OpenCharities

Cdls - Hope For Hasti

Hope For Hasti

Country
England & Wales
Charity number
1188769
Status
Registered
Registered
March 25, 2020
Legal form
CIO

Address

Address
7 Bucks Close
WEST BYFLEET
Surrey
KT14 6RU

Contact

Activities

Hope for Hasti provides grants to organisations conducting research on Cornelia de Lange Syndrome (CdLS), and guides research projects with the aim of finding treatments for this rare genetic condition.

Objects: The Objects Of The CIO Is:for The Public Benefit, The Relief Of Sickness And The Preservation And Protection Of Good Health Among People Suffering From Cornelia De Lange Syndrome (Cdls) In Particular By: (1) Providing Grants Of Financial Assistance To Organisations And Individuals Undertaking Research Into Cornelia De Lange Syndrome (Cdls) Anywhere In The World, The Useful Results Of Which Will Be Disseminated For The Public Benefit.(2) Establishing And Operating A Patient Registry For Persons Suffering From Cornelia De Lange Syndrome (Cdls) Anywhere In The World As A Means To Support Clinical Trials, Studies And Research Into The Condition.

Classification

How
Sponsors Or Undertakes Research
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure Assets
March 30, 2025 £41,673 £37,967
March 30, 2024 £67,677 £25,446
March 30, 2023 £32,165 £23,233
March 30, 2022 £269,682 £108,339
March 30, 2021 £897,100 £29,386 £867,714

Trustees

Name Appointed
Christopher Brannigan (Chair) March 25, 2020
David Rutherford Player March 25, 2020
Hengameh Delfaninejad March 25, 2020
Keith Goddard March 25, 2020
Sebastian Pearce March 25, 2020