# CDLS - HOPE FOR HASTI

## Details

- **Country:** England & Wales
- **Charity number:** 1188769
- **Other names:** HOPE FOR HASTI
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 25, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1188769


## Contact

- **Address:** 7 Bucks Close, WEST BYFLEET, Surrey
- **Postcode:** KT14 6RU
- **Phone:** 07920162569
- **Email:** hello@hopeforhasti.org
- **Website:** www.hopeforhasti.org



## Activities

**Objects:** THE OBJECTS OF THE CIO IS:FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) IN PARTICULAR BY: (1) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS AND INDIVIDUALS UNDERTAKING RESEARCH INTO CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.(2) ESTABLISHING AND OPERATING A PATIENT REGISTRY FOR PERSONS SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD AS A MEANS TO SUPPORT CLINICAL TRIALS, STUDIES AND RESEARCH INTO THE CONDITION.

**Activities:** Hope for Hasti provides grants to organisations conducting research on Cornelia de Lange Syndrome (CdLS), and guides research projects with the aim of finding treatments for this rare genetic condition.




## Classification

- **How:** Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 30, 2025 | £41673 | £37967 | — | — |
| March 30, 2024 | £67677 | £25446 | — | — |
| March 30, 2023 | £32165 | £23233 | — | — |
| March 30, 2022 | £269682 | £108339 | — | — |
| March 30, 2021 | £897100 | £29386 | £867714 | 0 |



## Trustees

- **Christopher Brannigan** (Chair) — appointed March 25, 2020
- DAVID RUTHERFORD PLAYER — appointed March 25, 2020
- Hengameh Delfaninejad — appointed March 25, 2020
- KEITH GODDARD — appointed March 25, 2020
- SEBASTIAN PEARCE — appointed March 25, 2020