{"country": "England & Wales", "charity_number": "1154774", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1154774", "name": "ALPORT UK", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2013-11-27", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "PO Box 329, Cirencester", "postcode": "GL7 9JA", "phone": "01793 847264", "email": "info@alportuk.org", "website": "alportuk.org", "lat": 51.701909, "lng": -1.960441, "activities": "Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.", "classifications": [{"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 206, "description": "Other Defined Groups"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 154267, "latest_expenditure": 155496, "fin_period_start": "2023-08-02", "fin_period_end": "2024-08-01", "financial_years": [{"start": "2023-08-02", "end": "2024-08-01", "income": 154267, "expenditure": 155496, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-08-02", "end": "2023-08-01", "income": 92190, "expenditure": 93858, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-08-02", "end": "2022-08-01", "income": 37443, "expenditure": 47756, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-08-02", "end": "2021-08-01", "income": 60067, "expenditure": 28327, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2019-08-02", "end": "2020-08-01", "income": 60067, "expenditure": 28327, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Professor Frances Anne Flinter", "chair": true, "appointment": "2025-04-11"}, {"name": "Alice Turner", "chair": false, "appointment": "2025-05-06"}, {"name": "Amanda McLean", "chair": false, "appointment": "2025-05-09"}, {"name": "Professor Daniel Gale", "chair": false, "appointment": "2025-04-29"}, {"name": "Professor Neil Turner", "chair": false, "appointment": "2025-04-29"}, {"name": "Professor Rachel Lennon", "chair": false, "appointment": "2025-04-11"}, {"name": "Susie Gear", "chair": false, "appointment": "2025-06-30"}]}