OpenCharities

United Kingdom Primary Immunodeficiency Network

Ukpin

Country
England & Wales
Charity number
1164466
Status
Registered
Reporting
Up to date Last filed April 6, 2026. Filing history
Registered
Nov. 18, 2015
Legal form
Charitable company
Company number
09273983

Address

Address
9 Appold Street
London
EC2A 2AP

Contact

Phone
020 3019 5901
Email
info@ukpin.org.uk
Website
ukpin.org.uk
Screenshot of the United Kingdom Primary Immunodeficiency Network website

Activities

The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.

Objects: The Objects of the Charity are, for the public benefit: • The advancement of health in particular among those with primary immunodeficiency disorders (“PID”) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice; o Establishing and maintaining a national patients registry; and • The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. • The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives
Who
The General Public/mankind

Geography

Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
June 30, 2025 April 6, 2026On time £0 £125
June 30, 2024 Oct. 10, 2024On time £0 £1,048
June 30, 2023 Oct. 10, 2024163 days late £0 £179,958
Dec. 31, 2022 April 27, 2023On time £55,000 £227,000
Dec. 31, 2021 Jan. 9, 202370 days late £221,000 £179,000

Trustees

Name Appointed
Dr Fiona Culley (Chair) Dec. 20, 2022
Dr Doug Brown Dec. 20, 2022
James Lowe Dec. 20, 2022
Otto Balsiger Dec. 20, 2022