2022-03-31-accounts - The Duchenne Family Support Group

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Charity Registration Number: 1128653

Company Registration Number: 06134522

THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

	CONTENTS
		Page
Report ofthe Trustees		1-3
Report of the independent examiner		4
Statement offinancial activities		5
Balance sheet		6
Notestothefinancialstatements		7-11

THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022

The trustees present their report together with the financial statements of the Charity for the year ended 31st March 2022. They are also prepared to meet the requirements for a directors’ report and accounts for Companies Act purposes.

The accounts have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the Charity's governing document, applicable law and the requirements of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).

Reference and Administrative Details

Charity Number 1128653 Company Number 06134522 Registered Office 78 York Street, London, W1 1DP

Directors and trustees

The directors of the charitable company are its trustees for the purpose of charity law and throughout this report are collectively referred to as trustees.

Our current trustees are Sue Berry, Stephen Meech, Jacky Wilde, Karen Lightly, Laura Elliott, Paul Chandler, and Sarah Wright. Christina Biggs and Ann Patterson are no longer trustees but continue to offer support where needed.

Our paid Development Officer for the period was Phillippa Farrant.

A third of the trustees (the longest serving) are required to retire by rotation each year at the Annual General Meeting but may seek re-election. This year, by rotation, Laura Elliott, Sue Berry and Jacky Wilde are offering themselves for re-election, together with Karen Lightly who was co-opted during the year, and any new nominations.

Company Secretary:

MC Secretaries Limited

Acting or Interim Treasurer: Mrs Christina Biggs

Independent examiner:

Marcus Cridland BA(Hons) FCA, Scott Vevers Ltd 65 East Street, Bridport, Dorset, DT5 3LB.

Bankers:

Barclays Bank plc 90 Osborne Road, Southsea, Hants, POS 3LW

Objectives, Activities, Achievements and Performance

The objectives of the charitable company are:

e To provide a positive national support network of families affected by Duchenne Muscular Dystrophy.
e To enable families to come together to share ideas and experiences and to enjoy social events.

Raising funds is always high on our priority list and the year saw us undertake sponsored events including the London Marathon. Additional financial support has again come from grants from other charities. We also receive significant support from our member families.

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022

Services were maintained in the following areas:

Helpline:	We operate a helpline to receive calls from families and professionals. Our part time
	Development Officer dealt with the queries herself or passed them on to an appropriate person
	or organisation.
News and	The charity publishes a regular newsletter containing articles, many from our family members,
information:	sharing experiences and ideas. Feedback is also provided on research progress and other matters
	impacting on families of disabled children and adults. We also have a website, a Facebook page
	and a Twitter account- all ofwhich we use in addition to our newsletter to keep families up to
	date with news and events.
Events:	Despitethe pandemicthe charity has continued totrytoprovide social eventswherefamiliescan
	enjoy a relaxed atmosphere whilst sharing their experiences and ideas. Events during this year
	included a holiday at Hall Farm Cottages in Norfolk, some Picnics in Parks, and a 35th Year
	AnniversaryWeekendinManchester.

Review of Public Benefit

In setting out our objectives and planning our activities, the trustees have given careful consideration to the Charity Commission's general guidance on public benefit.

Future Plans

We continually strive to expand our services to meet the growing demand but we do so in a planned and financially prudent way, thus ensuring all projects stand on a sound financial footing individually and thus the charity moves forward and grows but does so responsibly.

The restrictions necessitated by the Covid-19 pandemic and the vulnerability of the boys in many of our member families caused us to cancel most of our social contact activities normally at the core of our work, but, in turn, reduced our expenditure. We continued to hold committee meetings by video.

The postponement and uncertainty around of the London Marathon, normally our principal source of income, significantly reduced our income. We are exploring alternative sources including applications to charitable Trusts. We look forward to resuming face to face activities as the situation eases.

Financial Review

Each service we offer is carefully budgeted for and only runs after being sanctioned by the trustees as viable. The excess of expenditure over income in the year amounted to £354 (2021 - £10,293 excess income). Reserves at 31" March 2022 were £31,362.

Investment powers and policy

Under the Memorandum and Articles of Association, the charitable company has the power to make any investment which the trustees see fit.

