Alport UK
- Country
- England & Wales
- Charity number
- 1154774
- Status
- Registered
- Reporting
- Filed late The latest return was filed 31 days late, on July 2, 2026. Filing history
- Registered
- Nov. 27, 2013
- Legal form
- CIO
Address
- Address
- PO Box 329
Cirencester
GL7 9JA
Contact
- Phone
- 01793 847264
- info@alportuk.org
- Website
alportuk.org
Activities
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
Objects: The Objects Of The CIO Are The Relief Of Sickness And The Promotion Of Health Of Those People Suffering From Alport Syndrome, In Particular, But Not Exclusively By: (A) The Establishment And Facilitation Of A Support Network For Alport Syndrome Patients, Carriers, Their Families And Carers; (B) The Provision Of Information On Alport Syndrome; (C) The Support Of Research Into Alport Syndrome Both In The UK And Internationally;(d) The Support Of A Research Registry In The UK And An International Alliance Of National Registries.
Classification
- How
- Provides Advocacy/advice/information
- What
- The Advancement Of Health Or Saving Of Lives
- Who
- Other Defined Groups
Geography
- Region
- Throughout England And Wales
Finances
| Period end | Filed | Income | Expenditure |
|---|---|---|---|
| Aug. 1, 2025 | July 2, 202631 days late | £178,592 | £166,679 |
| Aug. 1, 2024 | Dec. 24, 2024On time | £154,267 | £155,496 |
| Aug. 1, 2023 | Sept. 11, 2024102 days late | £92,190 | £93,858 |
| Aug. 1, 2022 | Oct. 17, 2022On time | £37,443 | £47,756 |
| Aug. 1, 2021 | Aug. 21, 2021On time | £60,067 | £28,327 |
| Aug. 1, 2020 | Aug. 21, 2021 | £60,067 | £28,327 |
Trustees
| Name | Appointed |
|---|---|
| Professor Frances Anne Flinter (Chair) | April 11, 2025 |
| Alice Turner | May 6, 2025 |
| Amanda McLean | May 9, 2025 |
| Professor Daniel Gale | April 29, 2025 |
| Professor Neil Turner | April 29, 2025 |
| Professor Rachel Lennon | April 11, 2025 |
| Susie Gear | June 30, 2025 |