# OURBRAINBANK

## Details

- **Country:** England & Wales
- **Charity number:** 1184699
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** July 31, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1184699


## Contact

- **Address:** 2 Florida Street, LONDON
- **Postcode:** E2 6AL
- **Phone:** 07885 651841
- **Email:** ukinfo@ourbrainbank.org
- **Website:** ourbrainbank.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF PERSONS LIVING WITH GLIOBLASTOMA, IN PARTICULAR BUT NOT EXCLUSIVELY BY:• THE DEVELOPMENT, PROVISION AND MANAGEMENT OF A MOBILE APPLICATION DESIGNED TO HELP PATIENTS MANAGE THEIR DISEASE AND COLLECT ANONYMISED DATA FOR RESEARCH• THE PROVISION OF SUPPORT, ASSISTANCE AND INFORMATION TO PERSONS LIVING WITH GLIOBLASTOMA• CONTRIBUTING TO RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF GLIOBLASTOMA.

**Activities:** OurBrainBank is an an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients.  It's the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%.  Our Founder and Chair, Jessica Morris, a British national living in the US, was disgnosed with GBM in January 2016.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Other Charitable Activities
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £27711 | £20939 | — | — |
| Dec. 31, 2023 | £84600 | £26520 | — | — |
| Dec. 31, 2022 | £18567 | £20058 | — | — |
| Dec. 31, 2021 | £33040 | £2802 | — | — |
| Dec. 31, 2020 | £23349 | £5631 | — | — |



## Trustees

- **Jake Arnold-Forster** (Chair) — appointed Sept. 5, 2019
- Alexandra Bennett-Clemmow — appointed July 5, 2022
- Andrew Coulson — appointed March 22, 2021
- Edward Pilkington — appointed June 24, 2022
- Esther Suzanne Bathers — appointed May 9, 2023
- Fiona Thorne — appointed March 21, 2024
- Matthew James Wilson — appointed Oct. 7, 2025
- Nicola Nuttall — appointed June 22, 2022
- Richard Clemmow — appointed April 6, 2020
- Simon David Matthews — appointed July 31, 2019
- Uzmah Yunis — appointed Sept. 26, 2023