Reserves policy

The state of the economy and resulting downturn in donations received also means sufficient reserves must be held to ensure services could continue in a financial downturn. The trustees carefully monitor this area to ensure sufficient reserves are in place. Our policy is to have a minimum of 3 months’ running costs as a reserve figure. At present the free reserves, which amount to £31,362 are within this target level.

Structure, Governance and Management

Governing Document

The Duchenne Family Support Group is a registered charity (charity number 1128653) and a company limited by guarantee (company number 06134522). The company was formed on 2 March 2007 and achieved registered charity status on 18 March 2009.

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THE DUCHENNE FAMILY SUPPORT GROUP

(A COMPANY LIMITED BY GUARANTEE)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022

The charitable company is governed by its Memorandum and Articles of Association.

Appointment of trustees

Trustees are appointed by the Members at the Annual General Meeting in accordance with the charitable company’s Memorandum and Articles of Association. No external bodies have the right to appoint trustees.

Trustee induction and training

New trustee directors are introduced to the operations of the organisation and are given information on the responsibilities of being a trustee and director as well as copies of the charitable company’s Memorandum and Articles of Association. Training is provided to trustee directors when required.

Organisation

The board of trustees, or the Executive Committee, of between 3 and 15 members who meet regularly, administer the charitable company. The charity also employed an administrator to assist with the day-to-day operation of the charitable company. The committee includes both trustee-members and non-trustee-members. The trustee-members are responsible for all decisions but seek guidance and opinions from non-trustee-members and, indeed, on occasion, the charity membership as a whole.

Trustees’ responsibilities in relation to the Financial Statements

Company law requires the trustees to prepare financial statements that give a true and fair view of the state of affairs of the charitable company at the end of the financial year and of its surplus or deficit for the financial year. In doing so the trustees are required to:

e select suitable accounting policies and then apply them consistently;
e observe the methods and principles in the Charities SORP; e make judgements and estimates that are reasonable and prudent; e state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
e prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in business.

The trustees are responsible for maintaining property accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and enables them to ensure that the financial statements comply with the Companies Act 1985. The trustees are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

This report has been prepared in accordance with the small company regime (section 419(2)) of the Companies Act 2006.

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Signed on behalf of the board of Trustees by:
Dr S Meech — Chair A bi a Gi, 2. wots
Date: tly tre...
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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

Independent Examiner’s report to the Trustees of The Duchenne Family Support Group

| report on the accounts of the charity for the year ended 31% March 2022, which are set out on pages 5 to 11.

Responsibilities and basis of report

As the charity's Trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, | report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination | have followed the Directions given by the Charity Commission under section 145(5) (b) of the 2011 Act.

Independent examiner's statement

| have completed my examination. | confirm that no matters have come to my attention in connection with the examination giving me cause to believe:

e accounting records have not been kept in accordance with section 386 of the Companies Act 2006;
e the accounts do not accord with such records:
e the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view which is not a matter considered as part of an independent examination; or
e the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of treland (FRS 102).

| have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

VA ,C 22>2. >

Marcus Cridland BA(Hons) FCA

Scott Vevers Ltd 65 East Street Bridport Dorset DT6 3LB.

Date: ANBAR

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

STATEMENT OF FINANCIAL ACTIVITIES (INCLUDING INCOME AND EXPENDITURE) FOR THE YEAR ENDED 31ST MARCH 2022

FOR THE YEAR ENDED 31ST MARCH 2022
		Unrestricted	Restricted
	Notes	funds	funds	2022	2021
		£	£	£	£
Income
Income and endowments from:
Donations		3,580	-	3,580	3,387
Grants		110	10,000	10,110	16,280
Charitable activities:
Contributions from families towards events		-	10,228	10,228	-
Other trading activities
Fundraising		30,735	-	30,735	16,629
Total Income		34,425	20,228	54,653	36,296
Expenditure on:
Raisingfunds	3	5,829	-	5,829	2,449
Charitable activities	4	22,496	26,682	49,178	23,554
Total expenditure		28,325	26,682	55,007	26,003
Net income (expenditure) fortheyear		6,100	(6,454)	(354)	10,293
Transfers between funds		(7,764)	7,764	-	-
Net movement in funds		(1,664)	1,310	(354)	10,293
Reconciliation offunds
Total funds at 1st April 2021		28,821	2,895	31,716	21,423
Totalfundsat31stMarch2022		27,157	4,205	31,362	31,716

All amounts derive from continuing activities.

