# ALPORT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1154774
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 27, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1154774


## Contact

- **Address:** PO Box 329, Cirencester
- **Postcode:** GL7 9JA
- **Phone:** 01793 847264
- **Email:** info@alportuk.org
- **Website:** alportuk.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PROMOTION OF HEALTH OF THOSE PEOPLE SUFFERING FROM ALPORT SYNDROME, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (A) THE ESTABLISHMENT AND FACILITATION OF A SUPPORT NETWORK FOR ALPORT SYNDROME PATIENTS, CARRIERS, THEIR FAMILIES AND CARERS; (B) THE PROVISION OF INFORMATION ON ALPORT SYNDROME; (C) THE SUPPORT OF RESEARCH INTO ALPORT SYNDROME BOTH IN THE UK AND INTERNATIONALLY;(D) THE SUPPORT OF A RESEARCH REGISTRY IN THE UK AND AN INTERNATIONAL ALLIANCE OF NATIONAL REGISTRIES.

**Activities:** Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Aug. 1, 2024 | £154267 | £155496 | — | — |
| Aug. 1, 2023 | £92190 | £93858 | — | — |
| Aug. 1, 2022 | £37443 | £47756 | — | — |
| Aug. 1, 2021 | £60067 | £28327 | — | — |
| Aug. 1, 2020 | £60067 | £28327 | — | — |



## Trustees

- **Professor Frances Anne Flinter** (Chair) — appointed April 11, 2025
- Alice Turner — appointed May 6, 2025
- Amanda McLean — appointed May 9, 2025
- Professor Daniel Gale — appointed April 29, 2025
- Professor Neil Turner — appointed April 29, 2025
- Professor Rachel Lennon — appointed April 11, 2025
- Susie Gear — appointed June 30, 2025