International Niemann-Pick Disease Registry
- Country
- England & Wales
- Charity number
- 1175311
- Status
- Registered
- Registered
- Oct. 23, 2017
- Legal form
- Charitable company
Address
- Address
- SUITE 2E
NORTH SANDS BUSINESS CENTRE
LIBERTY WAY
SUNDERLAND
SR6 0QA
Contact
- Phone
- 01914150693
- [email protected]
- Website
inpdr.org
Activities
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Objects: The Only Object For Which The Charity Is Established Is To Relieve Sickness Amongst Individuals Affected By Niemann-Pick Diseases, Through Facilitating The Advancement Of Education In All Matters Concerning Such Diseases.
Classification
- How
- Provides Services, Acts As An Umbrella Or Resource Body
- What
- Education/training, The Advancement Of Health Or Saving Of Lives
- Who
- Other Defined Groups
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £447,821 | £368,458 |
| March 31, 2024 | £131,498 | £307,686 |
| March 31, 2023 | £173,361 | £415,907 |
| March 31, 2022 | £456,982 | £279,140 |
| March 31, 2021 | £390,375 | £265,255 |
Trustees
| Name | Appointed |
|---|---|
| James Edward Green (Chair) | March 1, 2017 |
| Tarakegn Hiwot | Feb. 28, 2017 |
| Toni Mathieson | March 1, 2017 |
Nearby
- Niemann-Pick UK 0.0 mi
- International Niemann-Pick Disease Alliance 0.0 mi
- Niemann-Pick UK 0.0 mi
- Red Sky Foundation 0.0 mi
- Sunderland Culture Limited 0.1 mi