OURBRAINBANK CIO
Unaudited Financial Statements
31 December 2022
BURGESS HODGSON LLP
Chartered accountants Camburgh House 27 New Dover Road Canterbury Kent CT1 3DN
OURBRAINBANK CIO
Financial Statements
Year ended 31 December 2022
| Page | |
|---|---|
| Trustees' annual report | 1 |
| Statement of financial activities | 5 |
| Statement of financial position | 6 |
| Notes to the financial statements | 7 |
OURBRAINBANK CIO
Trustees' Annual Report
Year ended 31 December 2022
The trustees present their report and the unaudited financial statements of the charity for the year ended 31 December 2022.
Reference and administrative details
Registered charity name OURBRAINBANK CIO Charity registration number 1184699 Principal office 62 Calabria Road London N5 1HU The trustees A Coulson J N H Bamping OBE (Resigned 9 March 2022) J Bennett OBE (Deceased 11 January 2022) J Arnold-Forster R Clemmow S D Matthews A B Clemmow (Appointed 5 July 2022) E Pilkington (Appointed 24 June 2022) L Nuttall (Deceased 22 May 2023) N Nuttall (Appointed 22 June 2022) E S Bathers (Appointed 09 May 2023) Accountants Burgess Hodgson LLP Chartered accountants Camburgh House 27 New Dover Road Canterbury Kent CT1 3DN
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OURBRAINBANK CIO
Trustees' Annual Report (continued)
Year ended 31 December 2022
Objectives and activities
Created by the late Jessica Morris as a direct result of her own diagnosis, OurBrainBank is an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients.
It is the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%. Glioblastomas are the most common high grade (cancerous) primary brain tumour in adults. A glioblastoma is the fastest growing form of glioma brain tumour and is extremely difficult to treat.
The objectives of OurBrainBank are:
the advancement of health by the provision of support, assistance and information to persons living with glioblastoma, and by research into the nature, causes, diagnosis and treatment of glioblastoma;
- the advancement of the education of the general public in all areas relating to glioblastoma.
OurBrainBank aims to raise awareness and understanding of GBM, improve standards of patient care and quality of life, and the importance of GBM-focused research and clinical trials. Globally, it engages with GBM patients and their carers through a variety of channels, and uses its external channels, fundraising activities and advocacy initiatives to reach wider stakeholders.
Structure, governance and management
OurBrainBank is run on a voluntary basis by its experienced UK Board of Trustees, which meets and engages regularly to provide direction and oversight of the charity's activities in the UK. We work closely with our colleagues at OurBrainBank US and our Trustees join global board meetings to collaborate across areas of strategic development, communications and fundraising initiatives, operating globally where we can and independently for campaigns that reflect local context.
OurBrainBank also benefits from robust medical and patient advisors, based in the US, co-headed by leading neuro-oncologists Fabio Iwamoto MD of Columbia University, and Lakshmi Nayak MD of Dana-Farber Cancer Institute. The advisors bring together a wide range of clinical specialists spanning neuro-surgery, psychiatry and neuro-oncology. The patient advisors include patients and caregivers.
During the past year we have continued to build links with the UK and international GBM medical and patient/carer communities, and with other brain tumour and GBM-focused charities.
The start of 2022 sadly reinforced the importance and urgency of our mission. We were deeply saddened to see the passing of our dear colleague and UK Trustee, Jana Bennett OBE, who died of glioblastoma. Jana was one of the most distinguished broadcast executives of her generation, whose drive and inspiration will be much missed among the UK and US boards.
This was very sadly followed in May 2023 with the news that we lost our youngest UK Trustee Laura Nuttall to glioblastoma. Diagnosed in 2018 at just 18 years old, Laura inspired the world with her bravery and spirit. Laura, her mother Nicola, also an OBB Trustee, and her family have done so much to raise awareness about GBM, to campaign for improved treatments and to give help and support to other patients. She will be so missed by us all.
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OURBRAINBANK CIO
Trustees' Annual Report (continued)
Year ended 31 December 2022
Achievements and performance
We are proud to continue their legacies and in 2022 we began researching and developing a dedicated campaign focused on improving treatment options for glioblastoma patients in the UK.
