# THE DUCHENNE FAMILY SUPPORT GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1128653
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** March 18, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1128653


## Contact

- **Address:** 78 YORK STREET, LONDON
- **Postcode:** W1H 1DP
- **Phone:** 0800 121 4518
- **Email:** info@dfsg.org.uk
- **Website:** www.dfsg.org.uk



## Activities

**Objects:** 1 TO PRESERVE AND PROTECT THE HEALTH OF AND RELIEVE PERSONS SUFFERING FROM DUCHENNE MUSCULAR DYSTROPHY AND THEIR FAMILIES2 TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC IN THE SUBJECT OF DUCHENNE MUSCULAR DYSTROPHY AND ITS IMPLICATIONS FOR THE FAMILIES OF THOSE SUFFERING FROM THE AFOREMENTIONED CONDITION3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF DUCHENNE MUSCULAR DYSTROPHY AND TO PUBLICISE THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING CHARITABLE RESEARCH INTO DUCHENNE MUSCULAR DYSTROPHY

**Activities:** To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.

**Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL.




## Classification

- **How:** Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
- **Who:** People With Disabilities, Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £51124 | £44336 | — | — |
| March 31, 2024 | £52701 | £31458 | — | — |
| March 31, 2023 | £54965 | £46901 | — | — |
| March 31, 2022 | £54653 | £55007 | — | — |
| March 31, 2021 | £36296 | £26003 | — | — |



## Trustees

- **Dr Stephen Henry Meech** (Chair)
- Amanda Elizabeth Revell — appointed May 18, 2023
- Catherine Virginia Parker — appointed Dec. 30, 2022
- Jacky Wilde — appointed Feb. 9, 2023
- Karen Ann Lightly — appointed Aug. 8, 2022
- Laura Elliott — appointed Nov. 9, 2020
- Sarah Wright — appointed Jan. 4, 2022
- Susan Berry — appointed March 8, 2017