# INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE

## Details

- **Country:** England & Wales
- **Charity number:** 1150256
- **Other names:** INPDA
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Dec. 20, 2012
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1150256


## Contact

- **Address:** Suite 2E, NORTH SANDS BUSINESS CENTRE, Liberty Way, Roker, SUNDERLAND
- **Postcode:** SR6 0QA
- **Phone:** 01914150693
- **Email:** info@inpda.org
- **Website:** www.inpda.org



## Activities

**Objects:** TO RELIEVE SICKNESS AMONGST FAMILIES AFFECTED BY NIEMANN-PICK DISEASES,ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES,INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING SUCH DISEASES AS THE GOVERNING COUNCIL MAY IN ITS DISCRETION DETERMINE("THE OBJECTS")

**Activities:** A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD).  The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.




## Classification

- **How:** Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups, The General Public/mankind



## Areas of operation

- Argentina
- Australia
- Brazil
- Canada
- China
- France
- Germany
- Italy
- Netherlands
- Norway
- Scotland
- Spain
- Switzerland
- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £186520 | £184220 | — | — |
| March 31, 2024 | £214845 | £89725 | — | — |
| March 31, 2023 | £72315 | £57616 | — | — |
| March 31, 2022 | £20112 | £10393 | — | — |
| March 31, 2021 | £41586 | £8052 | — | — |



## Trustees

- **Sandra Cowie** (Chair) — appointed Nov. 1, 2015
- JIM GREEN — appointed Dec. 18, 2012
- Sarah Janetta — appointed Nov. 1, 2023
- TONI ANGELA MATHIESON — appointed Dec. 18, 2012