# OURBRAINBANK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1184699
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 31, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1184699


## Contact

- **Address:** 2 Florida Street, LONDON
- **Postcode:** E2 6AL
- **Phone:** 07885 651841
- **Email:** ukinfo@ourbrainbank.org
- **Website:** ourbrainbank.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF PERSONS LIVING WITH GLIOBLASTOMA, IN PARTICULAR BUT NOT EXCLUSIVELY BY:• THE DEVELOPMENT, PROVISION AND MANAGEMENT OF A MOBILE APPLICATION DESIGNED TO HELP PATIENTS MANAGE THEIR DISEASE AND COLLECT ANONYMISED DATA FOR RESEARCH• THE PROVISION OF SUPPORT, ASSISTANCE AND INFORMATION TO PERSONS LIVING WITH GLIOBLASTOMA• CONTRIBUTING TO RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF GLIOBLASTOMA.

**Activities:** OurBrainBank is an an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients.  It&#x27;s the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%.  Our Founder and Chair, Jessica Morris, a British national living in the US, was disgnosed with GBM in January 2016.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Jake Arnold-Forster** | Chair | Sept. 5, 2019 |
| Alexandra Bennett-Clemmow |  | July 5, 2022 |
| Andrew Coulson |  | March 22, 2021 |
| Edward Pilkington |  | June 24, 2022 |
| Esther Suzanne Bathers |  | May 9, 2023 |
| Fiona Thorne |  | March 21, 2024 |
| Matthew James Wilson |  | Oct. 7, 2025 |
| Nicola Nuttall |  | June 22, 2022 |
| Richard Clemmow |  | April 6, 2020 |
| Simon David Matthews |  | July 31, 2019 |
| Uzmah Yunis |  | Sept. 26, 2023 |




