Country

England & Wales

Charity number

1207922

Status

Registered

Registered

April 18, 2024

Legal form

CIO

Address

Contact

Phone

07572986039

Email

[email protected]

Website

curecdkl5.org.uk

Activities

To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.

Objects: The Objects Of The CIO Areto Preserve And Protect The Health Of Individuals Diagnosed With And Affected By Cdkl5 In Particular By:a Providing Assistance And Advocacy In The Form Of Support Groups For The Patient Community.b Providing Up To Date And Relevant Information To Individuals And Their Representative Diagnosed With The Condition And To Medical Professionals As A Means Of Improving Understanding And Raising Awareness Of Cdkl5 C Promoting And Support Research In Cdkl5

Classification

How

Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information

What

Disability

Who

Children/young People, People With Disabilities, People Of A Particular Ethnic Or Racial Origin, Other Charities Or Voluntary Bodies

Areas of operation

Country

Isle Of Man, Jersey, Northern Ireland, Scotland

Region

Throughout England And Wales

Finances

Trustees

Nearby

• Triratna Buddhafield 0.0 mi
• Unforgotten 0.0 mi
• Kombo Sillah Association 0.0 mi
• The Musicspace Trust 0.0 mi
• For - Ethiopia 0.1 mi

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