# Research SMA

## Details

- **Country:** England & Wales
- **Charity number:** 1201716
- **Other names:** RALLY ROUND RUPERT
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 25, 2023
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1201716


## Contact

- **Address:** 81 JENNINGS ROAD, ST. ALBANS
- **Postcode:** AL1 4NY
- **Phone:** 07506523131
- **Email:** georgeandcharlotte@hotmail.com



## Activities

**Objects:** THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF CHILDREN AND THEIR FAMILIES AFFECTED BY SPINAL MUSCULAR ATROPHY (SMA) THROUGHOUT ENGLAND & WALES FOR THE PUBLIC BENEFIT BY:WORKING TO IMPROVE THE UNDERSTANDING AND KNOWLEDGE OF SPINAL MUSCULAR ATROPHY (SMA) AMONG THE PUBLIC.PROVIDING FINANCIAL SUPPORT TO FURTHER ADVANCE CLINICAL RESEARCH INTO SPINAL MUSCULAR ATROPHY (SMA).

**Activities:** To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).




## Classification

- **How:** Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Jan. 24, 2025 | £135566 | £175148 | — | — |
| Jan. 24, 2024 | £188798 | £5724 | — | — |



## Trustees

- **George Alec Mosey** (Chair) — appointed Jan. 25, 2023
- Charlotte Jessica Mosey — appointed Jan. 25, 2023
- David Charles Auckland — appointed Dec. 11, 2024
- Janet Elizabeth Harvey — appointed Jan. 25, 2023
- Matthew Atkinson — appointed May 26, 2023
- Paul Drayton — appointed Dec. 11, 2024