Charity Registration Number: 1128653 Company Registration Number: 06134522 THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022 THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ||CONTENTS|| |---|---|---| |||Page| |Report ofthe Trustees||1-3| |Report of the independent examiner||4| |Statement offinancial activities||5| |Balance sheet||6| |Notestothefinancialstatements||7-11| THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022 The trustees present their report together with the financial statements of the Charity for the year ended 31st March 2022. They are also prepared to meet the requirements for a directors’ report and accounts for Companies Act purposes. The accounts have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the Charity's governing document, applicable law and the requirements of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). ## Reference and Administrative Details Charity Number 1128653 Company Number 06134522 Registered Office 78 York Street, London, W1 1DP ## Directors and trustees The directors of the charitable company are its trustees for the purpose of charity law and throughout this report are collectively referred to as trustees. Our current trustees are Sue Berry, Stephen Meech, Jacky Wilde, Karen Lightly, Laura Elliott, Paul Chandler, and Sarah Wright. Christina Biggs and Ann Patterson are no longer trustees but continue to offer support where needed. ## Our paid Development Officer for the period was Phillippa Farrant. A third of the trustees (the longest serving) are required to retire by rotation each year at the Annual General Meeting but may seek re-election. This year, by rotation, Laura Elliott, Sue Berry and Jacky Wilde are offering themselves for re-election, together with Karen Lightly who was co-opted during the year, and any new nominations. ## Company Secretary: ## MC Secretaries Limited Acting or Interim Treasurer: Mrs Christina Biggs Independent examiner: Marcus Cridland BA(Hons) FCA, Scott Vevers Ltd 65 East Street, Bridport, Dorset, DT5 3LB. ## Bankers: Barclays Bank plc 90 Osborne Road, Southsea, Hants, POS 3LW ## Objectives, Activities, Achievements and Performance The objectives of the charitable company are: - e To provide a positive national support network of families affected by Duchenne Muscular Dystrophy. - e To enable families to come together to share ideas and experiences and to enjoy social events. Raising funds is always high on our priority list and the year saw us undertake sponsored events including the London Marathon. Additional financial support has again come from grants from other charities. We also receive significant support from our member families. Page| THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022 Services were maintained in the following areas: |Helpline:|We operate a helpline to receive calls from families and professionals.
Our part time| |---|---| ||Development Officer dealt with the queries herself or passed them on to an appropriate person| ||or organisation.| |News and|The charity publishes a regular newsletter containing articles, many from our family members,| |information:|sharing experiences and ideas. Feedback is also provided on research progress and other matters| ||impacting on families of disabled children and adults. We also have a website,
a Facebook page| ||and a Twitter account- all ofwhich we use in addition to our newsletter to keep families up to| ||date with news and events.| |Events:|Despitethe pandemicthe charity has continued totrytoprovide social eventswherefamiliescan| ||enjoy a relaxed atmosphere whilst sharing their experiences and ideas. Events during this year| ||included a holiday at Hall Farm Cottages in Norfolk, some Picnics in Parks, and a 35th Year| ||AnniversaryWeekendinManchester.| ## Review of Public Benefit In setting out our objectives and planning our activities, the trustees have given careful consideration to the Charity Commission's general guidance on public benefit. ## Future Plans We continually strive to expand our services to meet the growing demand but we do so in a planned and financially prudent way, thus ensuring all projects stand on a sound financial footing individually and thus the charity moves forward and grows but does so responsibly. The restrictions necessitated by the Covid-19 pandemic and the vulnerability of the boys in many of our member families caused us to cancel most of our social contact activities normally at the core of our work, but, in turn, reduced our expenditure. We continued to hold committee meetings by video. The postponement and uncertainty around of the London Marathon, normally our principal source of income, significantly reduced our income. We are exploring alternative sources including applications to charitable Trusts. We look forward to resuming face to face activities as the situation eases. ## Financial Review Each service we offer is carefully budgeted for and only runs after being sanctioned by the trustees as viable. The excess of expenditure over income in the year amounted to £354 (2021 - £10,293 excess income). Reserves at 31" March 2022 were £31,362. ## Investment powers and policy Under the Memorandum and Articles of Association, the charitable company has