# Research SMA

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1201716
- **Other names:** RALLY ROUND RUPERT
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 25, 2023
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1201716


## Contact

- **Address:** 81 JENNINGS ROAD, ST. ALBANS
- **Postcode:** AL1 4NY
- **Phone:** 07506 523131
- **Email:** georgeandcharlotte@hotmail.com



## Activities

**Objects:** THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF CHILDREN AND THEIR FAMILIES AFFECTED BY SPINAL MUSCULAR ATROPHY (SMA) THROUGHOUT ENGLAND &amp; WALES FOR THE PUBLIC BENEFIT BY:WORKING TO IMPROVE THE UNDERSTANDING AND KNOWLEDGE OF SPINAL MUSCULAR ATROPHY (SMA) AMONG THE PUBLIC.PROVIDING FINANCIAL SUPPORT TO FURTHER ADVANCE CLINICAL RESEARCH INTO SPINAL MUSCULAR ATROPHY (SMA).

**Activities:** To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England &amp; Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).




## Classification

- **How:** Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **George Alec Mosey** | Chair | Jan. 25, 2023 |
| Charlotte Jessica Mosey |  | Jan. 25, 2023 |
| David Charles Auckland |  | Dec. 11, 2024 |
| Janet Elizabeth Harvey |  | Jan. 25, 2023 |
| Matthew Atkinson |  | May 26, 2023 |
| Paul Drayton |  | Dec. 11, 2024 |