All gains and losses recognised in the period are included in the statement of financial activities.

The notes on pages 7 to 11 form part of[these][financial][statements]

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Company No: 06134522

THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

BALANCE SHEET AT 31ST MARCH 2022

	Notes	2022		2021
		£	£	£	£
Current assets
Debtors	10	155		5,641
Cash at bank and in hand		32,333		27,745
		32,488		33,386
Creditors:Amounts falling due within oneyear	11	(1,126)		(1,670)
Net current assets			31,362		31,716
Total assets less current liabilities			31,362		31,716
The funds ofthe charity:
Restricted income funds	12		4,205		2,895
Unrestricted income funds:	12		27,157		28,821
Totalcharityfunds			31,362		31,716

The company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31st March 2022.

The members have not required the company to obtain an audit of its financial statements for the year ended 31st March 2022 in accordance with Section 476 of the Companies Act 2006.

The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts:

These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime.

The financial statements were approved by the board of Trustees and signed on its behalf by:

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Drs Medch Trustee ——~
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Date: eyuf er,

The notes on pages 7 to 11 form part of these financial statements

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022

1 Accounting policies
1.1 Basis of preparation

The charity constitutes a public benefit entity as defined by FRS 102. The financial statements are prepared under the historical cost convention and in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006. The accounts include the results of the charity's operations which are described in the Trustees’ Report, all of which are continuing.

1.2 Income Voluntary income including donations, gifts and legacies and grants that provide core funding or are of a general nature are recognised where there is entitlement, certainty of receipt and the amount can be quantified with reasonable accuracy. Such income is only deferred when:
The donor specifies that the grant or donation must only be used in future accounting periods; or
The donor has imposed conditions which must be met before the charity has unconditional entitlement.

Investment income is recognised on a receivable basis.

1.3. Volunteers and donated services and facilities The value of services provided by volunteers is not incorporated into these financial statements. Further details of the contribution made by volunteers can be found in the trustees’ annual report.
1.4 Expenditure

Expenditure is recognised whena liability is incurred.

Costs of raising funds are those costs incurred in attracting voluntary income, and those incurred in trading activities that raise funds.

Charitable activities include expenditure associated with the production of the newsletter and other information, provision of a helpline and volunteer network services and provision of events and holidays, together with support costs relating to these activities.

Governance costs include those incurred in the governance of the charity and its assets and are primarily associated with constitutional and statutory requirements.

Support costs include central functions and have been allocated to activity cost categories on a basis consistent with the use of resources.

1.5 Funds structure
The charity has a number of restricted income funds to account for situations where a donor requires that a donation must be spent ona particular purpose or where funds have been raised for a specific purpose.

All other funds are unrestricted income funds.

2 Income

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Unrestricted Restricted Total
2022 2021 2022 2021 2022 2021
£ £ £ £ £ £
Grants and donations 3,690 10,667 10,000 9,000 13,690 19,667
Event contributions - - 10,228 - 10,228 -
Fundraising 30,735 16,629 - - 30,735 16,629
34,425 27,296 20,228 9,000 54,653 36,296
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NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022

THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

3s	Cost of raising funds
						2022	2021
						£	£
	Fundraising costs					5,653	2,336
	Support costs (see note 5)					176	113
						5,829	2,449
4	Analysis of charitable expenditure
						Total	Total
						2022	2021
						£	£
	Restricted
	Family event costs					17,944	161
	Pears costs					8,690	6,105
	Remembrance event costs and bereavement		support			48	261
						26,682	6,527
	Unrestricted
	Travel					297	52
	Conferences etc					-	152
	Printing including newsletter production					4,379	5,411
	Website					149	149
	Support and governance costs (see note	5)				17,671	11,263
						22,496	17,027
						49,178	23,554
5	Support costs
		Generating		Direct		Total	Total
			Funds	Charitable	Governance	2022	2021
			£	£	£	£	£
	Administrator's salary		-	11,135	1,237	12,372	8,311
	Committee meeting costs		63	162	25	250	=
	Subscriptions		-	454	-	454	-
	Telephone and internet		-	434	48	482	205
	Postage and stationery and office costs		-	876	97	973	415
	Insurance		113	293	45	451	451
	Legal and professional fees		-	1,345	149	1,494	980
	Independent examiner’s fees		-	-	996	996	870
	Sundry expenses		=	375	-	375	144
			176	15,074	2,597	17,847	11,376