the power to make any investment which the trustees see fit. ## Reserves policy The state of the economy and resulting downturn in donations received also means sufficient reserves must be held to ensure services could continue in a financial downturn. The trustees carefully monitor this area to ensure sufficient reserves are in place. Our policy is to have a minimum of 3 months’ running costs as a reserve figure. At present the free reserves, which amount to £31,362 are within this target level. ## Structure, Governance and Management ## Governing Document The Duchenne Family Support Group is a registered charity (charity number 1128653) and a company limited by guarantee (company number 06134522). The company was formed on 2 March 2007 and achieved registered charity status on 18 March 2009. Page 2 , THE DUCHENNE FAMILY SUPPORT GROUP ## (A COMPANY LIMITED BY GUARANTEE) ## REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MARCH 2022 The charitable company is governed by its Memorandum and Articles of Association. ## Appointment of trustees Trustees are appointed by the Members at the Annual General Meeting in accordance with the charitable company’s Memorandum and Articles of Association. No external bodies have the right to appoint trustees. ## Trustee induction and training New trustee directors are introduced to the operations of the organisation and are given information on the responsibilities of being a trustee and director as well as copies of the charitable company’s Memorandum and Articles of Association. Training is provided to trustee directors when required. ## Organisation The board of trustees, or the Executive Committee, of between 3 and 15 members who meet regularly, administer the charitable company. The charity also employed an administrator to assist with the day-to-day operation of the charitable company. The committee includes both trustee-members and non-trustee-members. The trustee-members are responsible for all decisions but seek guidance and opinions from non-trustee-members and, indeed, on occasion, the charity membership as a whole. ## Trustees’ responsibilities in relation to the Financial Statements Company law requires the trustees to prepare financial statements that give a true and fair view of the state of affairs of the charitable company at the end of the financial year and of its surplus or deficit for the financial year. In doing so the trustees are required to: - e select suitable accounting policies and then apply them consistently; - e observe the methods and principles in the Charities SORP; e make judgements and estimates that are reasonable and prudent; e state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and - e prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in business. The trustees are responsible for maintaining property accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and enables them to ensure that the financial statements comply with the Companies Act 1985. The trustees are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. This report has been prepared in accordance with the small company regime (section 419(2)) of the Companies Act 2006. **----- Start of picture text -----**
Signed on behalf of the board of Trustees by:
Dr S Meech — Chair A bi a Gi, 2. wots
Date: tly tre...
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Page 3 THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) : ## Independent Examiner’s report to the Trustees of The Duchenne Family Support Group | report on the accounts of the charity for the year ended 31% March 2022, which are set out on pages 5 to 11. ## Responsibilities and basis of report As the charity's Trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, | report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination | have followed the Directions given by the Charity Commission under section 145(5) (b) of the 2011 Act. ## Independent examiner's statement | have completed my examination. | confirm that no matters have come to my attention in connection with the examination giving me cause to believe: - e accounting records have not been kept in accordance with section 386 of the Companies Act 2006; - e the accounts do not accord with such records: - e the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view which is not a matter considered as part of an independent examination; or - e the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of treland (FRS 102). | have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. ## VA ,C 22>2. > Marcus Cridland BA(Hons) FCA Scott Vevers Ltd 65 East Street Bridport Dorset DT6 3LB. ## Date: ANBAR Page 4 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) STATEMENT OF FINANCIAL ACTIVITIES (INCLUDING INCOME AND EXPENDITURE) FOR THE YEAR ENDED 31ST MARCH 2022 |FOR THE YEAR ENDED 31ST MARCH 2022|||||| |---|---|---|---|---|---| |||Unrestricted|Restricted||| ||Notes|funds|funds|2022|2021| |||£|£|£|£| |Income|||||| |Income and endowments from:|||||| |Donations||3,580|-|3,580|3,387| |Grants||110|10,000|10,110|16,280| |Charitable activities:|||||| |Contributions from families towards events||-|10,228|10,228|-| |Other trading activities|||||| |Fundraising||30,735|-|30,735|16,629| |Total