During 2022 we commissioned an external researcher to undertake a comprehensive review of the glioblastoma treatment landscape in the UK. This extensive and thorough piece of work resulted in the publication in July 2023 of a white paper entitled GBM - the Neglected Cancer in the Treatment Revolution and the launch of our first campaign called #UseYourBrains! demanding greater recognition of, and support for, glioblastoma.
The white paper is an in-depth study into the state of care and therapies available to people diagnosed with GBM in the UK. It concludes that five critical steps need to be taken to improve the situation for GBM patients and, specifically, to ensure they do not miss out on the benefits of the personalised cancer treatment revolution built on recent advances in genomics.
The paper was launched at the British Neuro-Oncology Society conference in Manchester and our campaign received widespread media coverage including in The Sunday Times, The Sun, The Independent, BBC News and the London Evening Standard. It also provided a focus for our engagement with a range of influential stakeholders including medical professionals, other brain tumour charities and the All-Party Parliamentary Group on Brain Tumours. We plan to continue our campaign throughout 2023 and beyond.
To provide greater information on GBM, in 2022 we also worked closely with our colleagues in the US to build a new, global website and resource centre for patients and carers across the world. The new website, which went live in early 2023, is a hub of information and relevant links for GBM patients and carers, providing geographically-tailored information for people in the UK and the US, including campaign information, GBM-related news and personal stories. We hope that it becomes the first port of call for patients and their families, providing the latest information, support and access to a wider GBM community.
2022 also saw the publication of All in my Head, the memoir written by our founder and former UK chair Jessica Morris, who died of glioblastoma in 2021. It tells the story of how Jessica created OurBrainBank, first in the US and then in the UK, to campaign for better research into GBM and connect with patients from all over the world.
OurBrainBank, led by its US colleagues, continues to engage with a global community of people affected by glioblastoma throughout the world via its social media channels, newsletter and YouTube channel. We have also been joined by a new UK Trustee Esther Bathers to help us engage more proactively on social media channels and provide more bespoke information and engagement with UK patients and carers.
Fundraising
OurBrainBank currently has no UK employees, but thanks to the generosity of individual donors and fundraisers, OBB UK has generated sufficient funds to undertake all these activities and has been able to contract dedicated and skilled research and campaign support to assist us.
2022 saw some energetic fundraising activities on behalf of OurBrainBank in the UK, including our UK Trustee Andy Coulson cycling 1,000 miles to raise more than £8,000 in memory of his sister Deb, who sadly died from glioblastoma, and Agnes Arnold-Forster, who ran the length of the London Underground – some 249 miles!
This has continued in 2023 with individual donations and fundraisers in support of OBB UK. We are particularly grateful to Carol McLeod, who raised more than £11,000 walking the Fife Coastal Path with a group of friends in memory of her husband Neil, who sadly died of glioblastoma. In October 2023 Peter Tannenbaum will be cycling 1200 miles from London to Valencia, in memory of Jana Bennett and has so far raised in excess of £9,000.
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OURBRAINBANK CIO
Trustees' Annual Report (continued)
Year ended 31 December 2022
We thank all of our donors and fundraisers for their support, without which we would not be able to continue our work. We hope to use the funds to engage more support to grow our activities and continue our campaigning on behalf of all GBM patients in the UK.
Financial review
During the accounting period to December 2022, the charity has received donations of £18,567 and incurred costs of £20,058. This has resulted in the charity decreasing their unrestricted reserves by £1,491 to a total of £46,465.
The trustees' annual report was approved on .............................. and signed on behalf of the board of 26th Sept, 2023 trustees by:
J Arnold-Forster Chair and Trustee
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OURBRAINBANK CIO
Statement of Financial Activities
Year ended 31 December 2022
| 2022 | 2021 | |||
|---|---|---|---|---|
| Unrestricted | ||||
| fundsTotal funds | Total funds | |||
| Note | £ | £ | £ | |
| Income and endowments | ||||
| Donations and legacies | 4 | 18,567 | 18,567 | 33,040 |
| -------------- | ---------------------------- | ---------------------------- | ||
| Total income | 18,567 | 18,567 | 33,040 | |
| ============== | ============================ | ============================ | ||
| Expenditure | ||||
| Expenditure on charitable activities | 5,6 | 20,058 | 20,058 | 2,802 |
| -------------- | ---------------------------- | ---------------------------- | ||
| Total expenditure | 20,058 | 20,058 | 2,802 | |
| ============== | ============================ | ============================ | ||
| -------------- | ---------------------------- | ---------------------------- | ||
| Net (expenditure)/income and net movement in funds | (1,491) | (1,491) | 30,238 | |
| ============== | ============================ | ============================ | ||
| Reconciliation of funds | ||||
| Total funds brought forward | 47,956 | 47,956 | 17,718 | |
| ---------------------------- | ---------------------------- | ---------------------------- | ||
| Total funds carried forward | 46,465 | 46,465 | 47,956 | |
| ============================ | ============================ | ============================ |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
The notes on pages 7 to 10 form part of these financial statements.