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022

5 Support costs (continued)

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|||||||||| |---|---|---|---|---|---|---|---|---| |2021|£|£|£|£| |Administrator’s|salary|-|7,480|831|8,311| |Committee|meeting|costs|-|-|-|-| |Telephone and|internet|-|184|21|205| |Postage|and stationery|and|office|costs|-|374|41|415| |Insurance|113|293|45|451| |Office|rent|-|-|-|-| |Legal and|professional fees|-|882|98|980| |Independent|examiner’s fees|-|-|870|870| |Sundry expenses|-|144|-|144| |113|9,357|1,906|11,376|

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6 ‘Trustees’ remuneration and expenses

Trustees received no emoluments during the year.

There were expenses of £919 (2021 - £nil) reimbursed to four trustees during the year.

7 Analysis of staff costs

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|||||| |---|---|---|---|---| |Total|Total| |2022|2021| |£|£| |Salaries|and|wages|17,152|8,311| |Pension|contributions|327|-| |17,479|8,311|

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8 Staff numbers

The average number of full-time employees (including casual and part-time staff) during the year was as follows:

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||||||| |---|---|---|---|---|---| |Total|Total| |2022|2021| |Charitable|activities|0.62|0.44| |Governance|0.02|0.02| |0.64|0.46| |Average|number|of staff|(headcount)|1|1|

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9 ~=Taxation The company is a registered charity and no provision is considered necessary for taxation.

10 Debtors

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|||||| |---|---|---|---|---| |2022|2021| |£|£| |Prepaid|fundraising|costs|-|1,980| |Prepaid|event|costs|-|3,661| |Other|debtors|155|-| |155|5,641|

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022

11 Creditors: amounts falling due within one year

11	Creditors: amounts falling due within one year	Creditors: amounts falling due within one year
						2022	2021
						£	£
	Event contributions received in advance					-	800
	Other creditors and accruals					1,126	870
						1,126	1,670
12	Analysis of charitable funds
		Balance	at	Incoming	Resources		Balance at
		01.04.2021		resources	expended	Transfers	31.03.2022
		£		£	£	£	£
	Restricted funds
	Pearsfund	2,895		10,000	(8,690)	-	4,205
	Remembrance events fund		-	-	(48)	48	-
	Events fund		-	10,228	(17,944)	7,716	-
		2,895		20,228	(26,682)	7,764	4,205
	Unrestricted funds
	General fund	28,821		34,425	(28,325)	(7,764)	27,157
		31,716		54,653	(55,007)	-	31,362
		Balance	at	Incoming	Resources		Balance at
	2021	01.04.2020		resources	expended’	‘Transfers	31.03.2021
		£		£	£	£	£
	Restrictedfunds
	Pearsfund		-	9,000	(6,105)	-	2,895
	Remembrance eventsfund		-	-	(261)	261	-
	Eventsfund		-	-	(161)	161	-
			=	9,000	(6,527)	422	2,895
,	Unrestrictedfunds
	Generalfund	21,423		27,296	(19,476)	(422)	28,821
		21,423		36,296	(26,003)	-	31,716

12 Analysis of charitable funds

Description of restricted funds

Events fund: - Funding raised by individuals for the provision of holidays and events

Remembrance event fund — Donations received with instructions to use towards the costs of providing a remembrance event as part of bereavement support.

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THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE)

NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022

13 Financial instruments

Categorisation of financial instruments

		2022	2021
		£	£
Financial	assets that are debt instrument measured at amortised cost	32,488	27,745
Financial	liabilitiesmeasuredatamortisedcost	1,126	1,670

14 Analysis of net assets between funds

	General	Restricted	Total	Total
	fund	funds	2022	2021
	£	£	£	£
Cash at bank and in hand	28,128	4,205	32,333	27,745
Other net current assets/liabilities	(971)	-	(971)	3,971
	27,157	4,205	31,362	31,716
2021	£	£	£
Cash atbankand in hand	24,850	2,895	27,745
Othernet current assets/liabilities	3,971	-	3,971
	28,821	2,895	31,716

15 Legal status of charity

The charity is a company limited by guarantee and has no share capital. The liability of each member in the event of winding up is limited to £1.

16 Related party transactions

Donations totalling £370 (2021 - £360) were made to the charity by two trustees during the year.

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