Income||34,425|20,228|54,653|36,296| |Expenditure on:|||||| |Raisingfunds|3|5,829|-|5,829|2,449| |Charitable activities|4|22,496|26,682|49,178|23,554| |Total expenditure||28,325|26,682|55,007|26,003| |Net income (expenditure) fortheyear||6,100|(6,454)|(354)|10,293| |Transfers between funds||(7,764)|7,764|-|-| |Net movement in funds||(1,664)|1,310|(354)|10,293| |Reconciliation offunds|||||| |Total funds at 1st April 2021||28,821|2,895|31,716|21,423| |Totalfundsat31stMarch2022||27,157|4,205|31,362|31,716| ## All amounts derive from continuing activities. All gains and losses recognised in the period are included in the statement of financial activities. The notes on pages 7 to 11 form part of[these][financial][statements] Page 5 Company No: 06134522 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## BALANCE SHEET AT 31ST MARCH 2022 ||Notes|2022||2021|| |---|---|---|---|---|---| |||£|£|£|£| |Current assets|||||| |Debtors|10|155||5,641|| |Cash at bank and in hand||32,333||27,745|| |||32,488||33,386|| |Creditors:Amounts falling due within oneyear|11|(1,126)||(1,670)|| |Net current assets|||31,362||31,716| |Total assets less current liabilities|||31,362||31,716| |The funds ofthe charity:|||||| |Restricted income funds|12||4,205||2,895| |Unrestricted income funds:|12||27,157||28,821| |Totalcharityfunds|||31,362||31,716| The company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31st March 2022. The members have not required the company to obtain an audit of its financial statements for the year ended 31st March 2022 in accordance with Section 476 of the Companies Act 2006. The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts: These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime. The financial statements were approved by the board of Trustees and signed on its behalf by: **----- Start of picture text -----**
Drs Medch Trustee ——~
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## Date: eyuf er, The notes on pages 7 to 11 form part of these financial statements Page 6 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022 - 1 Accounting policies - 1.1 Basis of preparation The charity constitutes a public benefit entity as defined by FRS 102. The financial statements are prepared under the historical cost convention and in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006. The accounts include the results of the charity's operations which are described in the Trustees’ Report, all of which are continuing. - 1.2 Income Voluntary income including donations, gifts and legacies and grants that provide core funding or are of a general nature are recognised where there is entitlement, certainty of receipt and the amount can be quantified with reasonable accuracy. Such income is only deferred when: - The donor specifies that the grant or donation must only be used in future accounting periods; or - The donor has imposed conditions which must be met before the charity has unconditional entitlement. Investment income is recognised on a receivable basis. - 1.3. Volunteers and donated services and facilities The value of services provided by volunteers is not incorporated into these financial statements. Further details of the contribution made by volunteers can be found in the trustees’ annual report. - 1.4 Expenditure ## Expenditure is recognised whena liability is incurred. - Costs of raising funds are those costs incurred in attracting voluntary income, and those incurred in trading activities that raise funds. Charitable activities include expenditure associated with the production of the newsletter and other information, provision of a helpline and volunteer network services and provision of events and holidays, together with support costs relating to these activities. Governance costs include those incurred in the governance of the charity and its assets and are primarily associated with constitutional and statutory requirements. Support costs include central functions and have been allocated to activity cost categories on a basis consistent with the use of resources. - 1.5 Funds structure - The charity has a number of restricted income funds to account for situations where a donor requires that a donation must be spent ona particular purpose or where funds have been raised for a specific purpose. All other funds are unrestricted income funds. - 2 Income **----- Start of picture text -----**
Unrestricted Restricted Total
2022 2021 2022 2021 2022 2021
£ £ £ £ £ £
Grants and donations 3,690 10,667 10,000 9,000 13,690 19,667
Event contributions - - 10,228 - 10,228 -
Fundraising 30,735 16,629 - - 30,735 16,629
34,425 27,296 20,228 9,000 54,653 36,296
