FAMILY SUPPORTGROUP IA COMPANY LIMITED BY GUARANTEEI NOTESTO THE FINANCIAL STATEMENTS FOR THE YEAR ENOED 31 MARCH 2024 12 Analy51S Ot charitable lunds Balan¢e at Incornin8 01.04.2023 resourtes Resources expended Balance at Transfers 31.03.2024 Restricted funds Pears fund Remembrance events fund Events fund 4,205 4,205 11161 113,9321 114,0481 116 21,182 21,182 7,250 11,455 4,205 116 Unrestricted fund5 General fund 35,221 31,519 117,4101 131,4581 11161 49,214 39.426 52,701 60,669 8LY1¢7nce gt Incorning 01.04.2022 resourtes Resources expended 8o1¢7nce ¢7t Transfers 31.03.2023 2023 Restrirtedfunds Pearsfund Remembrance eventsfund Events Jund 4,205 4,205 1141) 120.627J 120, 768J 141 660 801 19.967 19,967 4,205 4,205 Unrestrictedfunds Generolfund 27,157 34,598 (26,133J {46.901J f801) 35,221 31,362 54,965 39.426 Description of restricted funds Eventsfund.. Funding raised by individuals for the provision of holidays and events Remembrunce event fund Donations received with instruttions to use towards the costs of providlng a remembrance event a5 part of bereavement support. Pa8e 12
THE DUCHENNE FAMILY SUPPORT GROUP IA COMPANY LIMITED BY GUARANTEEI NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024 13 Financial Instrument5 Cate8orisation of financial instruments 2024 2023 Financial assets that are debt instrument measured at amort15ed c05t 65,279 Financial liabilities measured at amortised cost 1.068 14 Analysls of net assets between funds General fund Restricted funds Total 2024 Total 2023 Cash at bank and in hand Other net current a5setslliabilities 46,084 3,130 11,455 57,539 3,130 40,494 11,0681 49,214 11,455 60,669 39,426 2023 Cash ot bunk tind in hGnd other net current ussetsfliubilities 36,289 (1,068) 4,205 40,494 11,068J 35,221 4,205 39,426 15 Legal status of charity The charity is a company limited by guarantee and has no share capital. The liability of each member in the event of winding vp is limited to £1. 16 Related party transactions Donations totallin8 £1,196 were made to the charity by four tru5tee5 during the year. Page 13