International Niemann-Pick Disease Alliance
Inpda
- Country
- England & Wales
- Charity number
- 1150256
- Status
- Registered
- Registered
- Dec. 20, 2012
- Legal form
- Charitable company
Address
- Address
- Suite 2E
NORTH SANDS BUSINESS CENTRE
Liberty Way
Roker
SUNDERLAND
SR6 0QA
Contact
- Phone
- 01914150693
- [email protected]
- Website
inpda.org
Activities
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
Objects: To Relieve Sickness Amongst Families Affected By Niemann-Pick Diseases,any Distress Which May Arise Therefrom And To Advance The Education Of Such Families,interested Professionals And The General Public In All Matters Concerning Such Diseases As The Governing Council May In Its Discretion Determine("the Objects")
Classification
- How
- Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- What
- Education/training, The Advancement Of Health Or Saving Of Lives
- Who
- Other Defined Groups, The General Public/mankind
Areas of operation
- Country
- Argentina, Australia, Brazil, Canada, China, France, Germany, Italy, Netherlands, Norway, Scotland, Spain, Switzerland, United States
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £186,520 | £184,220 |
| March 31, 2024 | £214,845 | £89,725 |
| March 31, 2023 | £72,315 | £57,616 |
| March 31, 2022 | £20,112 | £10,393 |
| March 31, 2021 | £41,586 | £8,052 |
Trustees
| Name | Appointed |
|---|---|
| Sandra Cowie (Chair) | Nov. 1, 2015 |
| Jim Green | Dec. 18, 2012 |
| Sarah Janetta | Nov. 1, 2023 |
| Toni Angela Mathieson | Dec. 18, 2012 |
Nearby
- Niemann-Pick UK 0.0 mi
- Red Sky Foundation 0.0 mi
- Niemann-Pick UK 0.0 mi
- International Niemann-Pick Disease Registry 0.0 mi
- Sunderland Culture Limited 0.1 mi