OpenCharities

Research SMA

Rally Round Rupert

Country
England & Wales
Charity number
1201716
Status
Registered
Registered
Jan. 25, 2023
Legal form
CIO

Address

Address
81 JENNINGS ROAD
ST. ALBANS
AL1 4NY

Contact

Phone
07506523131
Email
[email protected]

Activities

To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).

Objects: The Objects Are:to Relieve The Need And Protect The Health Of Children And Their Families Affected By Spinal Muscular Atrophy (Sma) Throughout England & Wales For The Public Benefit By:working To Improve The Understanding And Knowledge Of Spinal Muscular Atrophy (Sma) Among The Public.providing Financial Support To Further Advance Clinical Research Into Spinal Muscular Atrophy (Sma).

Classification

How
Sponsors Or Undertakes Research, Other Charitable Activities
What
Disability
Who
Children/young People, People With Disabilities

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Jan. 24, 2025 £135,566 £175,148
Jan. 24, 2024 £188,798 £5,724

Trustees

Name Appointed
George Alec Mosey (Chair) Jan. 25, 2023
Charlotte Jessica Mosey Jan. 25, 2023
David Charles Auckland Dec. 11, 2024
Janet Elizabeth Harvey Jan. 25, 2023
Matthew Atkinson May 26, 2023
Paul Drayton Dec. 11, 2024