## ## ## ## |Names and addresses ofadvisers (Optional
information)|Names and addresses ofadvisers (Optional
information)|| |---|---|---| |T
eofadviser
Name|Address|| |Lloyds Bank
Victoria Branch, PO||| |Box1000,BXIILT||| |Name ofchief executive or names ofsenior staff members
(Optional
information)||| |~
a|4
~ ~
4
4
~
~ 4
0|| |Description ofthe charity's trusts||| |Type ofgoverning
document|Constitution|| |How the charity is constituted|Charitable
Incorporated
Organisation|| |Trustee selection methods|Appointed
by the Trustee Board|| |Additional
governance
issues (Optional
information)||| |You may choose to include
additional
information,
where
relevant,
about;|Trustees are selected having regard to the skills and experience needed
to run a small organisation,
along with having
understanding
and/or
experience ofFCSor similar conditions.|| |~
policies and procedures
adopted for the induction
and|All new Trustees are provided
with a copy ofthe constitution
packs ofBoard papers, which include policies and procedures
by the Board.|and past
approved| |training oftrustees;||| |~
the charity's
organisational
structure
and any wider|The charity is run by a volunteer
board oftrustees, the chair ofwhich (and
founder) is the main operational
executive. The Treasurer
is a qualified
Chartered
Company
Secretary.|| |network
with which the charity||| |works;
~
relationship
with any related|The Charity works with related networks:
Heart UK, Diabetics
Alliance, Rare Disease UK, RareConnect.|UK, Genetic| |parties;|The Charity is currently
very dependent
on grant funding
from|| |~
trustees'
consideration
of
major risks and the system|Pharmaceutical
organisations
with vested interests
in bringing
potential
new drugs to the market for the treatment
ofFCSand associated
conditions.|| |and procedures
to manage||| |them.||| |a
~|~ ~
a
~
~
r|| |~|~|r
~
~
~
r| |---|---|---| |Summary ofthe main
achievements
ofthe charity
during the year||Forthe period, expenses amounted
tof3,TOO whilst income totalled
R1,857.Cash in Bank (reserves) totalled R30,089as at 31 December
2021.| |||During 2021 activities were greatly curtailed due to Covid 19,however| |||we continued
to manage the facebook group FCSCommunity,
ran the
annual FCSAwareness
Day, and recruited a new trustee to the| |||charity.| ## |~|e||~|~|~|a|~||~ ~|||| |---|---|---|---|---|---|---|---|---|---|---|---|---| |||||||Unrestricted||Restricted||Endowment||| ||Categories|||D tails||funds|||funds||funds|| |||||||toneatest|R|to|neantst R|to|neamst|B| |B1Cash funds||||Ltoyds Bank||eo,ess||||||| |||||Total|cash funds|||||||| |||||(a(tree balances with receipts snd payments||||||||| ||||||accent(s))|||||||| |||||||Unrestricted||Restricted||Endowment||| |||||||funds|||funds||funds|| |||||Details||||to|neareat a|to|neemet f|| |B2Other|monetary assets|||||||||||| |||||||Fund towhich||||Current value||| |||||Details||asset||||||| |B3Investment||assets||||||||||| |||||||Fund to which||||Cunent value||| |||||Details||asset|||||0|| |84Assets retained for the||||||||||||| |charity's|own|use||||||||||| |||||||Fund towhich||Amount due||When due||| |||||Details||||||||| |B5Liabilities||||||||||||| |Signed by one or two trustees on
behalf ofall the trustees||||Signature|||Print Name|||Date of
a
roval||| |||||||g.Wrf' t|Ct /g|~+Of=||Lf.||QZ|