OpenCharities

Ourbrainbank

Country
England & Wales
Charity number
1184699
Status
Registered
Registered
July 31, 2019
Legal form
CIO

Address

Address
2 Florida Street
LONDON
E2 6AL

Activities

OurBrainBank is an an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients. It's the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%. Our Founder and Chair, Jessica Morris, a British national living in the US, was disgnosed with GBM in January 2016.

Objects: The Objects Of The CIO Are To Preserve And Protect The Health Of Persons Living With Glioblastoma, In Particular But Not Exclusively By:• The Development, Provision And Management Of A Mobile Application Designed To Help Patients Manage Their Disease And Collect Anonymised Data For Research• The Provision Of Support, Assistance And Information To Persons Living With Glioblastoma• Contributing To Research Into The Nature, Causes, Diagnosis, Prevention, Treatment And Cure Of Glioblastoma.

Classification

How
Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £27,711 £20,939
Dec. 31, 2023 £84,600 £26,520
Dec. 31, 2022 £18,567 £20,058
Dec. 31, 2021 £33,040 £2,802
Dec. 31, 2020 £23,349 £5,631

Trustees

Name Appointed
Jake Arnold-Forster (Chair) Sept. 5, 2019
Alexandra Bennett-Clemmow July 5, 2022
Andrew Coulson March 22, 2021
Edward Pilkington June 24, 2022
Esther Suzanne Bathers May 9, 2023
Fiona Thorne March 21, 2024
Matthew James Wilson Oct. 7, 2025
Nicola Nuttall June 22, 2022
Richard Clemmow April 6, 2020
Simon David Matthews July 31, 2019
Uzmah Yunis Sept. 26, 2023