{"country": "England & Wales", "charity_number": "1164466", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1164466", "name": "UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK", "known_as": null, "other_names": [{"name": "UKPIN", "name_type": "Working name"}], "status": "Registered", "date_registered": "2015-11-18", "date_removed": null, "legal_form": "Charitable company", "area_of_benefit": "NOT DEFINED", "address": "9 Appold Street, London", "postcode": "EC2A 2AP", "phone": "02030195901", "email": "info@ukpin.org.uk", "website": "http://ukpin.org.uk/", "lat": 51.521826, "lng": -0.082023, "activities": "The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.", "purposes": null, "what_charity_does": null, "charitable_objects": "The Objects of the Charity are, for the public benefit: \u2022 The advancement of health in particular among those with primary immunodeficiency disorders (\u201cPID\u201d) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice;  o Establishing and maintaining a national patients registry; and \u2022 The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. \u2022 The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 309, "description": "Acts As An Umbrella Or Resource Body"}, {"type": "What", "code": 102, "description": "Education/training"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 0, "latest_expenditure": 125, "fin_period_start": "2024-07-01", "fin_period_end": "2025-06-30", "financial_years": [{"start": "2024-07-01", "end": "2025-06-30", "income": 0, "expenditure": 125, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-07-01", "end": "2024-06-30", "income": 0, "expenditure": 1048, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-01-01", "end": "2023-06-30", "income": 0, "expenditure": 179958, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-01-01", "end": "2022-12-31", "income": 55000, "expenditure": 227000, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-01-01", "end": "2021-12-31", "income": 221000, "expenditure": 179000, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Dr Fiona Culley", "chair": true, "appointment": "2022-12-20"}, {"name": "Dr Doug Brown", "chair": false, "appointment": "2022-12-20"}, {"name": "James Lowe", "chair": false, "appointment": "2022-12-20"}, {"name": "Otto Balsiger", "chair": false, "appointment": "2022-12-20"}]}