{"country": "England & Wales", "charity_number": "1201716", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1201716", "name": "Research SMA", "known_as": null, "other_names": [{"name": "RALLY ROUND RUPERT", "name_type": "Previous name"}], "status": "Registered", "date_registered": "2023-01-25", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "81 JENNINGS ROAD, ST. ALBANS", "postcode": "AL1 4NY", "phone": "07506523131", "email": "georgeandcharlotte@hotmail.com", "website": null, "lat": 51.75686, "lng": -0.314834, "activities": "To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF CHILDREN AND THEIR FAMILIES AFFECTED BY SPINAL MUSCULAR ATROPHY (SMA) THROUGHOUT ENGLAND & WALES FOR THE PUBLIC BENEFIT BY:WORKING TO IMPROVE THE UNDERSTANDING AND KNOWLEDGE OF SPINAL MUSCULAR ATROPHY (SMA) AMONG THE PUBLIC.PROVIDING FINANCIAL SUPPORT TO FURTHER ADVANCE CLINICAL RESEARCH INTO SPINAL MUSCULAR ATROPHY (SMA).", "classifications": [{"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 310, "description": "Other Charitable Activities"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 135566, "latest_expenditure": 175148, "fin_period_start": "2024-01-25", "fin_period_end": "2025-01-24", "financial_years": [{"start": "2024-01-25", "end": "2025-01-24", "income": 135566, "expenditure": 175148, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-01-25", "end": "2024-01-24", "income": 188798, "expenditure": 5724, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "George Alec Mosey", "chair": true, "appointment": "2023-01-25"}, {"name": "Charlotte Jessica Mosey", "chair": false, "appointment": "2023-01-25"}, {"name": "David Charles Auckland", "chair": false, "appointment": "2024-12-11"}, {"name": "Janet Elizabeth Harvey", "chair": false, "appointment": "2023-01-25"}, {"name": "Matthew Atkinson", "chair": false, "appointment": "2023-05-26"}, {"name": "Paul Drayton", "chair": false, "appointment": "2024-12-11"}]}