# ALPORT UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1154774
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 27, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1154774


## Contact

- **Address:** PO Box 329, Cirencester
- **Postcode:** GL7 9JA
- **Phone:** 01793 847264
- **Email:** info@alportuk.org
- **Website:** alportuk.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

**Activities:** Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Professor Frances Anne Flinter** | Chair | April 11, 2025 |
| Alice Turner |  | May 6, 2025 |
| Amanda McLean |  | May 9, 2025 |
| Professor Daniel Gale |  | April 29, 2025 |
| Professor Neil Turner |  | April 29, 2025 |
| Professor Rachel Lennon |  | April 11, 2025 |
| Susie Gear |  | June 30, 2025 |