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OURBRAINBANK CIO
Statement of Financial Position
31 December 2022
| 2022 | 2021 | ||
|---|---|---|---|
| Note | £ | £ | |
| Current assets | |||
| Cash at bank and in hand | 47,005 | 48,496 | |
| Creditors: amounts falling due within one year | 10 | 540 | 540 |
| ---------------------------- | ---------------------------- | ||
| Net current assets | 46,465 | 47,956 | |
| ---------------------------- | ---------------------------- | ||
| Total assets less current liabilities | 46,465 | 47,956 | |
| ---------------------------- | ---------------------------- | ||
| Net assets | 46,465 | 47,956 | |
| ============================ | ============================ | ||
| Funds of the charity | |||
| Unrestricted funds | 46,465 | 47,956 | |
| ---------------------------- | ---------------------------- | ||
| Total charity funds | 11 | 46,465 ============================ |
47,956 ============================ |
These financial statements were approved by the board of trustees and authorised for issue on ........................, and are signed on behalf of the board by: 26/9/23
J Arnold-Forster Chair and Trustee
The notes on pages 7 to 10 form part of these financial statements.
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OURBRAINBANK CIO
Notes to the Financial Statements
Year ended 31 December 2022
1. General information
The charity is a public benefit entity and a registered charity in England and Wales and is unincorporated. The address of the principal office is 62 Calabria Road, London, N5 1HU.
2. Statement of compliance
These financial statements have been prepared in compliance with FRS 102, 'The Financial Reporting Standard applicable in the UK and the Republic of Ireland', the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (Charities SORP (FRS 102)) and the Charities Act 2011.
3. Accounting policies
Basis of preparation
The financial statements have been prepared on the historical cost basis, as modified by the revaluation of certain financial assets and liabilities and investment properties measured at fair value through income or expenditure.
The financial statements are prepared in sterling, which is the functional currency of the entity.
Going concern
There are no material uncertainties about the charity's ability to continue.
Judgements and key sources of estimation uncertainty
The preparation of the financial statements requires management to make judgements, estimates and assumptions that affect the amounts reported. These estimates and judgements are continually reviewed and are based on experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances.
Fund accounting
Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.
Designated funds are unrestricted funds earmarked by the trustees for particular future project or commitment.
Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.
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OURBRAINBANK CIO
Notes to the Financial Statements (continued)
Year ended 31 December 2022
3. Accounting policies (continued)
Incoming resources
All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:
-
income from donations or grants is recognised when there is evidence of entitlement to the gift, receipt is probable and its amount can be measured reliably.
-
legacy income is recognised when receipt is probable and entitlement is established.
-
income from donated goods is measured at the fair value of the goods unless this is impractical to measure reliably, in which case the value is derived from the cost to the donor or the estimated resale value. Donated facilities and services are recognised in the accounts when received if the value can be reliably measured. No amounts are included for the contribution of general volunteers.
-
income from contracts for the supply of services is recognised with the delivery of the contracted service. This is classified as unrestricted funds unless there is a contractual requirement for it to be spent on a particular purpose and returned if unspent, in which case it may be regarded as restricted.
Resources expended
Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:
-
expenditure on raising funds includes the costs of all fundraising activities, events, non-charitable trading activities, and the sale of donated goods.
-
expenditure on charitable activities includes all costs incurred by a charity in undertaking activities that further its charitable aims for the benefit of its beneficiaries, including those support costs and costs relating to the governance of the charity apportioned to charitable activities.
-
other expenditure includes all expenditure that is neither related to raising funds for the charity nor part of its expenditure on charitable activities.
