{"country": "England & Wales", "charity_number": "1207922", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1207922", "name": "CDKL5 UK", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2024-04-18", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "Henleaze Business Centre, Henleaze House, 13 Harbury Road, BRISTOL", "postcode": "BS9 4PN", "phone": "07572986039", "email": "admin@curecdkl5.org", "website": "www.curecdkl5.org.uk", "lat": 51.491632, "lng": -2.599783, "activities": "To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARETO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY:A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY.B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5 C PROMOTING AND SUPPORT RESEARCH IN CDKL5", "classifications": [{"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 204, "description": "People Of A Particular Ethnic Or Racial Origin"}, {"type": "Who", "code": 205, "description": "Other Charities Or Voluntary Bodies"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Isle Of Man"}, {"area_type": "Country", "area_description": "Jersey"}, {"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 60140, "latest_expenditure": 29130, "fin_period_start": "2024-04-18", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-18", "end": "2025-03-31", "income": 60140, "expenditure": 29130, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "CAROL-ANNE PARTRIDGE MSc", "chair": true, "appointment": "2024-04-18"}, {"name": "Amanda Black", "chair": false, "appointment": "2024-04-18"}, {"name": "Amanda Winwood", "chair": false, "appointment": "2024-05-22"}, {"name": "Heike Jord Knip", "chair": false, "appointment": "2024-04-18"}, {"name": "Nilesh Patel", "chair": false, "appointment": "2024-04-18"}, {"name": "Ruth Kettle-Frisby", "chair": false, "appointment": "2024-05-22"}, {"name": "Sarah Skillicorn", "chair": false, "appointment": "2024-04-18"}, {"name": "Shelley Ashton", "chair": false, "appointment": "2024-04-18"}, {"name": "Siobhan Benjamin", "chair": false, "appointment": "2024-04-18"}]}