# Action FCS

## Details

- **Country:** England & Wales
- **Charity number:** 1165873
- **Other names:** LPLD ALLIANCE
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 4, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1165873


## Contact

- **Address:** 36 GASKELL STREET, LONDON
- **Postcode:** SW4 6NS
- **Phone:** 07920715366
- **Email:** info@actionfcs.org
- **Website:** www.actionfcs.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT GOOD HEALTHOF PERSONS SUFFERING FROM FAMILIAL LIPOPROTEIN LIPASE DEFICIENCY (LPLD) AND RELATEDCONDITIONS BY:1. RAISING AWARENESS OF LPLD AND RELATED CONDITIONS;2. EDUCATING PATIENTS, MEDICAL PERSONNEL AND THE PUBLIC IN GENERAL ABOUT LPLD;3. SUPPORTING PEOPLE WITH LPLD AND THOSE AFFECTED BY IT TO LIVE A FULL, HEALTHY ANDINTEGRATED LIFE;4. ADVOCATING FOR ACCESS TO EXCELLENT CARE AND NEW MEDICINES FOR ALL PATIENTS WITHLPLD.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIOFOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THECHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIESACT (NORTHERN IRELAND) 2008.

**Activities:** Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £200 | £415 | — | — |
| Dec. 31, 2023 | £339 | £787 | — | — |
| Dec. 31, 2022 | £281 | £398 | — | — |
| Dec. 31, 2021 | £1857 | £3700 | — | — |
| Dec. 31, 2020 | £2963 | £2150 | — | — |



## Trustees

- **JILL PRAWER** (Chair) — appointed Feb. 22, 2016
- Finion Nicholas Patrick Day-Lewis — appointed Nov. 1, 2021
- Helen Olufunke Aderin — appointed March 6, 2018
- Helga Davidson — appointed April 18, 2025
- Mrs Pat Wade — appointed Dec. 4, 2017