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Page7 NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) |3s|Cost of raising funds||||||| |---|---|---|---|---|---|---|---| |||||||2022|2021| |||||||£|£| ||Fundraising costs|||||5,653|2,336| ||Support costs (see note 5)|||||176|113| |||||||5,829|2,449| |4|Analysis of charitable expenditure||||||| |||||||Total|Total| |||||||2022|2021| |||||||£|£| ||Restricted||||||| ||Family event costs|||||17,944|161| ||Pears costs|||||8,690|6,105| ||Remembrance event costs and bereavement||support|||48|261| |||||||26,682|6,527| ||Unrestricted||||||| ||Travel|||||297|52| ||Conferences etc|||||-|152| ||Printing including newsletter production|||||4,379|5,411| ||Website|||||149|149| ||Support and governance costs (see note|5)||||17,671|11,263| |||||||22,496|17,027| |||||||49,178|23,554| |5|Support costs||||||| |||Generating||Direct||Total|Total| ||||Funds|Charitable|Governance|2022|2021| ||||£|£|£|£|£| ||Administrator's salary||-|11,135|1,237|12,372|8,311| ||Committee meeting costs||63|162|25|250|=| ||Subscriptions||-|454|-|454|-| ||Telephone and internet||-|434|48|482|205| ||Postage and stationery and office costs||-|876|97|973|415| ||Insurance||113|293|45|451|451| ||Legal and professional fees||-|1,345|149|1,494|980| ||Independent examiner’s fees||-|-|996|996|870| ||Sundry expenses||=|375|-|375|144| ||||176|15,074|2,597|17,847|11,376| Page 8 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022 ## 5 Support costs (continued) **----- Start of picture text -----**
|||||||||| |---|---|---|---|---|---|---|---|---| |2021|£|£|£|£| |Administrator’s|salary|-|7,480|831|8,311| |Committee|meeting|costs|-|-|-|-| |Telephone and|internet|-|184|21|205| |Postage|and stationery|and|office|costs|-|374|41|415| |Insurance|113|293|45|451| |Office|rent|-|-|-|-| |Legal and|professional fees|-|882|98|980| |Independent|examiner’s fees|-|-|870|870| |Sundry expenses|-|144|-|144| |113|9,357|1,906|11,376| **----- End of picture text -----**
## 6 ‘Trustees’ remuneration and expenses ## Trustees received no emoluments during the year. There were expenses of £919 (2021 - £nil) reimbursed to four trustees during the year. ## 7 Analysis of staff costs **----- Start of picture text -----**
|||||| |---|---|---|---|---| |Total|Total| |2022|2021| |£|£| |Salaries|and|wages|17,152|8,311| |Pension|contributions|327|-| |17,479|8,311| **----- End of picture text -----**
## 8 Staff numbers The average number of full-time employees (including casual and part-time staff) during the year was as follows: **----- Start of picture text -----**
||||||| |---|---|---|---|---|---| |Total|Total| |2022|2021| |Charitable|activities|0.62|0.44| |Governance|0.02|0.02| |0.64|0.46| |Average|number|of staff|(headcount)|1|1| **----- End of picture text -----**
9 ~=Taxation The company is a registered charity and no provision is considered necessary for taxation. ## 10 Debtors **----- Start of picture text -----**
|||||| |---|---|---|---|---| |2022|2021| |£|£| |Prepaid|fundraising|costs|-|1,980| |Prepaid|event|costs|-|3,661| |Other|debtors|155|-| |155|5,641| **----- End of picture text -----**
Page 9 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022 ## 11 Creditors: amounts falling due within one year |11|Creditors: amounts falling due within one year|Creditors: amounts falling due within one year||||,||| |---|---|---|---|---|---|---|---|---| ||||||||2022|2021| ||||||||£|£| ||Event contributions received in advance||||||-|800| ||Other creditors and accruals||||||1,126|870| ||||||||1,126|1,670| |12|Analysis of charitable funds|||||||| |||Balance|at|Incoming|Resources|||Balance at| |||01.04.2021||resources|expended||Transfers|31.03.2022| |||£||£|£||£|£| ||Restricted funds|||||||| ||Pearsfund|2,895||10,000|(8,690)||-|4,205| ||Remembrance events fund||-|-|(48)||48|-| ||Events fund||-|10,228|(17,944)||7,716|-| |||2,895||20,228|(26,682)||7,764|4,205| ||Unrestricted funds|||||||| ||General fund|28,821||34,425|(28,325)||(7,764)|27,157| |||31,716||54,653|(55,007)||-|31,362| |||Balance|at|Incoming|Resources|||Balance at| ||2021|01.04.2020||resources|expended’||‘Transfers|31.03.2021| |||£||£|£||£|£| ||Restrictedfunds|||||||| ||Pearsfund||-|9,000|(6,105)||-|2,895| ||Remembrance eventsfund||-|-|(261)||261|-| ||Eventsfund||-|-|(161)||161|-| ||||=|9,000|(6,527)||422|2,895| |,|Unrestrictedfunds|||||||| ||Generalfund|21,423||27,296|(19,476)||(422)|28,821| |||21,423||36,296|(26,003)||-|31,716| ## 12 Analysis of charitable funds ## Description of restricted funds ## Events fund: - Funding raised by individuals for the provision of holidays and events Remembrance event fund — Donations received with instructions to use towards the costs of providing a remembrance event as part of bereavement support. Page 10 ## THE DUCHENNE FAMILY SUPPORT GROUP (A COMPANY LIMITED BY GUARANTEE) ## NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 31ST MARCH 2022 ## 13 Financial instruments Categorisation of financial instruments |||2022|2021| |---|---|---|---| |||£|£| |Financial|assets that are debt instrument measured at amortised cost|32,488|27,745| |Financial|liabilitiesmeasuredatamortisedcost|1,126|1,670| - 14 Analysis of net assets between funds ||General|Restricted|Total|Total| |---|---|---|---|---| ||fund|funds|2022|2021| ||£|£|£|£| |Cash at bank and in hand|28,128|4,205|32,333|27,745| |Other net current assets/liabilities|(971)|-|(971)|3,971| ||27,157|4,205|31,362|31,716| |2021|£|£|£|| |Cash atbankand in hand|24,850|2,895|27,745|| |Othernet current assets/liabilities|3,971|-|3,971|| ||28,821|2,895|31,716|| ## 15 Legal status of charity The charity is a company limited by guarantee and has no share capital. The liability of each member in the event of winding up is limited to £1. ## 16 Related party transactions Donations totalling £370 (2021 - £360) were made to the charity by two trustees during the year. Page I!