2023-03-31-accounts

							2023	2022
					Unrestricted	Restricted	Total	Total
					fund	fund	funds	funds
				Notes		f.		F.
Income and endowments			from
Donations	and legacies				5,105	63,980	69,085	456,982
Charitable	activities
Charitable	activities				104,276		104,276
Total					109,381	63,980	173,361	456,982
Expenditure on
Charitable	activities
Charitable	activities				348,370	67,537	415,907	279,140
NET INCOME/(EXPENDITURE)					(238,989)	(3,557)	(242,546)	177,842
Reconciliation offunds
Total funds	brought	forward			375,666	54,455	430,121	252,279
Total funds carried		forward			136,677	50,898	187,575	430,121

Donations	and	legacies
						2023	2022
				Unrestricted	Restricted	Total	Total
				funds	funds	funds	funds
						E	E
Donations				5,105		5,105	211
Grants					63,980	63,980	456,771
				5,105	63,980	69,085	456,982
Grants received,		included	in the above, are	as follows:
						2023	2022
						E	E
Orphazyme Sanofi Genzyme University of Notre Dame Cyclo Therapeutics Inc			du Lac			63,980	114,490 269,979 54,277 18,025
						63,980	456,771
Income from charitable			activities
						2023	2022
			Activity			E
Contribution	to	Research	Charitable	activities		20,092
Recharge to INPDR Gateway Ltd Charitable				activities		84,184
						104,276
Charitable	activities costs
							Direct
							Costs (see
							note 5)
Charitable	activities						415,907

Direct costs ofcharitable	Direct costs ofcharitable	activities
			2023	2022
			E	E
Staff costs Equipment costs Registry hosting Travel 8 meetings Website costs			103,305 1,299 47,913 38,583 1,070	96,622 1,540 56,034 183 949
Other staff costs Office expenses Promotional expenses Executive meetings Independent examiner's Other regulatory costs Consultancy Legal fees Rebranding Research	fee		689 8,184 158 2,426 852 60,001 89,619 23,572 9,024 29,212	474 6,393 742 1,320 3,105 72,968 3,130 30,000 5,680
			415,907	279,140

Staff costs
				2023	2022
Wages and salaries Social security costs Other pension costs				97,527 3,897 1,881	91,421 3,507 1,694
				103,305	96,622
The average monthly	number	ofemployees	during the year was as follows:
				2023	2022
Coordination and administration				2	2
Registry Manager					1
					3

Comparatives for the statement	Comparatives for the statement	Comparatives for the statement	offinancial activities	offinancial activities	Unrestricted	Restricted	Total
					fund	fund	funds
							E
Income and endowments		from
Donations and legacies					402,705	54,277	456,982
Expenditure on
Charitable activities
Charitable activities					244,907	34,233	279,140
NET INCOME					157,798	20,044	177,842
Reconciliation offunds
Total funds brought forward					217,868	34,411	252,279
Total funds carried forward					375,666	54,455	430,121
Fixed asset investments							Shares	in
							group
							undertakings
Market value
Additions
Net book value
At 31 March 2023
At 31 March 2022
There were no investment		assets	outside the UK.
The company's investments		at the	balance sheet	date in	the share capital ofcompanies	include the	following:
INPDR Gateway Ltd
Registered office: United	Kingdom		12706306
Nature ofbusiness: Data	provider		for research
				0/
Class ofshare:				holding
					100
						2023	2022
						F	E
Aggregate capital and reserves Profit for the year						2,715 2,714		1

10.	Debtors: amounts	Debtors: amounts	Debtors: amounts	Debtors: amounts	falling due within one year	falling due within one year	falling due within one year
										2023	2022
											E
	Trade debtors									84,184
	Prepayments									5,872	842
										90,056	842
11.	Creditors: amounts					falling due	within one year
										2023	2022
											E
	Social security			and other taxes						2,532	2,368
	Accruals	and		deferred		income				16,722	16,117
										19,254	18,485
12.	Analysis	of net assets between					funds
										2023	2022
								Unrestricted	Restricted	Total	Total
								fund	fund	funds	funds
								F	E		E
	Investments							1		1
	Current	assets						155,930	50,898	206,828	448,606
	Current	liabilities						(19,254)		(19,254)	(18,485)
								136,677	50,898	187,575	430,121
13.	Movement		in	funds
										Net
										movement	At
									At 1/4/22	in funds	31/3/23
									f.	E	E
	Unrestricted			funds
	General	fund							375,666	(238,989)	136,677
	Restricted		funds
	APMRF								54,455	(3,557)	50,898
	TOTAL	FUNDS							430,121	(242,546)	187,575
	Net movement			in funds, included			in the above are	as follows:
									Incoming	Resources	Movement
									resources	expended	in funds
	Unrestricted			funds
	General	fund							109,381	(348,370)	(238,989)
	Restricted		funds
	APMRF								63,980	(67,537)	(3,557)
	TOTAL	FUNDS							173,361	(415,907)	(242,546)

						Net
						movement	At
					At 1/4/21	in funds	31/3/22
					f	f.	f
Unrestricted		funds
General	fund				217,868	157,798	375,666
Restricted funds
APMRF					34,411	20,044	54,455
TOTAL	FUNDS				252,279	177,842	430,121
Comparative		net movement	in funds,	included	in the above are as follows:
					Incoming	Resources	Movement
					resources f	expended f	in funds f
Unrestricted		funds
General	fund				402,705	(244,907)	157,798
Restricted funds
APMRF					54,277	(34,233)	20,044
TOTAL	FUNDS				456,982	(279,140)	177,842