| Names and addresses ofadvisers {Optional information) | Names and addresses ofadvisers {Optional information) | |||||
|---|---|---|---|---|---|---|
| T ofadviser Name |
Address | |||||
| Lloyds Bank Victoria |
Branch, PO | |||||
| Box 1000, BXIILT | ||||||
| Name ofchief executive or names ofsenior staff members {Optional information) |
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| ~ a |
4 ~ 4 4 ~ |
~ 4 | ||||
| Description ofthe charity's trusts | ||||||
| Type ofgoverning document |
Constitution | |||||
| How the charity is constituted | Charitable Incorporated Organisation |
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| Trustee selection methods | Appointed by the Trustee Board |
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| Additional governance issues {Optional information) |
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| You may choose to include additional information, where relevant, about: |
Trustees are selected having regard to the skills and experience needed to run a small organisation, along with having understanding and/or experience ofFCSor similar conditions. |
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| ~ policies and procedures adopted for the induction and |
All new Trustees are provided with a copy ofthe constitution packs of Board papers, which include policies and procedures by the Board. |
and past approved |
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| training oftrustees; | ||||||
| ~ the charity's organisational structure and any wider |
The charity is run by a volunteer board oftrustees, the chair founder) isthe main operational executive. The Treasurer is Chartered Company Secretary. |
ofwhich (and a qualified |
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| network with which the charity |
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| works; ~ relationship with any related |
The Charity works with related networks: Alliance, Rare Disease UK, RareConnect. |
Heart UK, Diabetics | UK, Genetic | |||
| parties; | The Charity is currently very dependent on grant funding |
from | ||||
| ~ trustees' consideration of major risks and the system |
Pharmaceutical organisations with vested new drugs tothe market forthe treatment conditions. |
interests in bringing potential ofFCSand associated |
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| and procedures to manage |
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| them. | ||||||
| 4 ~ |
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| The objects ofthe CIO are to relieve sickness and preserve | and protect | |||||
| good health ofpersons suffering from familial chylomicronemia |
syndrome | |||||
| Summary ofthe objects ofthe | (FCS)and related conditions by: |
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| charity set out ln its aovernino document |
1. raising awareness ofFCSand related |
conditions; | ||||
| 2. educating patients, medical personnel |
and the public | in general about | ||||
| FCS; | ||||||
| TAR | March 2012 |
| ~ | a | a | ~ | ~ | s | ~ | 4 | 4 | ~ ~ | ||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Unrestricted | Restricted | Endowment | |||||||||||
| Details | funds | funds | funds | ||||||||||
| to nearest 2 | tonearest | 2 | to nearest r. | ||||||||||
| B1Cash | funds | Ltoyds Bank | 2S,S73 | ||||||||||
| Total cash funds | 20,073 | ||||||||||||
| (agree balances with receipts and payments ~s)) |
Unrestricted | Rest)1cted | Endowment | ||||||||||
| funds | funds | funds | |||||||||||
| Details | tonearest' | tonearest' | tonearest 2 | ||||||||||
| B2Other monetary assets | |||||||||||||
| Fund towhich | Current value | ||||||||||||
| Details | asset be | 0 | |||||||||||
| B3Investment | assets | ||||||||||||
| Details | Fund towhich asset helen |
Cost | (opaonal) | Current value | |||||||||
| B4Assets retained for | the | ||||||||||||
| charity's | own | use | |||||||||||
| Fund towhich | Amount due | When due | |||||||||||
| Details | I | I | |||||||||||
| B5Liabiiities | |||||||||||||
| Signed by one or lwo trustees behalf ofall the trustees |
on | Signature | Name | Date of a roval |
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| Io 2Q |