# INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

## Details

- **Country:** England & Wales
- **Charity number:** 1175311
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Oct. 23, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1175311


## Contact

- **Address:** SUITE 2E, NORTH SANDS BUSINESS CENTRE, LIBERTY WAY, SUNDERLAND
- **Postcode:** SR6 0QA
- **Phone:** 01914150693
- **Email:** info@inpdr.org
- **Website:** www.inpdr.org



## Activities

**Objects:** THE ONLY OBJECT FOR WHICH THE CHARITY IS ESTABLISHED IS TO RELIEVE SICKNESS AMONGST INDIVIDUALS AFFECTED BY NIEMANN-PICK DISEASES, THROUGH FACILITATING THE ADVANCEMENT OF EDUCATION IN ALL MATTERS CONCERNING SUCH DISEASES.

**Activities:** The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.




## Classification

- **How:** Provides Services, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £447821 | £368458 | — | — |
| March 31, 2024 | £131498 | £307686 | — | — |
| March 31, 2023 | £173361 | £415907 | — | — |
| March 31, 2022 | £456982 | £279140 | — | — |
| March 31, 2021 | £390375 | £265255 | — | — |



## Trustees

- **JAMES EDWARD GREEN** (Chair) — appointed March 1, 2017
- TARAKEGN HIWOT — appointed Feb. 28, 2017
- TONI MATHIESON — appointed March 1, 2017