All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.
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OURBRAINBANK CIO
Notes to the Financial Statements (continued)
Year ended 31 December 2022
3. Accounting policies (continued)
Financial instruments
Financial liabilities and equity instruments are classified according to the substance of the contractual arrangements entered into.
Debtors and creditors with no stated interest rate and receivable or payable within one year are recorded at transaction price. Any losses arising from impairment are recognised in the profit and loss account in other administrative expenses.
Loans and borrowings are initially recognised at the transaction price including transaction costs. Subsequently, they are measured at amortised cost using the effective interest rate method, less impairment. If an arrangement constitutes a finance transaction it is measured at present value.
4. Donations and legacies
| Unrestricted | Total Funds |
Unrestricted | Total Funds | |
|---|---|---|---|---|
| Funds | 2022 |
Funds | 2021 | |
| £ | £ | £ | £ | |
| Donations | ||||
| Donations | 18,567 | 18,567 |
33,040 | 33,040 |
| ============== | ============================ | ============================ | ============================ | |
| Expenditure on charitable activities | by fund type | |||
| Unrestricted | Total Funds |
Unrestricted | Total Funds | |
| Funds | 2022 |
Funds | 2021 | |
| £ | £ | £ | £ | |
| Support costs | 20,058 | 20,058 |
2,802 | 2,802 |
| ============== | ============================ | ======================= | ======================= | |
| Expenditure on charitable activities | by activity type | |||
| Support | Total funds | Total fund | ||
| costs | 2022 | 2021 | ||
| £ | £ | £ | ||
| Support costs | 20,058 | 20,058 | 2,262 | |
| Governance costs | – | – | 540 | |
| ---------------------------- | ---------------------------- | ----------------------- | ||
| 20,058 | 20,058 | 2,802 | ||
| ============================ | ============================ | ======================= | ||
| Analysis of support costs | ||||
| Analysis of | ||||
| support costs | Total 2022 | Total 2021 | ||
| £ | £ | £ | ||
| Communications and Marketing | 5,773 | 5,773 | 2,072 | |
| General office | 1,069 | 1,069 | 190 | |
| Website costs | 13,216 | 13,216 | – | |
| ----------------------- | ----------------------- | ----------------------- | ||
| 20,058 | 20,058 | 2,262 | ||
| ======================= | ======================= | ======================= |
5. Expenditure on charitable activities by fund type
6. Expenditure on charitable activities by activity type
7. Analysis of support costs
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OURBRAINBANK CIO
Notes to the Financial Statements (continued)
Year ended 31 December 2022
8. Staff costs
The average head count of employees during the year was Nil (2021: Nil).
No employee received employee benefits of more than £60,000 during the year (2021: Nil).
9. Trustee remuneration and expenses
No remuneration or other benefits from employment with the charity or a related entity were received by the trustees.
10. Creditors: amounts falling due within one year
| 2022 | 2021 | ||||
|---|---|---|---|---|---|
| £ | £ | ||||
| Accruals and deferred income | 540 | 540 | |||
| ============== | ============== | ||||
| Analysis of charitable funds | |||||
| Unrestricted funds | |||||
| At | At | ||||
| 1 | January | 20 | 31 Decembe | ||
| 22 | Income | Expenditure | r 2022 | ||
| £ | £ | £ | £ | ||
| General funds | 47,956 | 18,567 | (20,058) | 46,465 | |
| ============================ | ============== | ============== | ============================ | ||
| At | At | ||||
| 1 | January | 20 | 31 December | ||
| 21 | Income | Expenditure | 2021 | ||
| £ | £ | £ | £ | ||
| General funds | 17,718 | 33,040 | (2,802) | 47,956 |
|
| ============================ | ============================ | ======================= | ============================ | ||
| Analysis of net assets between funds | |||||
| Unrestricted | Total Funds | ||||
| Funds | 2022 | ||||
| £ | £ | ||||
| Current assets | 46,465 | 46,465 | |||
| ============================ | ============================ | ||||
| Unrestricted | Total Funds | ||||
| Funds | 2021 | ||||
| £ | £ | ||||
| Current assets | 48,496 | 48,496 | |||
| ============================ | ============================ |
11. Analysis of charitable funds
12. Analysis of net assets between funds
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