OpenCharities

Action FCS

Lpld Alliance

Country
England & Wales
Charity number
1165873
Status
Registered
Registered
March 4, 2016
Legal form
CIO

Address

Address
36 Gaskell Street
London
SW4 6NS

Contact

Phone
07920 715366
Email
info@actionfcs.org
Website
actionfcs.org

Activities

Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.

Objects: The Objects Of The CIO Are To Relieve Sickness And Preserve And Protect Good Healthof Persons Suffering From Familial Lipoprotein Lipase Deficiency (Lpld) And Relatedconditions By:1. Raising Awareness Of Lpld And Related Conditions;2. Educating Patients, Medical Personnel And The Public In General About Lpld;3. Supporting People With Lpld And Those Affected By IT To Live A Full, Healthy Andintegrated Life;4. Advocating For Access To Excellent Care And New Medicines For All Patients Withlpld.nothing In This Constitution Shall Authorise An Application Of The Property Of The Ciofor The Purposes Which Are Not Charitable In Accordance With Section 7 Of Thecharities And Trustee Investment (Scotland) Act 2005 And Section 2 Of The Charitiesact (Northern Ireland) 2008.

Classification

How
Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Geography

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £200 £415
Dec. 31, 2023 £339 £787
Dec. 31, 2022 £281 £398
Dec. 31, 2021 £1,857 £3,700
Dec. 31, 2020 £2,963 £2,150

Trustees

Name Appointed
Jill Prawer (Chair) Feb. 22, 2016
Finion Nicholas Patrick Day-Lewis Nov. 1, 2021
Helen Olufunke Aderin March 6, 2018
Helga Davidson April 18, 2025
Mrs Pat Wade Dec. 4, 2017