# UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK

## Details

- **Country:** England & Wales
- **Charity number:** 1164466
- **Other names:** UKPIN
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Nov. 18, 2015
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1164466


## Contact

- **Address:** 9 Appold Street, London
- **Postcode:** EC2A 2AP
- **Phone:** 02030195901
- **Email:** info@ukpin.org.uk
- **Website:** http://ukpin.org.uk/



## Activities

**Objects:** The Objects of the Charity are, for the public benefit: • The advancement of health in particular among those with primary immunodeficiency disorders (“PID”) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice;  o Establishing and maintaining a national patients registry; and • The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. • The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.

**Activities:** The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2025 | £0 | £125 | — | — |
| June 30, 2024 | £0 | £1048 | — | — |
| June 30, 2023 | £0 | £179958 | — | — |
| Dec. 31, 2022 | £55000 | £227000 | — | — |
| Dec. 31, 2021 | £221000 | £179000 | — | — |



## Trustees

- **Dr Fiona Culley** (Chair) — appointed Dec. 20, 2022
- Dr Doug Brown — appointed Dec. 20, 2022
- James Lowe — appointed Dec. 20, 2022
- Otto Balsiger — appointed Dec. 20, 2022