| Names and addresses ofadvisers (Optional information) |
Names and addresses ofadvisers (Optional information) |
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|---|---|---|
| T eofadviser Name |
Address | |
| Lloyds Bank Victoria Branch, PO |
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| Box1000,BXIILT | ||
| Name ofchief executive or names ofsenior staff members (Optional information) |
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| ~ a |
4 ~ ~ 4 4 ~ ~ 4 0 |
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| Description ofthe charity's trusts | ||
| Type ofgoverning document |
Constitution | |
| How the charity is constituted | Charitable Incorporated Organisation |
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| Trustee selection methods | Appointed by the Trustee Board |
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| Additional governance issues (Optional information) |
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| You may choose to include additional information, where relevant, about; |
Trustees are selected having regard to the skills and experience needed to run a small organisation, along with having understanding and/or experience ofFCSor similar conditions. |
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| ~ policies and procedures adopted for the induction and |
All new Trustees are provided with a copy ofthe constitution packs ofBoard papers, which include policies and procedures by the Board. |
and past approved |
| training oftrustees; | ||
| ~ the charity's organisational structure and any wider |
The charity is run by a volunteer board oftrustees, the chair ofwhich (and founder) is the main operational executive. The Treasurer is a qualified Chartered Company Secretary. |
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| network with which the charity |
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| works; ~ relationship with any related |
The Charity works with related networks: Heart UK, Diabetics Alliance, Rare Disease UK, RareConnect. |
UK, Genetic |
| parties; | The Charity is currently very dependent on grant funding from |
|
| ~ trustees' consideration of major risks and the system |
Pharmaceutical organisations with vested interests in bringing potential new drugs to the market for the treatment ofFCSand associated conditions. |
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| and procedures to manage |
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| them. | ||
| a ~ |
~ ~ a ~ ~ r |
| ~ | ~ | r ~ ~ ~ r |
|---|---|---|
| Summary ofthe main achievements ofthe charity during the year |
Forthe period, expenses amounted tof3,TOO whilst income totalled R1,857.Cash in Bank (reserves) totalled R30,089as at 31 December 2021. |
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| During 2021 activities were greatly curtailed due to Covid 19,however | ||
| we continued to manage the facebook group FCSCommunity, ran the annual FCSAwareness Day, and recruited a new trustee to the |
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| charity. |
| ~ | e | ~ | ~ | ~ | a | ~ | ~ ~ | |||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Unrestricted | Restricted | Endowment | ||||||||||
| Categories | D tails | funds | funds | funds | ||||||||
| toneatest | R | to | neantst R | to | neamst | B | ||||||
| B1Cash funds | Ltoyds Bank | eo,ess | ||||||||||
| Total | cash funds | |||||||||||
| (a(tree balances with receipts snd payments | ||||||||||||
| accent(s)) | ||||||||||||
| Unrestricted | Restricted | Endowment | ||||||||||
| funds | funds | funds | ||||||||||
| Details | to | neareat a | to | neemet f | ||||||||
| B2Other | monetary assets | |||||||||||
| Fund towhich | Current value | |||||||||||
| Details | asset | |||||||||||
| B3Investment | assets | |||||||||||
| Fund to which | Cunent value | |||||||||||
| Details | asset | 0 | ||||||||||
| 84Assets retained for the | ||||||||||||
| charity's | own | use | ||||||||||
| Fund towhich | Amount due | When due | ||||||||||
| Details | ||||||||||||
| B5Liabilities | ||||||||||||
| Signed by one or two trustees on behalf ofall the trustees |
Signature | Print Name | Date of a roval |
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| g.Wrf' t | Ct /g | ~+Of= | Lf. | QZ |