|Names and addresses ofadvisers {Optional information)|Names and addresses ofadvisers {Optional information)||||||
|---|---|---|---|---|---|---|
|T
ofadviser
Name|Address||||||
|Lloyds Bank
Victoria|Branch, PO||||||
|Box 1000, BXIILT|||||||
|Name ofchief executive or names ofsenior staff members
{Optional information)|||||||
|~
a|4
~
4
4
~|~ 4|||||
|Description ofthe charity's trusts|||||||
|Type ofgoverning
document|Constitution||||||
|How the charity is constituted|Charitable
Incorporated
Organisation||||||
|Trustee selection methods|Appointed
by the Trustee Board||||||
|Additional
governance
issues {Optional information)|||||||
|You may choose to include
additional
information,
where
relevant,
about:|Trustees are selected having regard to the skills and experience needed
to run a small organisation,
along with having
understanding
and/or
experience ofFCSor similar conditions.||||||
|~
policies and procedures
adopted for the induction
and|All new Trustees are provided
with a copy ofthe constitution
packs of Board papers, which include policies and procedures
by the Board.||||and past
approved||
|training oftrustees;|||||||
|~
the charity's
organisational
structure
and any wider|The charity is run by a volunteer
board oftrustees, the chair
founder) isthe main operational
executive. The Treasurer
is
Chartered
Company
Secretary.|||ofwhich (and
a qualified|||
|network
with which the charity|||||||
|works;
~
relationship
with any related|The Charity works with related networks:
Alliance, Rare Disease UK, RareConnect.|Heart UK, Diabetics|||UK, Genetic||
|parties;|The Charity is currently
very dependent
on grant funding||from||||
|~
trustees'
consideration
of
major risks and the system|Pharmaceutical
organisations
with vested
new drugs tothe market forthe treatment
conditions.|interests
in bringing
potential
ofFCSand associated|||||
|and procedures
to manage|||||||
|them.|||||||
|4
~|||||||
||The objects ofthe CIO are to relieve sickness and preserve|||and protect|||
||good health ofpersons suffering
from familial chylomicronemia|||||syndrome|
|Summary ofthe objects ofthe|(FCS)and related conditions
by:||||||
|charity set out ln its
aovernino
document|1.
raising awareness
ofFCSand related|conditions;|||||
||2.
educating
patients,
medical personnel|and the public|in general about||||
||FCS;||||||
|TAR||||||March 2012|
|~|a||a|~|~|s|~||4|4|~ ~|||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|||||||||Unrestricted||Restricted|||Endowment|
||||||Details|||funds||funds|||funds|
|||||||||to nearest 2||tonearest||2|to nearest r.|
|B1Cash|funds||||Ltoyds Bank|||2S,S73||||||
|||||||Total cash funds||20,073||||||
||||||(agree balances with receipts and payments
~s))|||Unrestricted||Rest)1cted|||Endowment|
|||||||||funds||funds|||funds|
||||||Details|||tonearest'||tonearest'|||tonearest 2|
|B2Other monetary assets||||||||||||||
|||||||||Fund towhich|||||Current value|
||||||Details|||asset be|||||0|
|B3Investment||assets||||||||||||
||||||Details|||Fund towhich
asset helen||Cost|(opaonal)||Current value|
|B4Assets retained for|||the|||||||||||
|charity's|own|use||||||||||||
|||||||||Fund towhich||Amount due|||When due|
||||||Details|||||||I|I|
|B5Liabiiities||||||||||||||
|Signed by one or lwo trustees
behalf ofall the trustees|||on|||Signature||Print|Name||||Date of
a
roval|
||||||||||||||Io
2Q|